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Old 02-13-2012, 09:47 AM   #1
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Polycythemia... What foods are you avoiding?

Hi, recently diagnosed with polycythemia and was wondering what foods is everybody either avoiding or limiting?

When I asked my hematologist what foods should i avoid..he said 'none' but i know from reading that we should limit the amount of iron rich foods we intake.
Just want to know from others..what foods are you totally avoiding?
what foods are you just limiting in your diet?

Love a good t-bone,
Joanne

 
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Old 02-13-2012, 07:35 PM   #2
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Re: Polycythemia..What foods are you avoiding?

Quote:
Originally Posted by Cangal View Post
Hi, recently diagnosed with polycythemia and was wondering what foods is everybody either avoiding or limiting?

When I asked my hematologist what foods should i avoid..he said 'none' but i know from reading that we should limit the amount of iron rich foods we intake.
Just want to know from others..what foods are you totally avoiding?
what foods are you just limiting in your diet?

Love a good t-bone,
Joanne
Great idea Joanne!I hope U get some good response's.My favorite meat is serloin steak (well done).Don't get that often.
I don't eat enough.Appetite is a bit on the poor side.
God Bless
Randy

 
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Old 02-15-2012, 09:15 AM   #3
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Re: Polycythemia..What foods are you avoiding?

Is there something you feel is helping your symptoms or reducing the frequency of phlebotomies?

I was just diagnosed so have not much to contribute.
Here is what I am trying :
-I am taking 100mg of Co enzyme Q10- to help remove free radicals from the body
-Trying to reduce the amount of red meats I eat
-Drinking green tea and grape juice in the am (instead of orange juice)-both are said to help thin the blood
Grape Juice: Grape skin/seed extract possess fantastic heart-health properties. Grape juice, which is made from whole grapes, is effective in clearing arteries. It contains powerful flavinoids which prevent cholesterol stickage, reduces inflammation and blood clots, and keeps blood vessels clear.

Green Tea: Just one cup a day of quality green tea contains a large number of flavinoids which provide antioxidant protection. In addition, green tea contains ‘procyanidins’, which help prevent the formation of blood clots

Jo

Last edited by Administrator; 08-20-2012 at 04:17 PM.

 
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Old 02-15-2012, 06:08 PM   #4
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Re: Polycythemia..What foods are you avoiding?

Hi Jo!Thanks for all the nutritional tips.We people with PV need to keep our blood thin and flowing good.I talked with my Pharmasist today and he said no problem taking the co Q 10!
GB &TC;
Randy

Last edited by Administrator; 08-20-2012 at 04:18 PM.

 
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Old 02-15-2012, 06:53 PM   #5
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Re: Polycythemia... What foods are you avoiding?

Great news Randy!
Hope it helps you...and me too

 
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Old 08-19-2012, 02:48 PM   #6
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Re: Polycythemia... What foods are you avoiding?

Hi there I am also a suffer of PV, Like you guys, what we eat is very important, Unfortunately I can't take anything like grape fruit Juice, as I'm On blood Pressure Pills, that reduced the blood pressure lowing effects. I also suffer from headache and Migraines, and some food I can't eat, which I love, and to try a get good balance of nutrition, Is ok along as I'm eating in moderation fresh fruit and Vegetables, keeping in mind of the high in iron foods, like Spinach, silverbeet, Red meat mostly I think, I do occasionally at least one a week. I stay away from Orange Juice as this worsen my headaches for some reason. Here in NZ we are able to grow our Vegetables and fruits, which I love. For some reason I love Bread, Pasta, Cereals, I have to watch the nutty spread as they maybe also a contrition to my headaches(not Sure really) as I love my Peanut butter.I'm carrying a bit more weight than I normally am, normally I'm 69Kg, at the moment sitting around 90kg which really depresses me , My counsellor say it to the Meds that are causing it, not the food I'm Eating. Any way thanks for ready my reply. Debbie from NZ

 
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Old 08-19-2012, 04:43 PM   #7
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Re: Polycythemia... What foods are you avoiding?

Hi Deb.I eat rather poorly! I can eat anything I like and all I want;but,do try to curtail my red meat intake.I used to stay at 170-175 pounds and now I can't get to 160.I take 1.5mg hydroxurea,162mg aspirin,1000mg fish oil,3mg xanax,50mg zoloft and benedryl when needed for itching.It is something we have to learn to live with.I lost weight when my spleen enlarged in December of 2010 and it is enlarging again.The hem says whenever I have another pain attack he will have it radiated again.SOOO;hope U have everything in good shape take care.
God Bless;
Randy

Last edited by Administrator; 08-20-2012 at 04:31 PM.

 
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Old 08-19-2012, 06:49 PM   #8
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Re: Polycythemia... What foods are you avoiding?

Hey debbie from New Zealand....are you newly diagnosed with PV?
Would love to get to know you better..so we can support each other. It is hard to find others with the same disease.

I was just diagnosed ( at age 50) last Nov so I am still learning too.
Randy has been a big help and I cannot tell you how much that has meant to me
Joanne

Last edited by Administrator; 08-20-2012 at 04:33 PM.

 
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Old 08-20-2012, 03:04 PM   #9
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Smile Re: Polycythemia... What foods are you avoiding?

Hi Joanne, Yes I am also a newbie of this Polycytheamia Vera (PV) Was Diagnosed I think Last September 2011, at first they weren't sure what was wrong they did all the test, Bone Marrow Biopsy, Jak 2 test was un-mutated, but the blood HB169 and HCT.44 were up, But low in erythropoietin.They say mine is Idiopathic erythrocytosis, tried to fined more about on the Internet, not a lot of info.

its always good to talk to other that have a the same or their about ahe. well good bless and take care.

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