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Old 09-02-2012, 12:33 AM   #1
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AuntNanc HB UserAuntNanc HB UserAuntNanc HB UserAuntNanc HB User
Anyone With Anti-Thrombin III Deficiency??

Hi folks. I am diagnosed with a clotting disorder called Anti-thrombin III Deficiency. In fact, it seems to have begun with my mother and her sibs, all of my sibs, several cousins and a niece. I am 55 and have been on Warfarin (Coumadin) since my first DVT at 16. I would love to speak to anyone else out there with the same disorder, to compare notes. Thanks.

 
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Old 09-07-2012, 05:59 AM   #2
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Re: Anyone With Anti-Thrombin III Deficiency??

Hi, did you have any joy with anyone else who has this type, i have the anti-thrombin II ... havent heard of the III ? good luck.

 
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Old 09-08-2012, 01:12 AM   #3
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Re: Anyone With Anti-Thrombin III Deficiency??

Hi again, loolee. I just responded to your response on another thread. I think the AT III deficiency is more rare and, if I understand correctly, is usually an inherited disorder. And it's the only one that does not respond to Heparin therapy because Heparin requires the presence of AT III in significant quantities in the blood in order to work. So going off my Warfarin for procedures and surgeries is quite the challenge. Anyway, good to meet you. Hope you find the information you're looking for regarding your own disorder. Thank goodness for the internet! You can find anything there. And you know what they say. "If it's on the internet, it has to be true!" ;-)

 
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Old 09-08-2012, 04:29 AM   #4
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Re: Anyone With Anti-Thrombin III Deficiency??

hello again, thanks again for taking the time to reply. I guess my aim is to find out how others fair in the long term and yes off course, the children!!!

 
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