I am only at the beginning stages of all of this and do not really know what al my blood test results really mean. I am seeing an endocrinologist for thyroid for the first time at the end of the month. I am pretty sure I have Hashimotos but the celiac antibodies really knocked me over. I had no idea they could ever be connected. What treatment are you having for all this stuff? I understand that people with celiacs disease have to be on a strict gluten diet? How long have you had these problems and has treatment made you better?
I appreciate any info you can offer...thanks
I have had celiacs for 2 years. It takes time to be gluten free. You will fill better if you: just stick to the basics of fresh meat, fruits and veggies..or follow the strict gf list. You can do a google search for a list of safe gf foods. Also, call on all vitamins and makeup/chapsticks. Use your own can opener, cutting board and stainless steel spatulas. I bought all new kitchen ware for myself. I take Armour thyroid and levoxyl for thyroid. I am also on Iron, milk thistle, vit e, fish oil, multivits, calcium. When I cut out my iron, I start to get anemic and feel like crum. I am also getting tested for yeast overgrowth and then will start some other supplements. I belong to a great celiacs forum (not allowed to post I don't think). And that is where I learned all my info thyroid and celiacs. It takes a huge effort with celiacs and major life change. Even licking an envelope can give you gluten...or eating red licorice. It's scary at first, but it does get better. I hope this helps.
Thanks for your reply, it helped a lot. How were you actually diagnosed with celiacs?? Did you have to have a small bowel biopsy?? As far as I can tell, I only have the antibodies at this stage, but do not know whether this is the first step to developing the full blown thing.
I tend to suffer from constipation which I think is related to the thyroid problem (slow metabolism etc)but do not seem to have the majority of the other symptons associated with celiacs at this stage. If i have the antibodies, will I definately progress with the symptoms and eventually develop the full blown version of the disease? I was diagnosed with IBS in Sept 2000 when I was 2 months pregnant. I had really bad cramping, abdominal pain, diarrhea alternating with constipation, but this settled down and I am mainly constipated now.
I have not been tested for thyroid antibodies since July 2002 and celiac antibodies since Sept 2002 as I also have a problem with severely dry eyes and the tets were originally supposed to highlight whether I have sjogrens syndrome, but then all this other stuff showed up. The doctors (and I have seen a few) did not actually point this out to me until very recently which I am annoyed about. I will be seeking more tests soon to determine where I am with all this stuff. To think I was a healthy 33 year old female up until one year ago with no real health concerns! All this started one year after I had my second child. I have read that thyroid problems happen in a lot of cases after pregnancy and I am no exception.
I hate the sound of the gf diet, as I have been so used to eating whatever I felt like (mainly healthy)for 33 years. I suppose in this circumtance one has no option but to adjust.
After the blood tests, I got a scope of my GI system. My vili (finger-like things that gather nutrients) were flat. Most people have symptoms of diarrhea and are skinny. I was over weight and anemic. If you do have celiacs and continue to eat like you always do, you are at high risk for damaging your small intestines and the longer you don't stick to the gf diet, the more illnesses and problems will/can occur. You should go see a GI specialist and ask for further tests to check your vili.
Ok, now I am worried. I am also struggling with a weight problem and when I last had a blood test in Sept 2002, my iron levels were way down as well.
Does this provide definitive proof that I am anemic or are there there other symptoms as well. I am usually very tired as I have 2 children, work and run around like crazy most of the week trying to get everything done. Is the anemia related to the fact that in celiacs the small bowel is not taking up all of the required nutrients from food we have eaten???