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Old 04-27-2009, 07:30 PM   #1
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Marbrit HB User
Bone Lesion

I just want to thank everyone for their stories on this message board, particularly Sput, Hrtofluv and Gale! I do hope all is well with you three. It is nice to read your stories from a Christian perspective. They have discovered a bone lesion in my daughter's leg and we will be seeing a childs orthopedic Dr. this Thursday, April 30, 2009. She is 13 yrs. I've been told, it is probably benign but being a parent, you always have it in the back of your mind. Pray for us, and what will be, will be! Hopefully it is benign. Regardless, the Lord will watch over us and guide us through!

 
Old 04-29-2009, 03:27 PM   #2
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Re: Bone Lesion

Marbrit I just read your posting about your daughter. I have been experiencing pain in my rt. knee and seen an orthopedic specialist this morning. He had an MRI and Xrays done on my knee last week thinking I had a torn ligament. Symptoms were on and off pain and knee giving out while walking or climbing steps. Sometimes swelling. Well at my appt. today he informed me that the MRI showed several leisions on my tibia and femur bones. So much for thinking nothing of it. He is refering me to an musculoskeletal oncologist...... and now I'm scared, because that is a bone cancer doctor. I have seen several postings here and none of them have been sent to that type of doctor. Has anyone heard of this??? Any advice appreciated.

 
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Old 04-29-2009, 07:33 PM   #3
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Re: Bone Lesion

Hello Baytovyn! I"m glad you've commented. First off, do know I will be praying for you and will watch for your results. My daughters 2 lesions are in her tibia and femur. I've been told because she is a child, chances are they are benign and quite common. There is always a chance though that they are not. I would suggest for now that you read the names I wrote above in my postings and look up their comments. I believe they go back a few years ago, if I recall around 1995. I found them encouraging and one had to have surgery. It was interesting to watch and see how it all went. It is good that you had the MRI and most of all that he is sending you to an oncologist. Your Dr. isn't taking any chances and at least if it is something they can address it immediately. Do keep me posted as to what the specialist says, so I know how to pray for you. I as well will come on line tomorrow after my daughter's appt as I have a few questions for her Specialist given some of the research I've done on line. I'll let you know what he says. You're in my prayers that the Lord will give you peace of mind.

 
Old 04-30-2009, 06:07 PM   #4
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DazzledStar HB User
Re: Bone Lesion

Hi!!!

I am very sorry to hear about your bone lesions (both of you, well your daughter Marbirt ) but don't panic or anything just yet. I also had a lesion on my tibia. I had gone to the ER and to my regular doctor 4 times before anyone did anything about it. They kept telling me it was a pulled muscle, tendon pain, etc. Finally, I could not even walk and my doctor sent me for an MRI. They discovered a 5 cm bone tumor in my upper left tibia, directly below my knee. Of course, I was a bit upset and freaked out. I also have a 3 cm liver tumor that was undiagnosed at the time and I honestly thought that I had cancer that had metastasized into my leg. My doctor sent me to an orthopedic oncologist, which scared me even more because it was a cancer doctor. I also had a CT done sometime within this period. I am only 22 years old and have a 22 month old daughter, so I was very fearful.

I went for a nuclear bone scan and they did not see any more tumors, so I was relieved for that at least. During my first visit with my orthopedic oncologist, he told me it was likely a tumor (from the MRI, bone scan, and CT) and was worried that I also had a liver tumor. He scheduled a biopsy for after the holidays and said that if the biopsy came out benign he was going to do bone cutterage right then and removed the lesion. By the time my surgery date rolled around I was in excruciating pain. Even Percocet did not stop the pain I was having, I having severe nausea from it...it was worse than child birth. I could not walk without crutches because the oncologist said my bone was so weakened it could break with full weight on it (its not like I could really walk with the pain anyway). Anyhow, my biopsy came out benign and I woke up in the recovery room. They did the bone cutterage and discovered that it was an aneurysmal bone cyst. So thank goodness it was not cancer! I had my surgery in January and was on crutches for about 3 months. I am now back at work, going to the gym, and attempting to run (I haven't quite masted that yet...it still hurts a bit and I look rather awkward!). I also have a hefty scar, but it is starting to fade.

Now that my long story is over, I hope it eases your minds a bit! You two are in my thoughts and I hope that your situations turn out similar to mine. Don't worry about being sent to an oncologist, it does not necessarily mean that it is cancer, they are just very well adapted and practiced in handling bone tumors and cysts. Good luck, please let me know how your appointments go!

 
Old 04-30-2009, 08:49 PM   #5
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Marbrit HB User
Re: Bone Lesion

Well, I thank you for your awesome story! And I'm sure it will have encouaged Baytovyn. Just so you both know the Pediatrics Orthopedic Surgeon said not to worry about the lesions as he sees the kind she has all the time in kids her age. Part of it is their bones have not fully calcified. That was a relief, I must say. He is sending her for physio though for her knee as she has complained of pain in the past and says it still bothers her. So that's on the go as of tomorrow. I will keep an eye on it though, just to make sure and as she gets older, make sure she is aware of it. Baytovyn, let us know how you make out, so we can keep you in our hopes and I in my prayers for you. Thank goodness for this board so we can share with one another, along with encourage. Thank you DazzledStar, for jumping on board with us. And thank you Baytovyn for sharing with us what is happening with you. Will be watching. Let us know.

 
Old 04-30-2009, 10:11 PM   #6
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Re: Bone Lesion

Thankyou so much Norbrit and Dazzledstar for your words of incouragement. I have been scared to death the last 24 hours just wondering and worrying over this. Sounds like a good move on my ortho spec. to send me to this oncologist then. I just wish I had some answers now! Can you tell I'm nervous?lol After telling my family yesterday the report from the doctor, they all gave me an overwhelming feeling of love and support, I thank God for all of them. I know God doesn't give you anything you can't handle, so I know I will get through this. I am so glad that I found this site to be able to talk to others going through the same things as I am. I don't have alot of pain, my knee just kept giving out while walking or climbing stairs, I know bad timing right? Looking at the MRI with the doc, he showed me several dark areas on the femur and on the top of the tibia and called them lesions. He also mentioned that there was no blood supply getting to the marrow and thats what caused the lesions. Asked if cancer ran in my family, to which I replied only father with prostate cancer 2 yrs ago, and his reply was, I'm sending you to a bone oncologist. Needless to say it scared me. Thanks for letting me ramble, I really needed to communicate with someone who understands.


 
Old 04-30-2009, 10:21 PM   #7
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Re: Bone Lesion

Marbrit, I sooooo apologize for the wrong spelling of your name. Opps, it's late and I'm ditzy I guess. Thanks again and I'm glad your daughters doing good. PT is alot better than surgery,especially for a young girl. Lords watching over you and yours. thanks again...

 
Old 05-02-2009, 08:33 AM   #8
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DazzledStar HB User
Re: Bone Lesion

Hi Marbrit and Baytovyn

Marbrit, I am so glad to hear about your daughter! My doctor also told me lesions were common in kids and adolescents, so I am very glad to hear that everything is going good. Are they going to do anything about the lesions or just watch them for now? Hopefully this does not give her any future problems!

Baytovyn, please keep us updated! I know it's scary to go through all of this and not know whether or not the lesions are benign. But, it's good that you have so much support from your family on this! Just hang in there, your doctors have your best interests in mind and will definitely take care of you. Its good that you don't have a lot of pain, I hope for you that it does not get painful (I am just remembering my experience, ugh!). Have they been able to tell how big the lesions are?

 
Old 05-03-2009, 09:49 AM   #9
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Re: Bone Lesion

I want all of you to know that I am praying for you. First it is a good idea to run not walk the 1st time you have pain in your leg and you think something is wrong. I took so long that I ended up having a bone resection which is a fancy way of saying amputation. My bone lesion , a Giant Cell "tumor" was benign but is was so large {no pun intended} that there was so much damage done to m,y femur , there was no femur left. They had to take it and about 4" of the femur at the top to make sure they got it all. Because it COULD metasize{can't spell that word}. It also can Met to the lungs so I had to have chest xrays every 6 months for 10 yrs. After that I get one every year. I have a limb salvage prosthesis, one of the first to get it 15 yrs ago. It has not been a perfect fit for me as I think I am allergic to it, I tested positive for cobalt, chromium and nickel etc, but not Titanium. It has meant keeping a viable foot and the appearance of my own leg so I should {am} grateful but sometimes the pain gets to be too much.

I hope for the best for you all,
Bonnie

 
Old 05-03-2009, 01:21 PM   #10
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Re: Bone Lesion

Bonnie!

I am so sorry for everything you have gone through! You are very brave and strong! I was so fearful of my lesion (which turned out to be an aneurmysal bone cyst) being malignant and having to have that done. I hope things get better for you and that you find something that you are not allergic too soon. You are in my thoughts!

<3

Quote:
Originally Posted by lilsunshine46 View Post
I want all of you to know that I am praying for you. First it is a good idea to run not walk the 1st time you have pain in your leg and you think something is wrong. I took so long that I ended up having a bone resection which is a fancy way of saying amputation. My bone lesion , a Giant Cell "tumor" was benign but is was so large {no pun intended} that there was so much damage done to m,y femur , there was no femur left. They had to take it and about 4" of the femur at the top to make sure they got it all. Because it COULD metasize{can't spell that word}. It also can Met to the lungs so I had to have chest xrays every 6 months for 10 yrs. After that I get one every year. I have a limb salvage prosthesis, one of the first to get it 15 yrs ago. It has not been a perfect fit for me as I think I am allergic to it, I tested positive for cobalt, chromium and nickel etc, but not Titanium. It has meant keeping a viable foot and the appearance of my own leg so I should {am} grateful but sometimes the pain gets to be too much.

I hope for the best for you all,
Bonnie

 
Old 05-04-2009, 08:35 PM   #11
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Marbrit HB User
Re: Bone Lesion

No problem with the spelling! I just smiled Baytovyn. Know that DazzledStar is right on when it comes to the Drs. They will do their best, but most of all, remember that it is the Lord who is giving them the guidance and wisdom, so He will watch over you! Whatever happens, God's hand is on it, so keep praying as I will. Blessings!



Quote:
Originally Posted by baytovyn View Post
Marbrit, I sooooo apologize for the wrong spelling of your name. Opps, it's late and I'm ditzy I guess. Thanks again and I'm glad your daughters doing good. PT is alot better than surgery,especially for a young girl. Lords watching over you and yours. thanks again...

 
Old 05-04-2009, 08:40 PM   #12
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Marbrit HB User
Re: Bone Lesion

DazzledStar, I agree I too am sorry for what Bonnie has gone through. I am thankful though, that she is alive to share with us who have so little experience with this, giving us warnings and guidance. For this, I truly appreciate your words Bonnie. I can't even begin to imagine the adjustment you have had to make and also hope they can find something that you would not be allergic to. May life get better Bonnie and may God bless you abundantly with what you've gone through!

Quote:
Originally Posted by DazzledStar View Post
Bonnie!

I am so sorry for everything you have gone through! You are very brave and strong! I was so fearful of my lesion (which turned out to be an aneurmysal bone cyst) being malignant and having to have that done. I hope things get better for you and that you find something that you are not allergic too soon. You are in my thoughts!

<3

 
Old 05-21-2009, 06:28 PM   #13
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lilsunshine46 HB User
Re: Bone Lesion

Dazzle, Thank God! Your lesion turned out to be a cyst. I am sure it is still painful. I hope that by now you have gotten"fixed". You are so right that PT is your friend. You must always do your PT no matter what. I still do PT 15 yrs later. I aqua jog every MWF and do an eliptical trainer on TTH . I take S&S off.

Bonnie

 
Old 05-25-2009, 08:37 PM   #14
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Marbrit HB User
Re: Bone Lesion

Well, Baytovyn and Dazzeledstar, just wondering how you're doing? Thinking of you's. Bonnie, it's really nice to have you connecting with us just to keep us informed and encouraged.
Thanks

 
Old 05-26-2009, 05:35 PM   #15
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Re: Bone Lesion

Hi everyone...I'm new to this site. I was reading up on bone tumors and came across the posts people have shared.First, I would like to say Everyone is Amazing for sharing and helping other people going through similar experiences and I want to thank you.

Recently, I had an x-ray done on my left leg because i was in a lot of pain after working out, it turned out i have a tumor on the back of my FEMUR. It is pretty big and gives me a lot of pain. I also had 2 MRIs done recently. I am scheduled to see a specialist on Thursday but I am kind of freakin gout, and was hoping someone could put me at ease with a similar scenario that they've been through. The MRI stated that it is most likely Osteochondroma, but Chondrosarcoma cannot be ruled out. I realize most of the time the tumor is benign, but considering the size and amount of pain I am having I am wondering how they take it out, and if it affects your bone. Some one please tell me what to expect

I would truly appreciate it. I cannot sleep
Thanks xoxo

 
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