Checking in on all my FD family! - Bone Disorders Message Board

hrtofluv · 04-15-2005, 08:49 AM

Just curious how everyone is doing lately.
Everyone post your updates here.
Have a blessed day!!!!
hrtofluv

hrtofluv · 05-26-2005, 08:05 AM

Would love to get some updates from everyone dealing with this disease.

froggy123 · 05-27-2005, 10:31 AM

Hi,
I really don't have any new news about my FD. I get a check up in the fall. My OBGYN thinks that me being on the depo shot is keeping the FD from growing as much as it probably would if I weren't on it, so I guess that's a good thing? Ive recently been placed on an antiinflammatory because I have enthesitis and it seems to be helping that dull pain in my head some, which I think is a little odd, since everyone says its the FD. Well, that's about it.

Hows everything with you?

hrtofluv · 05-27-2005, 11:02 AM

Hey - I took the Depo Shot for a year (4 shots) - didn't have a period that whole year either. Wonder if that helped then - to think back I didn't have any problems pain-wise that I can remember.
I have an appt with a new ortho. onc. in Atlanta in June. Having lots of hip and elbow pain - been having to take quite a few hydrocodone which is sad for me. My prescription from a year ago has lasted this long, but now it's expired, so I'll have to get a renewal soon (which I hope I won't need for another year like this time).
Anyone else out there??

annemv · 05-30-2005, 08:23 AM

I seem to be doing the same in regards to FD. Just waiting around to see if my arm breaks

. We just moved (which is why I havent been on the boards) and that was hard not using my arm. I havent had much pain or any problems though.
I am tending to my pituitary tumor at this time. I have a follow up on Wed. after all the new bloodwork. Hopefully I will know more then.
How are you hrtofluv ?
Anne