Ulnar impaction syndrome and pigmented villonodular synovitis
I wondered if anyone else has experience of these problems?
I have a tumour in my wrist, which has been biopsied and has now been diagnosed as PVNS. Obviously, I'm hugely relieved that it is not malignant (they thought it might be synovial sarcoma) but it will have to be removed. I'd really appreciate hearing from anyone who has had this done and would like to know if recurrence has been a problem.
I also have long standing ulnar sided wrist pain, after a fall nearly six years ago. The surgeon is considering ulnar shortening, but today decided to do an arthroscopy and at the same time remove my tumour, then make a final decision on the shortening procedure which would be done at a later date.
He showed me an area of damage to the lunate bone on my x ray which is as a result of the ulnar impaction, but thinks he may be able to do something with the ligaments. Again, if anyone else has experience of this kind of problem, I would love to hear from you.
I am getting fairly desperate and would probably agree to any procedure to attempt to reduce the pain I've been struggling with for the last few years. Any advice gratefully received.