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Old 11-10-2003, 01:19 PM   #1
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Question any 1 tell me if u can get osteomyelitis

i was wondering if anyone could tell me if you can get osteomyelitis in your skull and what are the symptoms and causes?thx

 
Old 11-12-2003, 01:04 PM   #2
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Quote:
Originally Posted by prendi
i was wondering if anyone could tell me if you can get osteomyelitis in your skull and what are the symptoms and causes?thx

Yes. Osteomyelitis can be anywhere in the body where bone exists. It is usually something that enters the bloodstream or at a trauma site, wound. It is an infection in the bone. Bones most commonly effected are the jawbone, legbones and hip area. This is because of the vascular properties of these areas. The symptoms are usually raised white blood count, high SED rate, LOT of deep pain, sometimes redness, swelling and fever. Weight loss is also a symptom, especially when in the jawbone. Which is where I have had it. May I ask why you are asking - so I may be of more assistance?

Hope this helps - oh also do a search on OSTEOMYELITIS SKULL and tuberculosis comes up as done cancer. It can also travel to other bone in the body if it is in the bloodstream. Mine is localized in the upper maxilla and had begun to wall itself off leaving no red blood cells and/or blood vessels in this section which eventually would lead to more troubles. I am still undergoing therapies for this hellacious disease!

Hope to hear back.

 
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Old 11-16-2003, 01:01 PM   #3
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osteomyelitis

Quote:
Originally Posted by tryingtofeelgood
Yes. Osteomyelitis can be anywhere in the body where bone exists. It is usually something that enters the bloodstream or at a trauma site, wound. It is an infection in the bone. Bones most commonly effected are the jawbone, legbones and hip area. This is because of the vascular properties of these areas. The symptoms are usually raised white blood count, high SED rate, LOT of deep pain, sometimes redness, swelling and fever. Weight loss is also a symptom, especially when in the jawbone. Which is where I have had it. May I ask why you are asking - so I may be of more assistance?

Hope this helps - oh also do a search on OSTEOMYELITIS SKULL and tuberculosis comes up as done cancer. It can also travel to other bone in the body if it is in the bloodstream. Mine is localized in the upper maxilla and had begun to wall itself off leaving no red blood cells and/or blood vessels in this section which eventually would lead to more troubles. I am still undergoing therapies for this hellacious disease!

Hope to hear back.
i asked as i have been trying to find out what is wrong with me.i started 7 years ago when i had 2 teeth out and around 3 months later i got a burning ,pressure feeling in my head,on the right side ,the same side as i had my teeth out.at first i thought i had a brain tuomour,the doc sent me for a scan,then to see a neuro which came back clear.i hten went to see an ent.to see if there was anything wrong with my ears,as it felt like it was all connected ,as when my head hurted ,my ear felt strange,my teeth and gums swelled up,i felt dizzy,and not quite there.i was put on amytryptiline for muscle spasms in my head .but after reading some of the posts on here i thought it sounded like om.

 
Old 11-16-2003, 07:40 PM   #4
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Quote:
Originally Posted by prendi
i asked as i have been trying to find out what is wrong with me.i started 7 years ago when i had 2 teeth out and around 3 months later i got a burning ,pressure feeling in my head,on the right side ,the same side as i had my teeth out.at first i thought i had a brain tuomour,the doc sent me for a scan,then to see a neuro which came back clear.i hten went to see an ent.to see if there was anything wrong with my ears,as it felt like it was all connected ,as when my head hurted ,my ear felt strange,my teeth and gums swelled up,i felt dizzy,and not quite there.i was put on amytryptiline for muscle spasms in my head .but after reading some of the posts on here i thought it sounded like om.
I am sorry to hear of this. 7 years! Dear lord - let's get you better Prendi! If you are feeling this pain, can you get to a University Hospital that has a dental unit? Ask for a SED rate, a White Blood count, a Panarex image, and a 3 phase bone scan. These, along with your symptom list will give a diagnosis. It's most likely not in your skull, but in your jawbone which has some hellacious referral pain.

Do you have constant pain? Do you feel it above where the teeth were extracted? Please give me any and all info you can and where you are located so I may be of assistance.

I wish you some peace!

 
Old 03-24-2005, 12:23 PM   #5
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Re: any 1 tell me if u can get osteomyelitis

I have Osteomyelitis of the jaw. I almost died back in January after a dentist performed several procedures and then insisted the pain was all in my head, that I needed time to heal. After I felt as if someone stabbed me in my jaw and looked as if I had a stroke, I ended up in the hospital my face 6 times the normal size and I passed out. I actually didn't remember a thing for several days when I came to, 5 doctors were treating me, my family was called in (because they didn't think I would make it). It is now the end of March I have been in an out of the hospital 4 times and I am going to see an orla surgeon tomorrow. I have had 6 oral surgeons refuse to treat me because the infection was so bad and they didn't know enough about the infection. It is scary, my face swells all the time, I have no feeling in my chin and pains come and go through out the day. I can not eat at all. The dentist that said I needed to allow time to heal happened to call me while in the hospital to discuss my bill (he called my cell phone, or should I say his secretary) anyway I paid $13k to him for nothing and now owe over 170k in hospital bills and doctor bills, x-rays, iv's, ICU. I had to get an attorney because the dentist refused to even refund me the money and he didn't do half of what he was paid to do. Anyway my health is really what the issue is all about, and only because of God am I alive today. I have a long road to travel but I am certain I will get there.

Thanks for listening,
Cheryl

 
Old 03-29-2005, 12:51 PM   #6
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Re: any 1 tell me if u can get osteomyelitis

Prendi:

Has your doctor mentioned trigeminal neuralgia as a possibility? You should see a neurologist as well.

 
Old 04-14-2005, 06:01 PM   #7
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Re: any 1 tell me if u can get osteomyelitis

Quote:
Originally Posted by cparker
I have Osteomyelitis of the jaw. I almost died back in January after a dentist performed several procedures and then insisted the pain was all in my head, that I needed time to heal. After I felt as if someone stabbed me in my jaw and looked as if I had a stroke, I ended up in the hospital my face 6 times the normal size and I passed out. I actually didn't remember a thing for several days when I came to, 5 doctors were treating me, my family was called in (because they didn't think I would make it). It is now the end of March I have been in an out of the hospital 4 times and I am going to see an orla surgeon tomorrow. I have had 6 oral surgeons refuse to treat me because the infection was so bad and they didn't know enough about the infection. It is scary, my face swells all the time, I have no feeling in my chin and pains come and go through out the day. I can not eat at all. The dentist that said I needed to allow time to heal happened to call me while in the hospital to discuss my bill (he called my cell phone, or should I say his secretary) anyway I paid $13k to him for nothing and now owe over 170k in hospital bills and doctor bills, x-rays, iv's, ICU. I had to get an attorney because the dentist refused to even refund me the money and he didn't do half of what he was paid to do. Anyway my health is really what the issue is all about, and only because of God am I alive today. I have a long road to travel but I am certain I will get there.

Thanks for listening,
Cheryl

 
Old 04-14-2005, 06:32 PM   #8
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Re: any 1 tell me if u can get osteomyelitis

Cheryl,
Having six oral surgeons not be willing to treat your infection, is unfortunately, not uncommon. I don't know how they get away with it!!

I was guided here by another frequent member here who feels I may have something to offer you. There are others who have gone down this road you are traveling. I am fortunate to have only had chronic OM for less than two years.

However, I have been very agressive for the very reason, you are going through, and I am trying to short cut the big bills and length of time feeling lousy. I got OM after wisdom tooth extraction. I had three surgeries with the same dance routine of 6-8weeks of IV abx, oral abx and HBO. I figured the fourth time needed to be something different, and not my local doctors either!

I went to Dr. Ron Caloss, at University of Texas, Southwestern. He just (8days ago) did an agressive, and highly technical surgery that he hopes will be the last one for me. I had the jaw opened up from the outside, and the gum/tissue lifted off the jaw bone. He found extensive scherotic bone (dead and hard/non-vascular) and a cavatation with mushy bone lingual side. After cutting this all out, he grafted material from my hip. I say "material" because what was needed was to split the iliac (making a green stick fracture) and scrape out inner cortical tissue with bone marrow. (the good bone growing cells). This was packed into the jaw vacancy.

While doing this surgery, there was a specialist who took my blood...spun out an amount, and seperated the plateletes. The "enriched plateletes" were then infused into the graft area, and I was sewn up. About four inch incision under my jaw (on neck) and same on hip.

This is a pretty revolutionary operation. Not sure it's been done much. It made sense when the surgeon said that the outer approach would keep the graft from being contaminated. All the inside mouth ops have been exposed to mouth flora. I too, can't eat for 4weeks, but it's temporary. I was told about all the numbness that I could have after surgery. They went into the "stroke" muscle damage, that could happen. Right now, I don't think I have ANY bad side effects. The swelling is making some parts of my mouth not work right, but I don't droop on one side.

Dr.Caloss is on the faculty at UTS and is highly thought of at other university's. I had previously been told I would have this condition my whole life. That I would live on abx my whole life. THAT IS UNACCEPTABLE, Cheryl! Going for tertiary care is the only way to get rid of this. Yes, there may not be a comfortable "protocol" for us and our doctors, but its' better than having what you've been through.

1) What type of procedures did the surgeon do that affected your facial nerves?
2) Did anyone find out what infection you have/culture?
3) Are you on IV antibiotics?

We are beginning to have trouble paying the medical bills. In the middle of this, my hubby got advanced Prostae ca. Screw them, get what you have to get done, and get them to work out payments that you can still handle.

I got IVIG (immunoglobulin) infusion last Tuesday. This one infusion (ID doc wants me to do one/month) one bottle, was $16000.00 dollars. He WANTED me to have it before surgery, because by now, my immune system is shot!! So we went to the hospital and got it, and the lousy ins co. has been three months approving it...and haven't completely done that yet!

They can't get it back now, though, and I think it's working! Today has been a good day! Please let me know how you are doing, and what your status is. I'm usually on the "Jaw bone infection-Osteomyelitis" forum.
Take care,
Grandma Sarah

 
Old 08-25-2005, 04:47 PM   #9
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Re: any 1 tell me if u can get osteomyelitis

Cheyrl,

Have not read what happened to you dear! How are you? Please let me know if you can...OK?

Grandma Sarah

 
Old 08-26-2005, 12:55 AM   #10
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Re: any 1 tell me if u can get osteomyelitis

Hi, wow, I dont feel like such an alien anymore.

I was rushed into emergency surgery on May 4th of this year because of Osteomyelitis in my jaw. They removed over 75% of my upper and lower jawbone and all 28 of my healthy teeth. I have since had 5 surgeries to reconstruct my lower jawbone with titanium and bone graphings and will begin the reconstruction of the upper jaw in the next month. I spent 12 weeks with a pikk line IV pouring antibiotics into my blood.

The good news is that my last blood work up and all xray scans show no sign of infection.
I have read of so many people that were suffering from the same type of pain and symptoms as me but no one else that had actually gotten a diagnosis until reading this thread. My maxillofacialist (sp?) said that this type of infection is very rare.

So to those of you who haven't been diagnosed may God watch over you until you can get the help you need, and to those who are being treated I pray a speedy and full recovery for you.

Casey
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Old 05-30-2006, 10:10 PM   #11
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Re: any 1 tell me if u can get osteomyelitis

Cheryl,

GOD bless you. I have been just diagnosed with Osteomeylitis of the Jaw as well. My regular dentist that pulled the infected tooth a month ago also told me that at 40, we heal slower. I went back again and he just gave me an antibiotic. I finally coud take no more and ended up in the ER where I was finally taken seriously. So far, I am post surgery 7 days, and the pain is the same with the swelling same. Just on oral antibiotics at this point. I go back friday, and I will pitch a huge fit if not put on something else. I/we could lose our jaw because of this.
DO NOT BE SILENT...........and my prayers are with you!!

 
Old 08-20-2007, 07:48 PM   #12
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Re: any 1 tell me if u can get osteomyelitis

Hi everyone,

I know the last post on this board was a long time ago...but I"m hoping someone might still be able to help me. Grandma Sarah, if you're still out there...I'm interested in hearing more about Dr. Caloss. I am having problems after wisdom teeth were extracted...the area that is troubling me is the lower right (was a full bone impaction). The surgery was done in December 2004. Anyway, I recently had an i-CAT (3D cat scan) that showed the bone hasn't healed properly...for a long time, I had swollen lymph nodes on the same side, right under the jaw...but no oral surgeon would help me out. Now, I have this strange, painful "bump" right next to the socket. A new oral surgeon wants to open up the socket and do a biopsy, but he claims this "bump" is unrelated. I am not so sure about that...Anyway, I want to make sure this ends up in the right hands. This new oral surgeon said that I may have a "chronic infectious process", like a low-grade infection. I am scared, because I don't want to end up with nerve damage or worse off in any way. If there is anyone out there who can recommend doctors, tell me more about their treatment, etc, I would be VERY very grateful!

Thanks,

Meg

 
Old 12-10-2007, 06:18 PM   #13
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Re: any 1 tell me if u can get osteomyelitis

Quote:
Originally Posted by MaggieMay78 View Post
Hi everyone,

I know the last post on this board was a long time ago...but I"m hoping someone might still be able to help me. Grandma Sarah, if you're still out there...I'm interested in hearing more about Dr. Caloss. I am having problems after wisdom teeth were extracted...the area that is troubling me is the lower right (was a full bone impaction). The surgery was done in December 2004. Anyway, I recently had an i-CAT (3D cat scan) that showed the bone hasn't healed properly...for a long time, I had swollen lymph nodes on the same side, right under the jaw...but no oral surgeon would help me out. Now, I have this strange, painful "bump" right next to the socket. A new oral surgeon wants to open up the socket and do a biopsy, but he claims this "bump" is unrelated. I am not so sure about that...Anyway, I want to make sure this ends up in the right hands. This new oral surgeon said that I may have a "chronic infectious process", like a low-grade infection. I am scared, because I don't want to end up with nerve damage or worse off in any way. If there is anyone out there who can recommend doctors, tell me more about their treatment, etc, I would be VERY very grateful!

Thanks,

Meg

Did you get this fixed yet?

I had the exact same kind of surgery, and the problem area was the lower right jaw. It is actually good that you have a scan showing that there is a problem. All I had was incredible pain the improved greatly with antibiotics. It took two years and two different countries for the problem to get resolved. Since I live in Bolivia, I ended up getting surgery done on my jaw here. The face/neck surgeon (who I believe has more training than an oral surgeon) did a straight cut into the problem area of my jaw and then straight up. They had me stay in the hospital for three days to monitor my healing, and they had me on a feeding tube for a day and a half so the no bacteria could enter the problem area. I am very thankful that they did the surgery, because my jaw is absolutely fine now, and it has been two years since that surgery. No nerve damage or anything.

If you haven't had surgery yet, maybe you should look into a face/neck surgeon instead of a regular oral surgeon.

Hopefully you already have the problem taken care of!

Beth

 
Old 01-07-2008, 06:11 PM   #14
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Re: any 1 tell me if u can get osteomyelitis

I don't believe it took me so long to find this page...I am probably going to post in every topic forum on here b/c I am not sure which ones ppl are still responding to so please excuse me if you see mulitple posts from me. I just can't believe I may have finally found ppl who know what I have been going through. I am 30 yrs old and have been plagued w/ serious dental problems for the past 9 yrs. About 7 yrs ago I had an impacted wisdom tooth removed on my lower left jaw and around the same time I had a tooth in that same area taken out and an implant put in. It was a long time ago and I had so much dental trauma at once*there was more too I won't get into* that I have trouble remembering the order of everything now. But anyway, I thought I had healed from it ok and went on w/ my life. Then in July of '04 I started to have pain in that area again. I immediately had it looked at and was told there was nothing wrong. oddly after a few days the pain disappeared and did not return until May of '05 and then all of the sudden it became excruciating and I have literally had it every min of my life since then. When it first started I was in and out of the ER constantly b/c the pain was so severe but they kept saying nothing was wrong. I started going to different dentists, all of whom said the same thing, my x-rays were normal, nothing was wrong. They gave me a normal dental cleaning and said I should be fine and then they started sending me to all different kinds of drs when I came back complaining of pain. I felt as though the pain was coming from my gums so they sent me to a periodontist who said they wanted to do gum surgery where they would open up my gums and see if anything was wrong. I didn't want to do it but 2 dental clinics told me there was nothing else they could do so I was all set to do it when the dr. who was supposed to perform it had 2nd thoughts and said he thought it might do me more harm then good and he was not convinced the problem was my gums. I was then sent for a cat scan and was told there may be a problem w. my back molar on that side. I didn't feel pain in that tooth but there was so much pain on that side that at that point I had no idea where it was coming from anymore. The first endodontist I went to didn't want to perform root canal b.c he wasn't convinced it was that tooth but he didn't offer any alternatives. I ended up going for a root canal and had a horrific experience where they left my mouth open for hrs and I couldn't close it afterwards for about 15 min and was in more pain. This was at a clinic so I went back to my old dentist and he decided to finish the root canal. I still had pain after so finally he said to get in removed. When I did I got a dry socket so was in even more pain and when it healed I still had the same pain I started w/. In the meantime I had also been to a TMJ specialist b/c everyone kept telling me that was probobly what the problem was. he put me on flexerol and I was stuck over and over w. needles/novacaine/etc. to see if it would stop the pain.and when that didn't work the TMJ dr. told me I do have TMJ but he didn't feel that was what is causing the pain. Then I was sent to a neurologist, actually I believe I saw 3 neuros. They did MRI and that came back normal. Someone suggested trigeminal neuraligia and I was sure that must be it so I went to a TN specialist who treated me for 6mths w/ anti-seizure drugs. No change in the pain. So he told me I don't have neuralgia. I was also given a mouth guard and was told it might be b/c I grind my teeth. That didn't help either. Finally I found info about NICO(necrosis induced cavitational osteo something) when I was doing my own research and thought I had finally found the answer even though it wasn't encouraging in terms of treatment. I found a holisitic based dentist in my area who deals w/ and is familiar w/ NICO. One of the main reasons I was sure I had it was the time frame, from what I have read NICO doesn't usually begin until about 5 yrs after the dental work is done. Anyway, she did not diagnose me right away but she basically told me that she could see my bone was deteriorating in that area just from looking at me and after going over my history and health, she also determined that I have a weakened immune system and low grade infection and that was probably how I had gotten the jaw infection in the first place. So she put me on all these herbal supplements and said we had to build up my immunity...I tried that for mths and in the meantime the pain continued. Then she said after doing tests my bite was still off and I bought bite tabs which also did not help the pain. At that point she said it could be my implant in that area was either causing it or irritating it and I should get it removed(the pain at that time was mostly under my tooth w/ the implant). So I went and had it removed and that made no change in the pain either. Basically that was the last major thing I had done...oh I also went to numerous oral surgeons who all told me they thought it was neuralgia even after I explained it wasn't. I had another I-cat too and no one saw anything abnormal on it except this holistic dentist who said she saw "something" but was vague about what exactly, some type of lesion I believe. Then over the summer in the midst of all this, I accidentally got pregnant and decided to keep the baby so I am now about 6 mths pregnant. I went back to that dr asking what else I could do and she said nothing now b/c I am pregnant. Oh I also had a cavitat done by her and she said I do not have NICO. When I asked what I have she told me Osteomyelitis and when I asked her what that was, she literally told me it was not that big a deal and not as bad as NICO. She said my pregnancy should make me feel better and my pain would probably lessen now. Well the reason I finally found this list is b/c I am so desperate and in pain I am ready to commit suicide after my baby is born if I don't find an answer to this pain. It has only gotten worse and worse. The pain feels as though it is coming from my lower left jaw bone but it has spread to the whole left side of my face and I see more and more my cheek is getting more sunken in on that side. Aside from the pain, what has made me feel so hopeless is the way I have been treated my all these drs...as though I am crazy and either completely imagining it or just exaggerating how bad it is. I recently went to pain management and it was the last straw...at first the dr. said there was nothing he could do b.c I went in my first trimester and he said to come back in my 2nd. So i did and he told me once again there was nothing he could do b/c I am pregnant...and that he was sure I had neuralgia even though I explained again I had been treated for it and was told by a specialist I did not have it. He said he would call my gyno and dentist and discuss it w/ them and get back to me and I waited for his call and it never came so I called to follow up and he never called back. I then went to the hospital to get my x-rays back from them and saw him and asked him if he had ever tried to reach my drs. and asked why I had never heard from him and he said "b/c I'm trying to figure out what I can do while you are pregnant"...I could tell from the way he said it that he was completely lying and he said first he was going to call my drs, then he didn't b/c I was pregnant, it made no sense. Then he asked me if "the pain was really that bad?" in this condescending tone. Anyway, I realize I sound like a lunatic right now going on and on like this...it's just that until finding this board today I had pretty much given up hope completely. My life is destroyed from this, I am on disability/medicaid, I can't work, I am severely depressed and have extreme insomnia b/c of the pain to the point where they have kept me on anti-depressants and sleeping pills even though I'm pregnant b/c they think I might end up harming myself otherwise. I have spent thousands of dollars, literally about $20,000 probably so far in drs. and treatments my insurance doesn't cover and have tried so many alternative treatments too including 3 accupuncturists, holisitic drs, intuitive healers, cranial sacral therapy, workshops, etc. You name it, I have tried it and borrowed money for it. If it wasn't for being pregnant I'd stop eating too. Drs act like i am crazy, my friends and family are tired of hearing about my mysterious jaw pain and my poor husband just doesn't even know what to do for me. Oh and in the past mth I started having pain on my upper right side as well, had 2 more root canals on a tooth that was bothering me and was told to remove it and the surgeon accidentally took out the tooth next to it so I ended up having to have them both removed. I am terrified that the same thing is happening to my right side b/c the pain has continued and it's been a cpl of weeks since I had the teeth removed(this is all while being pregnant)...the surgeon says it's just b/c I had so much trauma to the area. But I am still scared...it doesn't feel the same as my left side, the pain is different but still, now I can't chew on that side so have to chew on my left which makes the pain worse. Anyway, I am so sorry if anyone actually read all this God Bless you ...I just needed to get it out I think. I am just in shock reading on here how serious this osteomyelitis is and I don't understand why my dr. made it sound as though it was no big deal and would go away on it's own. I know my options are very limited now b/c of the pregnancy but can anyone give me any advice or info. about what they think I should do at this point...even if I can't do anything really till after the baby is born I need to at least explore my options now so I have a plan for when she is here. I want to be alive and get better so I can be a good mom but I know I will not be able to go on like this for much longer if I don't start getting help and find someone who actually understands what is happening to me and will work w/ me. I will do anything at this point. I live in NY so if anyone knows of any drs. here they think can help please tell me or even if it's somewhere else I will travel anywhere. Please help, and thank you so much for anyone who actually read this, I am so sorry to go on I am just desperate. Thanks.
Gigi

 
Old 01-12-2008, 12:12 AM   #15
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Re: any 1 tell me if u can get osteomyelitis

I am sorry you for what you have gone thru and how you have been treated. It is a horrible, horrible illness to have. Everyone passes it off as Neuralgia. I read your post, but now I don't remember what you said about your scans. What kind have you had so far?

My heart breaks for you. Are you alone or is the babies father in the picture? I hope you have help.

As far as going to the doctor, I recommend that you always, always bring a trusted friend or family member to every single appointment. This person can be a witness to how you are treated and may help you get taken more seriously.

I have been thru a very similar ordeal which I am still dealing with. I don't know where I go from here.

If you have any specific questions, I might be able to answer as a fellow patient, let me know.


I hope to hear from you.

Last edited by susanl95; 03-03-2008 at 09:44 AM. Reason: Edited due to identifying information..

 
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