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Old 02-07-2003, 10:24 AM   #1
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Mandie HB User
Post still have rectal pains

I know that I have posted before about this, but it has been a while and I just needed to vent again. I have been suffering with inside rectal pains for over 1 year now. I have been to over 10 rectal drs. and all of them have scoped me. THey say I have hemmorroids but not thrombosed so they feel that it is not coming from this. I am at my wits end- THe last doctor told me that it is all muscular and he called it levators syndrome. So what do I do. Just suffer? I am suffering so much and I have run out of places to go. I asked the dr. about tests and he said the only one might be a defogram which I am not thrilled with. He said that this shows prolapse and if it is , it is major surgery, and I am not going thru this unless it is life threatening. THe dr. is very nice, but he just does not know how to help me. I even called the CLeveland clinic to see if they would do anything different and they do the same tests as my doctor does. I was willing to go, but why should I fly across the country if The same tests are there? Am I destined to suffer? THe only thing that helps me is sitting on ice- I can't do this the rest of my life. It is really driving me to a nervous breakdown and I do not want that to happen. ANy suggestions of help for me?

 
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Old 02-07-2003, 12:42 PM   #2
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Hi Mandie,

I am glad to hear from you as I was wondering how you were doing. How did you make out with the miralax? Why does the Dr. think that maybe there is a prolapse? According to what I have read there doesn't seem to be that kind of pain associated with a prolapse. It does however sound like a muscle kind of pain. Maybe he or she could try muscle relaxers. Does the pain only come after BM's and then last awhile. This is what I am thinking it is with me. My other problelm is that stool will enter the rectum and not come out it just sits there until finally triggers a BM. It could take a couple of days of being very uncomfortable. I just seems to linger in the anal canal and I can feel it. Then when I finally do go I am in pain and that can last a couple of days (I think it is also a muscle thing but one never knows until all the test are done, of which I have not had any) I am thinking about going though, just to be sure . My Dr. also suggested the defagram test. I have to think about it thought. Well once again I am in a revolving circle with no answers. I don't even know what to tell the Dr.'s anymore because my symptoms seem so strange. Well, let me know about you.

Robbin

 
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Old 02-07-2003, 04:06 PM   #3
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Hi Robbin so you are still suffering too? My problem is constant pain- it is driving me insane. THe miralax is working great and helping me go a lot better without that feeling that you described. Before I would feel like the stool was just sitting in the canal too, and it was so hard to release. I would have to strain so hard to expel it. IN fact, most of the time I had to take a fleet enema to get it out because i was so exhausted. The muscles just feel slughish, like they are not working right in there. Now, as I said, it is easier to go, but they still feel sluggish. THey dr. feels that from all of that straining and pushing, I strained the muscles in the levator area of the rectum, and in turn caused me pain. I just don't know if I can accept this answer although, i don't seem to have a choice now. A far as prolapse, he said that many women have "internal prolapse" which is not seen by a scope and only seen by the defagram. This would make it harder to get the stool out and the answer to this is a major bowel operation. You talk about scary!! It is really so depressing to me because it it seems like i just have no where to turn now. I use a dr. in Ocean twp. - where is your doctor? It would be funny if we had to have that test, if we could go together for moral support!! SO anyway, here I am, consumed with this problem and no where to turn. ANy suggestions?? M

 
Old 02-07-2003, 05:48 PM   #4
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Hi mandie,

My dr. is in shrewsbury, I like him very much he seems to be a very caring and knowlegabe person. He always listens very carefully to what I have to say about my problems. In fact sometimes I have waited 2 hours too see him as he tries too see you if you are having problems. I can usually get an appointment if I need too. As far as my problems, some days they are better than others. I haven't gone to the bathroom for two days now, so I am very uncomfortable but no muscle pain now, however as soon as I go I will have the throbbing pain. I too think that I have strained a muscle. I can remember straining very hard one particular time and that is when this all started and that was a year and a half ago. I really doesn't seem too matter if the stool is hard or slides out gently I still have the throbbing. Well I guess we have no choice but to bear with it and hope it gets better someday. Take care.

Robbin

 
Old 02-07-2003, 09:18 PM   #5
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Robbin It is just horrible isn't it, for us to suffer like this. I know the group that you are going to- It is right across the street from Marshalls, right? He is in a surgical group. I don't think that i am allowed to say his name here, so I won't but I know that they run the rectal clinic in Mnmouth Hospital. It is a very busy practice and when I went I had to wait so long, tht I went next door to the library to get and book and come back and I still was waiting. I hate doctors, waiting is bad enough, but waiting and being nervous is really bad. I just don't know what to do. M I put the little face going in circles on top because that is how I feel M


[This message has been edited by Mandie (edited 02-07-2003).]

 
Old 02-07-2003, 10:07 PM   #6
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Yes, that is the group I go to. I try to get the first appt. so I don't have to wait that long. He is pretty conservative, unlike the specialist In long branch who only wanted to do surgery. I have never been to the rectal clinic at the hospital. Is there any use in doing that? Is it like one stop shopping for rectal disorders where they can do all the tests? I think the Dr. from long branch is also connected with that clinic. Well, I just don't know any more. How can something like this go on for so long. I know if you sprain your ankle it eventually gets better. I am trying to just get on with the things I need too do. That is on good days, so I have to sort of cram things in. Talk to you soon.

Robbin

 
Old 02-08-2003, 06:48 AM   #7
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Robbin I keep thinking this all the time- how can I have this pain so long?? Why do I have to suffer so long? Where can I go to get help? I am really being driven crazy by all of this. It is very hard to function and no one really understands. I really cannot talk to most about this, as I am sure you feel the same. It is kinda an embarrassing problem and it is not a subject you discuss readily. Has the dr. suggested the defogram? WHat did he say that you had? Do you have the real good looking one? Last time I went there he had a student with him in the room and I did not feel comfortable about that at all! DO you work, Robbin How do you keep sane with all of this? I am always in the Mall in Freehold, I probably have passed you by. Is your family supportive of you? I have two grown daughters, one of which really understands, and the other one does not, so I am upset about that, too. Hope to hear from you later M

 
Old 02-08-2003, 10:16 AM   #8
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Hi Mandie,

I am always at the freehold mall too. I have 2 sons, one is in college at Rutgers and one is a sophmore in high school. My family is very supportive. My husband keeps telling me to go for all the tests. (I guess so he doesn't have to listen to me anymore). The Dr. I saw in the group was the one whose last initial begins with "A" . Last night I don't know what I ate but I had the worst cramps and nothing came out except for the fact that I had to force out a small amount in hopes of feeling better. The Doctor says everything looks normal and he has seen me three times. Each time he says I just need to regulate my BM's better. He did suggest the defagram test if I am not better. He gave me the instructions and said to think about it and it was entirely up to me. You have to drink magnesium citrate and two fleet enemas. The test is done at monmouth medical center. I am still trying things on my own before making the decision. Maybe I will see you at the mall one day. I am living out here 17 years so we must have crossed paths at sometime. Tonight we are going to a valentines dance with a bunch of friends, close by in matawan. I am starving myself all day so I can eat tonight and hope I won't have a stomach ache. Gee, I keep thing back to the good old days when I didn't even have to think of this. have a great weekend.

Robbin


 
Old 02-08-2003, 02:27 PM   #9
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Robbin I know exactly who you saw. I saw the dr. whose name started with "D". Wouldn't it be ironic if we went in the same time for the test? If we decide to take this awful test, then we will see. My husband is tired of hearing about it too, and was ready to take me to the Cleveland clinic to get every test known to man to convince me that there is nothing terribly wrong. It is easy for him to say, but I just don't want to be tortured if unnecessary. Just the thought of the defagram looming in my future really depresses me. It is funny, but I used to live in Aberdeen- until I moved more south. I know quite a few people there. Where is your dance? At a hall or caterer? It is great that you get out and have fun, I just am not in the mood to do this at this time with the way I feel. Well, have fun M

[This message has been edited by Mandie (edited 02-08-2003).]

 
Old 02-08-2003, 04:47 PM   #10
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Mandie,

Are you currently seeing the same group of doctors that I am? I definetly wouldn't want to go for any tests alone. Of course my husband will go with me, but it is kind of hard to work around his schedule. Mine is more flexible since I only work 3 days a week. By the way, I wanted to ask you if you eat alot of fiber foods or take fiber supplements. I really think that is alot of my trouble, since this whole thing started with my increase if fiber. I am now reducing any fiber that I eat. I think the fiber makes me want to push all the time. The slightest bit of fiber aggravetes my tummy. The Dr.said it can take a while for your body to adjust to a new diet. Mine has to re-adjust to not having fiber. I just want things to be the way they were, I know you do to. Enjoy the rest of the weekend if you can. Also there are other web sites that I go to that we can exchange e-mail addresses. I go to a self help group for ibs. I go to google and type in the search box - self help for Ibs and there is a link to their bullitin board. Also I go to yahoo groups and they have an anal fissure board . Both are pretty helpful.

Robbin

[This message has been edited by Robbin (edited 02-08-2003).]

[This message has been edited by Robbin (edited 02-08-2003).]

 
Old 02-08-2003, 06:45 PM   #11
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Robbin I have problem with fiber too, WHen I eat too much I can not go to the bathroom at all, because the stool is too big and I just strain and strain and get it out. I have stopped taking it and now I am taking miralax, and it is helping me to go, and my dr. also tells me that it is my bowel habits that are causing most of my problems. It just sounds too easy, right? I am going to go to the google site for IBS. I look for all the help that i can get M

 
Old 02-08-2003, 09:35 PM   #12
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robin That board for IBS that you referred to seems very helpful. I just spoke to a few nice people before about my constipation problems and they seem very knowledgeable. It is amazing how many people suffer with this problem not only here, but on other boards as well. there are many people there, maybe one will be you. M

 
Old 02-09-2003, 08:13 PM   #13
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Hi mandie,

Just wanted to see if you were still here on the board

 
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