I am so sorry. As if it isn't enough that you have to go through lupus and blood clots and now this. I really hope every turns out for the better and be sure to keep us updated with the results. All my thoughts and prayers go out to you right now. Get better soon and take care.
hi im back they only took out half of my thyroid came back fine however i think im having a major flare up with my lupus the pain moves around is this normal. do your finger tingle also have thigh pain and burning im new with this.what parts of the body does lupus hurt.
I'm so glad to here the results came back fine, you must be so relieved! I'm sorry to hear that you're in a flare though. Pain all over is definitely normal with lupus, especially during a flare. I get the tingling in my fingers all of the time. I think a lot of that is due to the antiphospholipid antibody syndrome, but I also have cns lupus so it's hard for me to differentiate when it's caused from the APS or when it's neuropathy.I get thigh pain and burning and well, but that is mostly due to muscle weakness and when I try to overexert myself, like by walking or standing for longer period of times than I should. I get pain in every area of my body from my lupus. Sometimes people ask me what hurts or what's bothering me and I have no idea how to respond because my whole body feels like it's falling apart. I guess every persons lupus is different. I've met some people with lupus who say that only their knees hurt and nothing else bothers them. I think every case is different depending on the person, there really isn't a "normal." I really hope you get to feeling better soon.
have you every have pain in your armpit maybe this is something else going on i going to change my doctor im going to see a internal medicine doctor hope you felling well seen like if one thing hurt the whole body hurt maybe it's all in me mind. thank you for getting back with me on this board.
No, I personally have never had the pain in my armpits before. I have heard of it in people with lupus though because when they flare the lymph nodes in their armpits swell and get really tender. I don't know everything about your thyroid condition either, but with hypothyroidism sometimes I've known people to complain of painful armpits and also inflammation of the thyroid gland can make your armpits swollen and painful. I hope you have good luck with changing doctors, finding a good doctor is about as easy as pulling teeth lol. I hope you get along with this one well and can get on the right track. And it's been no problem at all, it's nice to find somebody else who's going through something similar. It doesn't make me feel like you said that it's all in my head. If it wasn't for people like us on these boards some days I'd swear I was going nuts lol!
The feeling of not being able to move may be from the lupus too, as well as the back pain. You may be in a "flare" or exaccerbation, which can increase the pain and stiffness in the joints. The armpit pain may be from lymph node inflammation, which can also occur in lupus. I have had lupus for 30 years. You may be able to feel tender or enlarged nodes, like grapefruit seeds in your armpit when they are inflamed. Are you on meds to keep your lupus controlled?
Last edited by ladybud; 06-20-2012 at 03:12 AM.
I frequently have problems with feeling poorly due to side effects from a lot of my medications, including blood thinners. A lot of times it's really hard to be able to tell the difference between what symptoms are being caused by the lupus and what symptoms are just new side effects from all the medication. I always try to get a list of the side effects of all the new medications I start so that way when new symptoms come up I can check the list and see if my lupus is continuing to flare or my medicine is just working lol. I wish all of this didn't have to be so complicated for us. Also as far as feeling like you can't move, I couldn't relate any more. I haven't been able to get out of bed or bathe myself in four days. I feel like this all the time. I have a few good days sometimes but most days I can hardly get around and the pain is just unbearable. I've had to increase my painkillers up to four times a day now and I have to take valium just to be able to fall asleep. You may want to ask your doctor about switching up your pain medicines until you can find the right combination for you. Sometimes it's hard to convey to a doctor how much pain you're in, I don't think many of them understand. I'm sorry the visit with the new doctor didn't go as well as you had hoped. Hopefully you will be able to get on the same page and get feeling better soon. Just don't give up and hang in there.
hi i'm back do your jaw ever hurt i hurt daily in differents parts of my body. my pelvis area hurt daily have you ever had that to happen to you. legs, thighs, arms, back, hands, toes, whole body hurts include nerves in teeth please let me know if you have these problems with your lupus. thanks