Hey gang-
New to the forum. Been dealing with a problem for quite some time now and I'm looking for answers. Back in 2006, I had some alkaline phosphatase levels come back elevated. My family doctor told me it was nothing to worry about. I then had kidney stones (calcium stones) and lithotripsy done to remove one of the stones. My urologist wanted to get to the bottom of what was going on so more tests were done. All came back ok.
Went back because I was experiencing pain in my hips....I knew something wasn't right. At this time my alkaline phos levels were still elevated and couldn't get to the bottom of what was going on. So, they ordered up a bone scan and found nothing (this was done in 2007). Now for the heck of it, I had a bone density scan done and sure enough, there was something found in my hip they're diagnosing as osteopenia.
I was at the age of 30 when they told me this.....something isn't right and I am now 34. What are the chances of a 34 year old male getting the beginning signs of osteoporosis? My doctors have said it's extremely rare. Just this past couple of months they decided to do some more investigating on my alkaline phos levels coming back elevated and found a "spot" on my liver. Did a ultra sound and MRI and long story short, the "spot" was only a fatty deposit after seeing a liver specialist this week. Remind you, I don't drink(maybe one beer a month) on average if that. I've been on very high prescribed doses of vitamin D to help with these "bone problems" but the high doses of vitamin D won't even put a dent in it.
My symptoms are a lot of bone pain in my legs and just recently moved to my arms (some joint pain in my knees). I'm constantly tired but haven't been sick any flu which is good but could also be my immune system fighting something off.
Any answers, concerns, or slight possibilities of what this could be would be greatly appreciated.
I also get pains in my right knee. Had a bone scan done and saw that there was a "white spot" on my knee in the scan. The tech asked me if I had known about anything in my right knee and told him, no.
Is there ANYONE out there that has had a similar experience to mine when reading my first AND second posts?
Thanks for the reply. I greatly appreciate it. Do you have osteoporosis/osteopenia by any chance? Docs are saying it's not normal for a male at my age to have the beginnings stages of osteoporosis and that something is causing this. Any feedback you have is greatly appreciated. Also, your ALP levels can come back elevated if something is wrong with your liver or bones....are yours levels elevated from your bones?
I had a liver bx. in 2003 and it was o.k. I have a multitude of health problems, but I was healthy in the 70s when this first started. Both the alk. ph. and liver enz. gomup from time to time, but for no apparent reason.
I have just recently had a full blood test done my doctor wanted to check a few things.
It came back that I also have elevated alkaline phosphatase levels, I am anemic probably from medications I have been taking. My doctor knows me pretty well and when I asked her about some new pain in my hip and legs and told her it felt more like bruising but more painful.
Anyway with what she knows she thinks it is Paget's disease of the bone. I have done some reading and I think she's right, anyway all your problems seem to fit so it's a possibility.
Hope everything turns out for u hope this helps.
