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Old 09-19-2012, 04:01 PM   #1
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itp

hi am 19 iv had itp for 2 years last count was at 22 but not had trettment yet but always want 2 sleep any going thour some thing?

Last edited by ggs1; 09-19-2012 at 04:04 PM.

 
Old 09-20-2012, 09:59 AM   #2
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Re: itp

Many people with ITP report fatigue when their platelet counts become very low.
My own count improved dramatically with just a very low dose of prednisone. Has your doctor recommended any course of treatment?
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Old 09-20-2012, 02:58 PM   #3
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Re: itp

no they keep saying wait and see

 
Old 09-20-2012, 03:22 PM   #4
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Re: itp

I was the same as Midwest1, steroids made a huge improvement although I was put on 80mg a day initially. Mauve you need to go back to doctor and explain how you are feeling.
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Old 09-20-2012, 06:01 PM   #5
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Re: itp

Most doctors here in the US believe counts less than 30 should be treated. I don't know what they think there, but you might need to be more assertive if you want to treat now.

ITP treatments are super-expensive except for prednisone, which is dirt cheap. I never had to take more than 40 mgs a day, and that was only at the beginning of treatment when my count was just 4. Once it got up to around 65, I was able to maintain that with just 10 mgs of pred a day. It would be worth a try for you, since you have fatigue affecting your well-being.

High doses of prednisone create their own major problems... Side effects galore, some quite serious. So you'll have to decide if those would be worth it to alleviate the fatigue. Low doses like I took have very few side effects, though.

Good luck to you.
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Old 09-21-2012, 02:29 AM   #6
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Re: itp

thank you for the feedback iv ask the doc about treatment but they dont do anything so fruststranting (sorry about spelling)

 
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