Extremely high alkaline phosphatase (toddler)
My daughter is 3 yrs old. She was being tested for growth hormone deficiency, Celiac, thyroid, insulin issues, etc. All the testing came back fine aside from the alkaline phoshatase level. The lab used a value of 100/350. Our daughter's level is 4750. We know that growing children can have a higher value due to growth ...but that value is usually 500 or such.
Last year she had 2 test come back abnormal. One was a very low white blood cell count...the doctor was concerned about the blood test lookinh like Leukemia ..retested a few days later and the levels had come up so the doctor was happy with that. A month or so later at a retest everything looked good aside from a very high calcium level. The doctor thought maybe it was due to a vitamin D definiciency. She was put on high dose vitamin D for 6 weeks. retested vitamin D level and calcium level was within normal values. So the endocrinologist was thinking the high alkaline phos. level may be due to vitamin D once again. So the vitamin D was tested and the were looking for at least 30 to be a good level. Daughters level was 52 so the issue isn't from vitamin D. They are now testing other issues. Calcium, GGT among other things.
Question is has anyone dealt with alkaline phoshatase level this high?