Re: polycythemia and liver lumps
Hi there! This site has several people (including me) with PV who are so great at sharing information and experiences with this condition. When I found out last year that I have it I looked everywhere for information and it led me here. I hope you have the same experience and get lots of your questions answered. The good thing is that you are already being treated. The phlebotomies make a big difference in how you feel and you may need to get them done often at first but later you should need them less as your blood thins out. I had them done every 2 weeks at first and then every 4 weeks, now it's every 6. Try to be open minded about what you read online about this condition. It is different for everyone and is not cancer, just something that we need to monitor and adjust to and we can live normal lives otherwise. I had some websites from when I was looking for information before, I will see if I can find them again. This is one that has accurate facts: http://www.mpdinfo.org/faq/faq_pv.html
If you have any questions please know this (as well as your doctor) is the place to ask! This is a great community that I have found to be extremely helpful and supportive since being diagnosed last year!