PsydoReuhmatoid Spondyloepiphyseal Dysplasia - Bone Disorders Message Board

marwads · 08-06-2005, 09:31 PM

My 16 year old daughter has PsydoReuhmatoid Spondyloepiphyseal Dysplasia. She is developing more problems, in pain each day and we can't seem to find a doctor that knows how to help her. I am told this is a rare bone disease and am looking for some direction here. Is there anyone out there who has this same disease? Is there anyone out there who has any information that may help us. Any help is appreciated!!!!

Shababy · 09-10-2005, 09:17 AM

I think you spelled the first word wrong because when I put it all in my browser, it doesn't come up but I when I put the last two words in, it comes up. Do you have a definite spelling of the first word? My daughter has not
been diagnosed with what disease is causing all her dyslplasia. Displasia is deformities. I am familiar with Spondylo part that my daughter has. What are your daughter's deformities and symptoms and correct spelling of the first word. I can do some research and maybe we can help ea. other. I am not in the medical field at all.

Char

Shababy · 09-10-2005, 09:19 AM

I think you spelled the first word wrong because when I put it all in my browser, it doesn't come up but I when I put the last two words in, it comes up. Do you have a definite spelling of the first word? My daughter has not
been diagnosed with what disease is causing all her dyslplasia. Displasia is deformities. I am familiar with Spondylo part that my daughter has. What are your daughter's deformities and symptoms and correct spelling of the first word. I can do some research and maybe we can help ea. other. I am not in the medical field at all.

Shababy