Scared! What is wrong with me - Bowel Disorders Message Board

wannabehotguy · 12-24-2003, 02:04 PM

First of all I went back to my GI doctor and he flat out said that he thought I had AIDS and that I might have the wasting syndrome because I am just losing weight and have decreased appetitie for no reason. The thing is I've never had intercourse or performed oral on anybody ( I told the DR. that too). But I decided to check up on the wasting syndrome and it mentioned diarehhia and weakness which I do not have at all.

I've noticed over the last couple days that when I drink water I start to feel really weird. And one time my body temperature dropped to 96.6 for hours and I felt like I was freezing. My urine for the last several months comes out rather slow. There is no pain or anything. I've had my urine tested once and it came back normal. Whenever I see my doctor he looks at me in a real suspicious way (as if he thinks I am taking drugs, boozing, starving myself) That is a REAL negative belief to have especially since he doesnt' even ask me any questinos about his suspicions. He only looks at me really strange. I did do some research and I thought I might have pancreatitus. The protein drinks I've been drinking have been showing up in my BM. The same exact vanilla color and rarely I have pale stripes in my stool. There is most likely a fat/portein malabsorption problem and I am wondering WHY the GI doctor didn't do a fecal matter test??? Will he find everything with a CT scan??

Anyways after I explained to him about my non-sexualness he said that I should have a CT scan as soon as possible because he thinks it might be an organ problem. But what kind of organ problem? He didn't say! Even when I asked. Well I am a bit scared and worried that I might have cancer or some bad illness. I am having only slight pains like fullness after eating for hours, some sharp pains here and here, but most important losing weight and feeling weird after and during eating or drinking fluids. Does anybody have any idea what my problem could be? I also would like to know how everybodys CT scan (if you had one) went? Did that iodine shake taste horrible, ok or great? And anything else you'd like to tell me. My CT scan is this week too so respond quickly.

thank you for you help

P.S. Yes I've had an upper endoscopy done on me and it came back normal.
Also somebody mentioned that I might have tons of stress. I don't think that is the case as I see a liscened therapist once a week and neithier of us think it is a stress problem. I have never been ILL, SICK or anything whenever I had a lot of stress. The only thing I used to do was be a nervous eater and eat a lot of food when I was stressed or rant and rave (like a jerk) compulsively. I don't feel stressed ONLy very worried for my life and desering to preserve as much life and health as possible.

Harry · 12-24-2003, 09:33 PM

First of all --- I think you need to find another Doctor that will listen to you. I understand your feeling all too well.

For some reason I have found Gastrointestinal Doctors are not good diagnostitions. I have seen 7 different ones in the last 10 years and if I had to go to one now-- I would not go to any of them. I almost bled to death with chronic bleeding diverticular -- coming out in clots and 3 Gastro doctors did not want me to go to the ER. Well I went and passed out onthe toilet 1 hour later.

My Internist thinks I lost about half my blood that night ---well I had 2 1/2 feet of my colon removed about 2 weeks later but if I had listened to the Gastro Doctors --- on several occasions ---I would not be writing this message NOW. A shot of vitamin K stopped the bleeding that time.

I really don't trust them --- for some reason ever since the development of the scopes used for testing -- I think their abilities have gone to Hell in a hand basket. I really cannot express my true feelings on this public forum but it's not Good.

There are several tests that could be conducted to see how things are functioning. A stomach empting test and a small bowel follow through --both test your ability to pass food into your intestines for proper absorption.

A CT scan can tell alot and is very worthwhile. I have them done annually for the pass 10 years to see if several Masses one on my pancreas and adrenal gland has changed. Also, I have an aorta that is slighly enlarged that has not changed in 4 years. I pass a little protein in my urine but my kidney are the same. They look at the size, shape and if they are normal--- and alot of things but as you know they can't test any organ's functioning abilities.

You will be given Barium sulphate to drink before the test --- here you drink one 12 ounce size the night before testing and half of another an hour before testing then some when you get on the table. You will also be given an IV for contrast for you blood -- it will make your face feel a little flushed but the entire test is over in 30 minuets. I have done it other ways but this seems the best method.

Lets us know how you make out??

I certainly wish you well---Harry

wannabehotguy · 12-25-2003, 03:50 PM

Harry,
Then what type of Doctor should I go looking for? I want to find that will take care of my condition well and listen well. I am sorry to hear about all that you went through and maybe I can learn from your experience. I certaily don't want to me near death even though I am kinda close to it already. I've had a sigmoidoscopy that revealed nothing. I think the stupid doctor was just expecting for my pain and suffering to disappear on its own and for my weight to gain all by itself without any problems.

I feel like reporting him to the 1-800 I wrote down that was in his office. Is that appropriate? Will it even be worth it?

Jenetti · 12-25-2003, 04:55 PM

So sorry to hear about your problems and the treatment you are receiving . I had a cat scan done last week. I was also given 3 glasses of something to drink, it was very COLD but the taste wasnt bad at all. Like gatorade or something red. Then i had to wait till it went in thru my system. Then had an IV injection with more dye i think. The actual test itself took maybe 5 mins total if that. It wasnt bad at all just time consuming.
I had a bad case of diverticulitis , was given cipro for it. Seemed to clear up for about 4 days after the completion of the cipro but now its returned back. I have an appt with a specialist on jan 20 IF I CAN HOLD on till then. I doubt it, it hurts LIKE hell.
I don't know what to tell you or tell you what you have, I do agree with Harry tho, LOOK FOR ANOTHER DOCTOR. I wish you the best hon and will keep you in my prayers.
Jen

wannabehotguy · 12-25-2003, 10:11 PM

Jenetti
I hope you feel better too. Thank you for your concern. Take care.