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Old 10-05-2011, 06:56 AM   #1
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Lightbulb Is this a crazy idea? polycythemia

Hi my name is Mike and I was diagnosed with polycythemia vera about 3 years ago. I went through a year of phlebotomy treatments were 250 to 350 ml of blood was drawn. At frist 2 a month and then tapered off to 1 a month. My crit and RBC's dropped as expected and was scheduled for a maintenance program to keep it constant.

Here is my question, I lost my job and medical ins. last May so I have been going to a local clinic which is a pay provider based on income. The DR there who I know is good said according to my blood work my Crit and RBC's are high, again. RBC - 20-21 range. I expected this; however the clinic does not preform any phlebotomy procedures other than blood specimen collection for testing purposes.

So is this a crazy idea ? I do not have ins. and the procedure is expensive but rather easy to do. I was thinking of doing the procedure myself. I would of coarse have my wife with me so if I passed out she would be there. I do not think I would however as I never have before during a procedure. Is this crazy? The process seems very simple to me. I have watched it done countless times and even remember how much blood was removed. This is crazy right? But I really feel I need to control this, comments please!

Last edited by searay660; 10-05-2011 at 07:00 AM. Reason: spelling errors

 
Old 10-05-2011, 07:09 AM   #2
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Re: Is this a crazy idea? polycythemia

Quote:
Originally Posted by searay660 View Post
Hi my name is Mike and I was diagnosed with polycythemia vera about 3 years ago. I went through a year of phlebotomy treatments were 250 to 350 ml of blood was drawn. At frist 2 a month and then tapered off to 1 a month. My crit and RBC's dropped as expected and was scheduled for a maintenance program to keep it constant.

Here is my question, I lost my job and medical ins. last May so I have been going to a local clinic which is a pay provider based on income. The DR there who I know is good said according to my blood work my Crit and RBC's are high, again. RBC - 20-21 range. I expected this; however the clinic does not preform any phlebotomy procedures other than blood specimen collection for testing purposes.

So is this a crazy idea ? I do not have ins. and the procedure is expensive but rather easy to do. I was thinking of doing the procedure myself. I would of coarse have my wife with me so if I passed out she would be there. I do not think I would however as I never have before during a procedure. Is this crazy? The process seems very simple to me. I have watched it done countless times and even remember how much blood was removed. This is crazy right? But I really feel I need to control this, comments please!
Mike, really fell badly about your situation, but your wife is not a medical professional and the potential for infections is very high. I suggest going to the public hospitals. Their charges are based upon income. Many, such as Cleveland Clinic will help you.

 
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Old 10-05-2011, 07:33 AM   #3
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Re: Is this a crazy idea? polycythemia

I know it sounds crazy! But here in California free medical services are not really free. They still charge up to 150.00 per visit. Cheaper than going to a regular doc but expensive for me. Thanks for your reply! Like I said I have seen it done and keeping the procedure clean would be very important. My concern is the long term effects for not having the procedure done. I have read that it could be damaging my spleen, heart, etc.

 
Old 10-05-2011, 08:37 AM   #4
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Re: Is this a crazy idea? polycythemia

Mike, Sorry to here this. You and millions of adults and children without health insurance is the reason why we need a national health plan.

 
Old 10-05-2011, 10:55 AM   #5
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Re: Is this a crazy idea? polycythemia

Mike,something U may think about is going to a local "blood Mobile" drive.They usually test UR iron level and U can confidentially say whether u want them to use UR blood or not;and of course they can't.But U can get rid of the excess blood.I was diagnosed with PV in 2000 and had symptoms dating back to 1994 and I donated blood at the blood mobile without realizing I had this dreaded disease.
Good Luck;
Randy

 
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