I am thirty years old and had my first notice of FD when I was twelve. Unfortunately, I live in an area where there are no specialists, so I was not able to even get a real diagnosis until age 28. Before that, I'd been diagnosed with everything from calcium deposits to benign tumors. When I was 28, a biopsy was finally done, and the Mayo Clinic diagnosed FD. I only have one affected bone- my left tibia- and generally it does not cause many issues.
When I was younger, I experienced a lot of pain. It was worst when I was going through puberty and growing, and I was a very active cheerleader and dancer. Eventually, my doctor advised me to stop cheering and dancing because of the pain, so since that time, I have stopped almost all strenuous activity and do not notice much about my leg unless I happen to hit it against something or find myself falling, etc.
Recently, though, about a month ago, I started having a lot of pain in my leg. It wasn't a sharp pain- more like an internal burning feeling. I went back to my doctor and had new X-Rays and a new MRI. The doctor stated that the MRI showed no change and that there was no sign of it becoming malignant or anything like that. He did say, "By your age, it should be going away, though," which surprised me because I did not think FD ever went away.
My doctor told me that I needed a cast, though, to help with the pain. I was unsure of that but assumed he meant a walking boot or something to help stabilize the bone. He meant an actual plaster cast, though, and I was fitted with one knee to toes and was told I will be in it for five weeks. Has anyone ever been treated with a cast?
Can anyone help?
Last edited by abbah; 08-05-2012 at 01:50 PM.