my daughter is 3 years old and since she was a month old she has been on an adults amount of laxatives, enimas and etc....nothing works 4 her....except....klean-prep's.....which envolves a tube in the nose, through the stomach and cleaned out.
does anyone else have clean-preps? let me know...thanks
Why was she put on laxatives and enemas at a month old? If she has been having these treatments for that long, then this could have contributed to her problems. Constant enemas and laxatives make the bowels very lax and lose tone, so that it becomes impossible to open them without help.
This is not normal at this age and she needs further investigations.
my daughter has had test and nothing was found....the eneimas make the bowel contract....but she can not have a poo.....the doctors just say its chronic constapation....and they said at a month old that she will glow out of it....but it has been 3 years now...they still think she will grow out of it....she also is on a high fibre diet....and i think she will still be wearing nappies when she goes to school too....i can not get her out of nappies as she has alot of seapage.....
The seapage is related to the severe constipation. You mentioned using suppositories and enema's but what kind of enema's did they recommend. Usually for severe constipation/obstipation a soap suds enema is used. The seapage means she is totally constipated and is leaking stool around the hard dry constipated stool. Have you tried using Karo syrup in her milk routinely? Also they may want to check for mega colon as this can be a cause of the constipation. Also check the website for Milwaukee Childrens Hospital and consider writing a letter to their Constipation/GI clinic to see if they can't help even though you are not in USA. Also since you state that nothing is working you may need to manually remove the stool every 2-3 days just to keep her cleaned out.
What effect do glycerin suppositories have on her? If administered daily after a round of clean-prep would they keep her moving... it sounds like medical neglect to let this go on so long.
I could be wrong but wouldn't the long term use of those things cause a life long dependence at such a young age, won't they completely ruin any potential of normal bowel function?
even after my daughter has had a klean-prep and her bowels are totally empty....they give her enimas and supposeterys....but nothing works....or even comes out...it just makes her have bad stomach ache and stuggles on the floor tryin 2 have a poo...but as i say nothing comes out.....
Have they ruled out such things as mega colon? Also what do they feel is actually causing her obsitpation? If proper tests have been run surely they should have some idea what is causing it. This is a long shot but have you tried the Karo syrup in her milk. Also have they suggested eliminating dairy altogether to see if this might be a cause. My best suggestions at this point is trying the karo syrup first, eliminating all dairy next if you haven't tried that and last but not least use a suppository every other day or a baking soda enema or soap suds enema followed by manual removal if no results from this.
Haven't heard from you lately.... hows the little one doing? Have you spoken to any Drs about the suggestions posted on these boards? What do they say..... is it a problem to get to the specialist (ie: in USA, hard to afford, or even see a specialist, or in Canada long waiting lists but free healthcare and coverage!)
Why are the medical people seeming to drag their feet? have they suggested a future or ongoing course of action or are they waiting to see if she just grows out of it? (and destroys her bowel health in the mean time?)
Being an adult and going through something similar is awful I can't imagine how it must be for a small child!
sammy
hiya...the doctors say she will grow out of it....and they can not do anything else.....well...at the age of 1 month old...they said she will grow out of it....so i dont no what we are going 2 do????
but i am going 2 take the matter futher....its going on too long...and they dont care....they do not see what is behind closed doors!!!!!
hi...
we go to the hospital on the 28th of feb....no we have not seen a PEDIATRIC GASTROENTEROLOGIST well i dont think so i dont no we have seen so many different people i loose track..i will find out....we mostly only see a pedatision....i think hes sick of seeing us.....then he just feels her stomach says its full of hard lumpy soils and then off she goes to a ward for a klean - prep. stacey has never had a poo on her own without a klean-prep...which just desolves the stools in her bowel...and then comes out of her bottom as brown water...i have asked for different opinons from other doctors and they all say she will grow out of it...but as i say they have all been saying this since she was month old.
the tests that she has had is... an x-ray and a retrum byopsie....i think i have spelt that wrong....and nothing was found...they said that every thing was normal....and that she will just grow out of it!!!!AGAIN!!!
[This message has been edited by nickyd (edited 02-15-2003).]
[This message has been edited by nickyd (edited 02-15-2003).]
I see that you live in England - I used to live in England and now live in the US so know both health care systems fairly well. Please don't accept the popular view that the NHS doesn't give you any power or right to good medical care - that because the medical care is free we don't have any choice who to see. Your daugher needs a pediatric GI doctor and she needed this years ago - only you can make this happen because, clearly, her current doctors don't care or are too busy to follow this through. INSIST that they make an appointment - tell them that if they don't you will report them to the British Medical Association for negligence. That won't make you popular but should get some action.
Good luck!
It does sound like you have not seen a Pediatric Gastroenterologist. This is the only type of doctor that can run the proper tests on children with this type of problem. Insist on seeing this type of doctor and having barium contrast tests done with w-rays.
I am an American living in Venezuela and these tests are run very quickly here when there is any gastro problem. Seems like in the U.S. and England you really get the run around. You can almost die before they run the right tests......really get the run around.
Tell all of those SOB's that you insist in seeing only a pediatic gastroenterologist and nobody else. Your child (and well as you) has suffered way too long!!!! This needs to be seriously looked into now before it does more harm to her system.
I've suffered from constipation all thru my life. I have to eat lots of bran to keep me going. I have a very large stretched out colon due to straining thru the years. When my gastroenterologist did my barium x-rays and looked at the results, he said "WOW"!!!! He said that if I didn't work on my problem, my colon would eventually stop working!!!
You asked about Karo syrup. It is just a white syrup. I was one time put on "lactulose" which is a sweetner. This sweetner taken daily helps draw water into the colon or intestinal tract....don't remember which one. It didn't help me too much. I need the bulk of having the bran cereal.
Please do keep in touch with all of us.....my heart goes out to you and your child.
Karo syrup is plain old corn syrup. The stuff that you use in your kitchen for cooking or making popcorn balls. Karo I guess just happens to be a brand name of the most widely known brand here in the USA. I am sure you have it over there but am not sure what your brand is called. A tablespoon of this syrup is put into the childs glass of milk and they drink it to help with the bowels. The other poster is correct though in letting you know that you need to see a pediatric gastroenterologist to get this taken care of. You might also want to check out the childrens constipation clinic here in Milwaukee WI. You could write them a letter asking for their help either with the problem or with finding a qualified pediatric gastroenterologist in England.
thanks to the both of you i will go and see her consulant on the 28th of feb and i will ask to see a Pediatric Gastroenterologist.
i will let you no what the consulant says...ok
Nick, I've never had a Kleen prep but I am horrified that your child has not gotten better care.
There are so many variables that truly, a pediatric Gastroenterologist (as previously suggested here)
should have been on that case long ago.
Has anyone even entertained the idea that the child might have a crink in her gut?
I'm not sure how they figure that out.
I had a crink. My colon was wrapped around my ovary and other stuff too.
I had a colonoscopy and they did not see the crink at the twist.
I had both internal and external sonograms and nothing showed up except for once they saw a lot of stool just sitting there.
I had CT scans (more than 1) and the colon problem was never seen.
I had one surgery for a gynecology issue and the condition of my colon was discovered when they went in with the laproscope.
I had another surgery for pain several months later and my colon was in trouble again. However, before the surgery I again had the CT scan the sonogram and Xray and the condition of the colon was once again non detectable.
I don't know why that happens but I hear it is not too uncommon.
Wishes and Prayers for your baby to get better immediately.
Kat
Hey Kat, If you had had a barium contrast enema with x-rays....they would have found the kink. Not a fun enema with about 1 - 2 qts. of contrasting medium pumped into you from below.
klean-preps 
