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Old 02-25-2008, 02:08 PM   #1
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Coming Off Coumadin...

I'm a 25 year old male, I had a PE back in September 07, after an abdominal surgery... I have been on Coumadin and know they said in 6 months I could come off, and I spoke to my doctor today, and he told me I could go ahead and stop my Coumadin today...

Has anyone else been on this for just 6 months and come off it like this with no problems?.. I know I probably shouldn't be nervous, but I am..

 
Old 03-01-2008, 06:40 AM   #2
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Re: Coming Off Coumadin...

Hi there

I started Coumadin in May 2007 and stopped it in October 2007 for surgery to remove a vena cava filter. Well, everything went wrong, the filter couldn't come out and the doctor damaged my vein, AND since I wasn't on Coumadin, my clots came back full force. My situation is obviously different than yours, since my veins were messed with.

I am a little surprised your doctor is so easily letting you off of Coumadin. But, maybe my case was more serious (PE, SE, DVT) because it covered many areas of my body. My doctors (I've gone to many specialists) said 6 months to a year, but were always pushing more towards a year.

If you've hit the 6-month mark and everyone feels it's time to move on, then do it (stop poisoning your body with Coumadin), just make sure that you pay attention to your body, and take any sign of a clot seriously.

Good luck!

 
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Old 03-01-2008, 07:35 AM   #3
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Re: Coming Off Coumadin...

I've never had pre-existing problems with my blood. No disorders that I know of, and no history of clots before the surgery...

I try to do 10 minutes of walking every 4 hours or so.. What steps do you take to try to prevent clots?

 
Old 03-01-2008, 08:56 AM   #4
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Re: Coming Off Coumadin...

Neither do I (have a blood disorder or something), the doctors don't know what caused the first ones, and the second time was like a recurrence.

Well I'm not on Coumadin anymore. For some reason, Coumadin didn't work the second time around so I'm on Lovenox shots twice a day since October. Hopefully that'll come to an end sometime soon. I'm in college so will be seeing a doctor at home over Spring Break.

I start everyday with exercise. I'm sitting a lot in class, but my apartment is far so walking to and from class helps. I don't think there's much more one can do. I don't smoke, I'm not overweight, and everything else seems healthy... it's so crazy these things happen! I see a cardiologist every now and then, and most important is the vein specialist.

Since yours was a PE, have you had a CT scan somewhat recently? That'll really help in determining if you're ready to come off of Coumadin or not. Just make sure you see a doctor once in a while to make sure nothing reoccurs.

 
Old 03-01-2008, 11:21 AM   #5
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Re: Coming Off Coumadin...

I had a CT scan a few months after my PE, and the clots were completely dissolved... Did you have surgery that gave you yours?

How did you find out you had blood clots? Me it was about a week after surgery, I couldn't breathe well, and my temperature was 101.2... I went in to get fluids, and they did a CT the next day and found them...

 
Old 03-01-2008, 02:15 PM   #6
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Re: Coming Off Coumadin...

First time:
I wasn't feel well a few weeks before I was hospitalized. I went to the school health center where I was diagnosed with a pulled muscle (because I had pain in my chest) and asthma (I was out of breath when I walked). Then, I noticed my leg was really swollen, but dismissed it, and had a heart attack at the mall. Arrived at the hospital, my leg was swollen like crazy, and I was put on bed-rest.

Second time:
Had surgery, then was feeling really sick...fever of 104 for over a week, night sweats so bad that I would wake up several times at night and have to change my clothes/sheets. The health center (stupid I even went back there, but I hate going to any doctors) said I probably had an infection from surgery, but when my blood tests didn't show anything, the doctor gave me antibiotics for a bladder infection!!! (which I knew I didn't have) I actually took the medicine anyway, hoping that it would help. Then my leg started to swell again and I made it to the emergency room and was transferred to the IC unit.

The surgery caused the clots to come back. It isn't uncommon for clots to come back, but the more time that passes without clots, the less of a chance they'll come back (does that make sense? haha).

I'm having another CT in a bit, MRI too, just to make sure things are going smoothly. (I had one before surgery and things were perfect, by the way.)

You're so lucky they caught your clot early on. More people die each year from blood clots than from HIV and breast cancer combined.

 
Old 03-01-2008, 04:36 PM   #7
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Re: Coming Off Coumadin...

Well I never had a swelling leg, my wife called my surgeon several times and he asked if my legs were swollen and they were not.. He said not to come in until fever was atleast 102 or higher, but after a few days at 101.2 and never dropping from tons of fever reducers we decided to go to the ER, and I was in a regular room for 1¬Ĺ days before they found the clots, then transferred to ICU for 8 days..

I get aches and pains in my leg, so I get stressed a lot... I check for swelling or any warmness as I've heard that's a sign.. I check my fever often, and stress about it so much that I'm probably driving my wife crazy..lol

 
Old 03-02-2008, 06:18 AM   #8
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Re: Coming Off Coumadin...

My clots started in my leg (veins were completely blocked), and some broke off and traveled to my lungs and heart. I'm thinking that, because the clots form in your vein, they travel north . You mentioned you had abdominal surgery, so I'm assuming the clots formed around there. I only mention this because I highly doubt you will all of the sudden form DVTs. From my understanding (and I could be wrong), clots will reoccur in the same area, so you only really need to worry about your breathing/lungs. (For instance, when my clots came back, they came back in my left leg (same leg as before) and in my lungs.)

Haha, I'm sure it's nice to have a supporting wife. Don't stress about it too much, live life to its fullest. Experiences like these really change perception of things...

 
Old 03-02-2008, 11:17 AM   #9
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Re: Coming Off Coumadin...

Yeah I have asthma, so that's the only trouble breathing right now.. I'm hoping that no clots re-appear as pre-clots and pre-surgery I was pretty healthy and hope I can get that way again..

 
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