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Old 07-25-2006, 07:59 AM   #1
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tml65 HB User
Blood Platelets 858

Hello. I am new to these boards and I am feeling a little overwhelmed. I am a41 year old female and results of bloodwork for a routine physical showed a platelet count of 858. Dr. (GP) did not seem concerned and I knew that low platelets were bad - so I initally assumed high platelets meant healthy. After doing some research I have a different perspective. I phoned the Dr. the next morning to educate him about my father (Leukemia) and my father's sis (Lymphoma), both now deceased. Dr. still did not get excited but did suggest more blood work in 2-3 weeks. Stated that its not really something to worry about until the numbers are over 1 mil. and that platelets are very sensitive and can be swayed easily. I am reading here that there are people on serious medications with numbers lower than mine, granted until more bloodwork is done this is an isolated incident for me. Every day it is all I can do to run into my Dr's office and say just take it now!!!

Freaked Out only accounts for 10% of my mind games. Uninformed, unprepared, over-thinking, and generally scared to death can account for the rest.

There is a lot more that I could post but I would prefer to hear from others first. At what point do I need to push on behalf of my health to see a hematologist without being seen as a drama queen?! Did anyone else just have a sudden unexplained increase in platelets?

 
Old 07-26-2006, 10:27 AM   #2
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Re: Blood Platelets 858

Quote:
Originally Posted by tml65
Hello. I am new to these boards and I am feeling a little overwhelmed. I am a41 year old female and results of bloodwork for a routine physical showed a platelet count of 858. Dr. (GP) did not seem concerned and I knew that low platelets were bad - so I initally assumed high platelets meant healthy. After doing some research I have a different perspective. I phoned the Dr. the next morning to educate him about my father (Leukemia) and my father's sis (Lymphoma), both now deceased. Dr. still did not get excited but did suggest more blood work in 2-3 weeks. Stated that its not really something to worry about until the numbers are over 1 mil. and that platelets are very sensitive and can be swayed easily. I am reading here that there are people on serious medications with numbers lower than mine, granted until more bloodwork is done this is an isolated incident for me. Every day it is all I can do to run into my Dr's office and say just take it now!!!

Freaked Out only accounts for 10% of my mind games. Uninformed, unprepared, over-thinking, and generally scared to death can account for the rest.

There is a lot more that I could post but I would prefer to hear from others first. At what point do I need to push on behalf of my health to see a hematologist without being seen as a drama queen?! Did anyone else just have a sudden unexplained increase in platelets?

Dear tml65,
I just received some unsettling news myself from my routine blood work. My appointment was on Monday and by Tuesday evening my Dr. left a message on my machine. Of couse, sleeping last night was just out of the question. When I called this morning, she wasn't in. I made the nurse look into it because another day of not knowing was unthinkable. She said my platelet count was just a fraction below normal. Not to worry, she said, just come back in 2 weeks to retake it. Easier said then done. I understand your feelings. My mother died of luk. I am very scared. Is this the beginning of the end? I can't bare to think of it. I am a mother of 2 children. I lost mine at 16 and never recovered.
I never go on any chat or whatever sites...simply don't have the time. While I was looking up about platelet counts, I linked here. Reading your story actually made me take that time and register just so I could respond to you. Like you, I don't want to blow this out of propotion, but it might be something. The nurse said that lab mistakes happen and its probably nothing. What I don't understand is in your story you said that they are low but Dr. said not to worry unless they are as high as 1 Million? What am I missing? Did you look up what is the normal range and what it means if they are too low or too high? I would really like to continue communication with you.

 
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Old 07-26-2006, 10:32 AM   #3
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Re: Blood Platelets 858

Dear tml65,
I just received some unsettling news myself from my routine blood work. My appointment was on Monday and by Tuesday evening my Dr. left a message on my machine. Of couse, sleeping last night was just out of the question. When I called this morning, she wasn't in. I made the nurse look into it because another day of not knowing was unthinkable. She said my platelet count was just a fraction below normal. Not to worry, she said, just come back in 2 weeks to retake it. Easier said then done. I understand your feelings. My mother died of luk. I am very scared. Is this the beginning of the end? I can't bare to think of it. I am a mother of 2 children. I lost mine at 16 and never recovered.
I never go on any chat or whatever sites...simply don't have the time. While I was looking up about platelet counts, I linked here. Reading your story actually made me take that time and register just so I could respond to you. Like you, I don't want to blow this out of propotion, but it might be something. The nurse said that lab mistakes happen and its probably nothing. What I don't understand is in your story you said that they are low but Dr. said not to worry unless they are as high as 1 Million? What am I missing? Did you look up what is the normal range and what it means if they are too low or too high? I would really like to continue communication with you.

 
Old 07-26-2006, 11:17 AM   #4
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Join Date: Jul 2006
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tml65 HB User
Re: Blood Platelets 858

Hello tibbett,

Glad to hear from someone. What kind of Leuk. did you look your mom too? I lost my dad to CLL and its usual suspects that fraction off of that.

Regarding your question, I believe I ran a thought together that only made sense to me. What I meant to say is that after hearing my count was high at858, (normal is between 150-450) was good - that my platelets were healthy and multiplying better than normal. All the medical material I went through with my dad I knew that a low platelet count was bad, so it never really occured to me that being better than normal was bad. I'm an overachiever anyway so better than normal always sounds good!

It was a coomplete shock to discover that too high is as bad as too low. The first conversation with my GP did not raise any red flags. He remarked that it is not usually an issue until your number is over one million. Keep in mind the numbers previously stated, ie: 858 and 150-450, all have unwritten but implied ,000 behind them. So my count is actually in real numbers 858,000. That being said after reviewing information on this site, the Leukemia and Lymphoma site and the MD Anderson site, there are individuals on medications with lower numbers than mine so that makes me wonder if it could be the difference in talking with my regular GP (General Practitioner or Family Doctor) versus a Hematologist who specialized in blood disorders.

I am keeping in mind that this is the first time this has happened - but as I am sure you are aware, all it takes is that first revelation and your complete vocabulary changes!

Thanks for taking the time to register and post. I've checked a couple of times today and was feeling a little lost that no one had offered any advice or direction or previous experiences.

Please keep in touch and thanks again for your thoughts. It really means a lot to hear from someone with similar history and situation.

 
Old 07-26-2006, 05:52 PM   #5
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Merimac HB UserMerimac HB User
Re: Blood Platelets 858

I wanted to write and let you know that if your doctor is unconcerned at this time, it is just that the evidence does not indicate a problem at this time. A female on her period can briefly have an elevated blood platelet count. Another short term error can be an automated platelet count. Platelets are difficult to count under the best of circumstance. They either stick to each other like pieces of Saran wrap, or they break into fragments making it look like more platelets than normal. The doctor will want to take more than one blood test in a sample time period to see if it is a one time problem or if it is consistently ranging high or low. By the way even if a doctor is sure there may be a problem, they are supposed to remain objective so that they can see the right treatment direction to take. Never assume the doctor is not concerned simply because they do not sound panicked or emotional. Sometimes they are evaluating the situation as you talk and trying to piece together the evidence they have for the next correct action. Doctors are taught to go on scientific evidence for the benefit of the patient. You would never want the doctor to prescribe an unnecessary procedure or medication just to meet an emotional reaction.

Last edited by Merimac; 07-26-2006 at 05:55 PM.

 
Old 07-27-2006, 02:59 AM   #6
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Join Date: Apr 2006
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Genessa HB User
Re: Blood Platelets 858

Quote:
Originally Posted by tml65
Hello tibbett,

Glad to hear from someone. What kind of Leuk. did you look your mom too? I lost my dad to CLL and its usual suspects that fraction off of that.

Regarding your question, I believe I ran a thought together that only made sense to me. What I meant to say is that after hearing my count was high at858, (normal is between 150-450) was good - that my platelets were healthy and multiplying better than normal. All the medical material I went through with my dad I knew that a low platelet count was bad, so it never really occured to me that being better than normal was bad. I'm an overachiever anyway so better than normal always sounds good!

It was a coomplete shock to discover that too high is as bad as too low. The first conversation with my GP did not raise any red flags. He remarked that it is not usually an issue until your number is over one million. Keep in mind the numbers previously stated, ie: 858 and 150-450, all have unwritten but implied ,000 behind them. So my count is actually in real numbers 858,000. That being said after reviewing information on this site, the Leukemia and Lymphoma site and the MD Anderson site, there are individuals on medications with lower numbers than mine so that makes me wonder if it could be the difference in talking with my regular GP (General Practitioner or Family Doctor) versus a Hematologist who specialized in blood disorders.

I am keeping in mind that this is the first time this has happened - but as I am sure you are aware, all it takes is that first revelation and your complete vocabulary changes!

Thanks for taking the time to register and post. I've checked a couple of times today and was feeling a little lost that no one had offered any advice or direction or previous experiences.

Please keep in touch and thanks again for your thoughts. It really means a lot to hear from someone with similar history and situation.
I was with you - I used to donate platelets and thought the mroe, the merrier. Was not concerned when the blood donor people told me my count was too high, until I started researching.

most hematologists today don't seem to want to medicate anyone unless their count is over 1 mil or they are symptomatic. I had been sent to a hem two years ago when my count was in the 500s, but the hem did nothing but check my count for 2 years. My internist prescribed meds and my hem kept me on them (I didn't have a hem appt for several more weeks, was exhibiting excruciating headache and high blood pressure). Hem told me at that time he was just keeping me on the meds because my count was falling and I was definitely feeling better - hadn't realized just how bad I had been feeling, fatigue wise.

If your counts are still elevated, see a hem. There are many "temporary" causes of high platelets, though.

 
Old 09-11-2006, 06:00 AM   #7
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Re: Blood Platelets 858

I agree that there are many temporary causes of high platelets and that the lab tests are not absolute. If you do have a disorder, it is not something acute which you need to panic about, particularly not in the short term, so let the doctor do a repeat blood test and see if your counts remain high. What I can say is that the "don't treat unless counts are over a million" may be outdated. I have essential thrombocythaemia and I know that symptoms and problems can arise at counts much less than this. If your counts stay high and you need further tests, you should get a bone marrow biopsy, platelet function tests and some genetic tests. Don't panic, but get it checked out properly if necessary.

 
Old 09-12-2006, 06:47 PM   #8
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Saf1 HB User
Re: Blood Platelets 858

Hello all!
Like must of us I too learned of my high platlet count via a "random" blood test. I was having blood pressure vision problems that led me to the doc. The first thing I discovered after weeks of poor comunication from my doctor was that he realy new very little of the issue. The only smart thing he did (after my second blood check) was send me to a hematologist. On that note, I just wish my doc had stated that he had limited info. Telling me it was nothing to get excited about was just not going to cut it.
Dealing with my doctor and the hemo, it probably took two months before I got to the specialist. In this two months I spent a lot of time on the net. My vision problem according to the net. was a possible related sign of high platelets. The hemo. didn't think so. Like the net and a hemo. both would tell you, high platelets becomes a game of elimination.
#1, no two people have the same symptoms. I've gone from 650 to 700something and so far have had no problems. Others as low as the 400s have had lung blood clots. I personally refuse to take the two drugs offered as no one has reported long term benefits only major sickness.
If your doc. doesn't suggest you see a hemo at 850 platlet count, I'd suggest you see another doctor. I would trust only a hemo. to any of your questions, and remember, even they don't know much. ET is supposed to be rare, but it seems like more and more people are talking about it.
P.S. Having a bone marrow biopsy is not painful. Just a lot of pressure. You will be sore for a few days afterward though.

 
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