Re: ITP questions ...
We're not allowed to mention other sites here. I am a member of another online support group for ITP.
Yes, I did mention remission. If it is truly ITP, not just low platelets caused by another disease process like Lupus or medication induced or bone marrow production issue, then it is a condition that can go into remission, but not cured.
I had my spleen out in 1995 and was in remission until a bout of the flu in 2003 brought me out. A few weeks on Pred put me back in remission. Now it is very rare for me to have a relapse - usually only if I'm exposed to chemicals, that is a trigger for me. Most people do not have to be on Prednisone continually. It is not recommended.
Personality changes are part of the Prednisone treatment. Unfortunately. The good news is that they go away when you finish the high doses - anything 20mg and over makes me insane, mean, awful.
If your insurance doesn't cover the Rituxan, you can apply for assistance from the company to get it for free. Your dr's staff will probably knwo about it - it's called the SPOC program, I think. If you need more info, I can find out for you.
You'll find out what works for his ITP, and though it is awfully hard in the beginnning, trust me, it does become completely manageable. I promise!