Re: Polycythemia? I'm scared..
Hi! I was diagnosed with polycythemia 2 years ago, I was 22 at the time. It sounds like your hematocrit is a bit high, with polycythemia it gets elevated and the way it is lowered is through removal of blood, it's like donating blood (but they can't use it). I get blood removed (500ml) every month or 2 when my hematocrit gets to around 43-44%. When it gets that high I feel pretty sluggish and tired and have headaches, and having it removed makes me more energetic and no more headache. If you think you might have PV they can do a blood test for the JAK2 mutation, 95% of people with PV have the mutation. I have it too. They did a bone marrow biopsy on me to confirm things 100%. My heart rate is also elevated, usually around 95 resting, and blood pressure is low/normal. It sounds like you might benefit from looking into this a little further. I'm on coumadin for life too, and just had a healthy baby boy 6 months ago so this is something you can live pretty comfortably with as long as it is being managed properly. Good luck!
Last edited by femmedeviant; 03-18-2011 at 03:12 PM.