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Old 08-27-2003, 01:03 PM   #1
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Hi, my name is Debi and I had surgery in 2001 to remove a Osteoblastoma in the L-5 area of my spine. It caused a bit of damage and I had a fusion too as the result. I felt great once I recovered! 2 1/2 years later all the symptoms came back, sure enough so did the Osteoblastoma, a "reoccurrance". I had it removed in June this year, this time they took out part of my vertebrae @ the same spot as last time (last time they just scrapped it out). My nurosurgeons said this was rare, and the reoccurrance rarer, I am just really curious to find someone else with this, did it come back for you? What were your symptoms and how are you now?...Thanx!

 
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Old 10-02-2003, 02:43 PM   #2
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Dear Deby,

My name is Ana and I am from Bosnia. I had osteoblastoma L2 on my spine and i did the surgery in Vienna in 2000. I think they took away the damage part of my spine and they put some metal disks instead. Now I feel just fine, no seriose problems. I also heard its very rare tumor but it happens. Well i hope you will write back and ask for anything you would like to know about my expirience.
I hope you feel ok too.
Best regards, Ana
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Old 10-04-2003, 07:25 PM   #3
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Hi Ana! I am so very surprised to finally hear from someone, I sure wished we lived closer, I would love to talk to you over a cup of coffee! Yes, I too am doing well, I just have been so curious if any one else was out there. I am 44, married and have 3 beautiful teens, so I have always had lots of support. I know they tell me this is a slow growing tumor, so they believe I had the first one a long time. I have always been very physically active, so in my late 20's, when it started, I just thought I was having lots of aches and pains from gymnastics. I don't know what you felt, but my back would just "go out" on me a few times a year, then it would just ache, especially at night, till I finally went to a doctor and said I THINK something is really wrong. I too have had titanium nuts and bolts put in, after they scrapped the tumor out, they had to repair the damage. I felt so good when it was all over with, I recovered great! that was in 2001. Last Jan. everything came back, I was so in disbelief! I refused to believe anything could comeback, but, this time I had numbness and my legs would give out, along with that very familiar pain, aching all nite, so, I had to have it removed AGAIN, it was a 'reoccurrance". This time I feel great again, but, I have always been a fighter, and I think we can take charge of ourselves too. I found a very old post on a board that hasn't been used since 1999, from a guy who also had what we had, and he had a reoccurance too! I tried to email him, but, I knew it was probably to old, it just came back. I know this is probably very long winded, I am just so glad to hear from someone else, and to hear that you are ok too. I would love to know how you felt too, how long did it take for them to figure out what was bothering you? I also wanted to tell you I am from St. Louis, Missouri, and we have a huge Bosnian community here. Take Care.....Debi

 
Old 10-11-2003, 09:47 PM   #4
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Hi,
My daughter 12 years old had a osteoblastoma removed from her 9 vertbra Aug 1 she had back pain for a couple years and started developing scoliosis so I took her in to get treated for scolosis 2 doctors later we found the tumor.
She is doing great no pain they scraped it out. I am praying for no reacurrance!!! She started dancing again this week It is nice to hear from other people that have this wierd thing she has to wear a brace 24/7 untill she is done growing to keep her spine straight Hope to hear from anybody with this diease

 
Old 10-12-2003, 07:45 AM   #5
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Hi Dorene, I am happy to hear that your daughter is up and dancing! I had heard that this was primarily a juvenile disorder and went hand and hand with Scolosis. I think I was told it was due to the tumor is slow growing and "dissolves" the bone, resulting in the condition. I am glad they caught it in time that no fusion had to take place, and her brace will straighten her out just fine. As a Mom myself, hats off to you, it would have been way harder to watch my child go through this than for me to have it! I have to add, I am 44 and I am up and doing just great, so at 12, I am sure your daughter will sail right through her recovery, kids are so great at bouncing back. Take Care...Debi

 
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