Originally Posted by station565
Thanks for your response. I have headaches often - as in most days. Low level (background) headaches. I used to have alot of muigraines and took Zomig when then were unbearable. I now rarely have them (yahoo). I went yesterday to the blood lab and now wait until the next visit to the doctor to see the numbers. The hemotologist was of the mind that I have Esssential Thromobocytosis, but told me not to be surprised if he changes that diagnosis to Polcythemia Vera. The JAK-2 test showed negative. I only wish that they knew for certain what is happening in my body........
Hello Again, I asked about the headaches because I have suffered with them all my life. I read where a lot of people with ET seem to suffer with headaches. Just wondering if there was a connection.
Although I might add that i have also been diagnosed with a low grade tumor in the front part of my brain. So maybe my headaches are caused by that tumor. I have been going to a hemotologist for 3 years now, and we cannot get my levels under control. As soon as he decreases my meds, my platelets go high again. My doctor seems to think I have Reactive Thrombocytosis, as opposed to Essential. All of my tests are good, but I do not react to the meds. I have been on doses as high as 3000 milligrams a day! I, too, wish I knew what was happening to my body! Keep going until you find an answer, and hang in there.
Best of luck to you, and let me know how you are making out.