Anyone have Factor V Leiden Deficiency? - Blood and Blood Vessel Message Board

Lady^ · 08-02-2002, 07:05 AM

Just wondering if anyone else has this and how/if it has affected their lives.

mamasemail · 09-05-2003, 12:58 PM

Hello: I have recently been diagnosed with Factor 5 Leiden, and would like to correspond with someone else who have this disease. I'm 62 years old, and it just came about now! I'm on coumadin 4 mg once a day.
Thanks.

bettybygosh · 09-15-2003, 09:08 AM

hi newbie, iam am an old timer at this, you have been diagnosed with factor v leiden, ? how are you doing? what happened to you and how did you get diagnosed now? is your coumidine helping you? any questions just drop me aline, thats what we all are here for. bette

trainwreck · 10-18-2003, 06:18 AM

Hi. I too have Factor V Leiden Mutation, diagnosed 18 months ago but suspected it 2 years ago after being hospitalized for a DVT that was unbeknownst to me prior. I suspected it because it is genetic and my nephew has it and my sister obviously is a carrier. I was on Coumadin for 6 months following the DVT and then off for about a year until April of this year. It's an annoyance due to the fact that we have yet to stabilize my Coumadin dose, so I have blood draws weekly.

Brad King · 11-25-2003, 03:20 PM

Hi all,

Just found out I have it, too. Good news is we can treat it. Bad news is I found out after discovering I had CRVO (central vein retinal occlusion). That is a nasty bugger that makes you lose part or all of your eyesight in the affected eye. No treatment although some folks do recover totally. Drag. Anyway, if you are clotty like us, you have a higher chance of getting CRVO. It's basically a stroke in the eye.

So, if you have it, don't blow it off. Go see your doctor and don't ever let yourself get dehydrated.

Have a happy holiday season...Cheers.