Does anyone have and information on dumping syndrome? I beleive I am having horrible bouts of this on occasion and am haveing a hard time getting a diagnosis. It usually happens to people who have had a gastric resecsion which I have not had. It involves, horrible hot flushes with sweating and heart palpatations. Finially after a build up of gas I have horrible explosive diarehea which leaves me bleeding. There is also an extreme weakness, and I can't sit up until 10 or 20 minutes after the attack passes.
The three times this happened to me I was afraid my bowel was going to explode. I have diverticulosis and I trully feel that the exlposiveness of the diarehea is blowing out some of my divticuli and that is whats bleeding. This hurts horribly. Any info would be greatly appreciated
I posted about something similar on another board, -- I've also had what sounds like similar attacks but I never knew what they were. At the time they felt like heart attacks. So for years I've meandered my unprofessional opinion between bumpers of thought, trying to imagine what they could be because they are not reproducable symptoms.
I cannot do or take or eat anything to make them happen, and when I try to describe them to my doctors they write it off as anxiety. I've had panic attacks and I know the difference, and I try to explain the nausea is a "deep" feeling nausea way different than "regular" nausea, deep abdominal pain, sweating profusely, feeling clammy, and I'd hang onto the floor, not sure if I was about to vomit or have diarrhea (I've sometimes had both simultaneously which is a real kicker!)
I never knew what this was, what contributed to it, and for years I've felt like I've had undiagnosed heart trouble. I've posted on a variety boards here, -- the heart one, stomach one, open topic, etc., because these lists of symptoms I have,...have no firmly rooted connection yet, and I don't know what they are.
I've had 3 or 4 of those attacks, the most recent being a few months ago. My Husband was scared (he's the ultra cool, calm, and collected type who just doesn't get stirred too easily), because I got white as a sheet, couldn't speak, had explosive diarrhea, my vision was blacking out, I "almost" fainted (I collapsed from weakness in my body and light headedness, and funky vision, but I never formally passed out).
But,...I would have sworn this was something heart related because my pulse went wacky. Sometimes during the attacks my heart rate goes astronomically high. The last attack I had a few months ago, I got very afraid because I could not even FEEL my pulse AT ALL!! That was freaky!! When I finally did get a reading it was 40!!
I still cannot figure out what this is, what causes it, nor have I been diagnosed with anything. My father had diverticulosis (I honestly cannot remember, and I'm not sure he did either, if it was "osis" or "itis" or went from one to the other -- but he had a host of internal organ issues in his life including intestine, colon, kidney, stomach and heart).
Wow this is freaky...
Life isn't what happens to you -- it's how you react to it!
M, What kind of Doctors have you seen? What kind of tests have been done? has anyone offered treatment?
I get a beta blocker for my pulse because it eventually couldn't turn off. My tachycardic problems were also associated with the whole digestive problem.
I had Endometriosis and adhesion growing on my colon.
I just had a second surgery in less than a year to address their presence which are nuthin but trouble.
I also had an emergency surgery because my bowel eventually became impacted. The day of my Emergency surgery I was laying on the bathroom floor doing the whole horrible scene you describe too.
I had to be in the hospital for 3 days to get my bowels working again.
I also was found to have PCOS and a hyperproductive Pancreas.
I went to a Cardiologist for help with my pulse to keep me from having a heart attack or a stroke.
He treats me for a Hyperadrenergic State and Tachycardic HTN.
I have a gastroenterologist for help with my bowels and I have a Reproductive Endocrinologist to take care of the adhesions, the endo, the Ovary which he took out and with my Pancreas.
Hope you get to feeling better soon.
I know how you feel. I have been having the same problems for a little over a year now. I have been doctoring for the symptoms and finally had a colonoscopy and was diagnosed with collagenous colitis.
I have had uncontrollable bowel movements, and you guessed it...had them at times where I could not make it to the bathroom in time. I too had the profuse sweating, severe weakness, heart palpitations and felt as though I was going to pass out. I actually thought I was going to die or I was going to explode. It has been humiliating and it scares me now to even go out and do the normal things that I used to. I shy away from eating out with friends or going to a fair or something just for fear that I won't be able to find a bathroom in time because if I am more than a few feet from the bathroom, I just don't make it in time. Is there anything that you guys have done to control these symptoms?? It has been a horrific ordeal for me and I don't know what the answer is.
It has helped me very much to use Citrucel and/or Metamucil 2 to 3 times a day. I sounds funny to use what is sometimes called a fiber laxative to help diarraha, but what it does is help to bulk up the loose stools. Try it for 2 weeks and see what you think. Make sure to drink lots of water after each dose too. I also try to eat small low fat meals several times a day instead of stuffing my stomach. It seems to me that the last time I had a attack I may have overeaten. Our symptoms sound very similar. Hope this helps you. Let me know.
Those episodes were rare, only 3-4 in my life, but so severe,... it just seemed logical to me to assume it was my heart all this time.
I was also treated for panic attacks, put on beta blockers (which drove me absolutely crazy) and cardizem.
A long time ago I had an upper and lower GI and echo (I'm scheduling an upper GI upcoming and another echo.
I never thought these were connected.
Currently, I have "mulk dud" poops, they look like hard stones. One BM per day each morning.
And a lot, lot of gas and distention.
I have not seen any specialists, just my primary because I didn't know where to go. My physicals turn up normal, nothing on palpation, I get yearly pap and rectals and pelvic, and they're always normal, I have my abdomen palpated.
I thought it was vagus nerve related as well because of problems I have swallowing, and the pain I have runs down the mid/left section of my body through my throat.
My arms go numb a LOT and I need to shake them out, not even sure if that's related too.
I also have a lot of spinal issues so didn't know if it was related. With my dad's history of heart/stomach problems it scared me a bit.
I never connected all of these together until I came to this board. I"ve never seen one board so incredibly thorough, covering so many issues.
I've posted all over trying to find out "where" is the right place.
I haven't sought out any specialists on my own, didn't know how or if I needed to since my doc didn't seem to imply I did.
I am so sorry for everyone's pain and yet a part of me feels so relieved to find other people who know what I'm talking about, and I don't feel like I'm over reacting now, I feel like this is very real.
I'm a little concerned, I admit, to go to my doctors, because I feel like I have this huge list of symptoms and that alone (and I'm female) will have an impact... my list could fill a whole page. (I'm also being treated for other issues, so to try and reitterate this and add to my already existing list, feels so overwhelming).
Hope for your dumping syndrome. I have had half my stomach taken out. Dumping syndrome takes place when your food enters your upper intestine, but for what ever reasonyou no longer have the fluid there to digest your intake. Your intestines try to get liquid by taking it from your blood system, causing your body to go into shock. Thus the weakness and sweating. Eventually the food just dumps into your lowerintestine, thus the name dumping syndrone. you must chew your food well and drink lots of liquid when you eat smaller meals. Byrd
Sorry that you've had to go through dumping syndrome. I'll tell you one thing, though, though maybe the inside of your diverticuli might be scraped, and cut up, I can assure you they haven't "exploded" because a perforated intestine would be a LOT worse than just a little bit of weakness; however, if you honestly believe at some point that your bowel has indeed perforated, bust over to the hospital IMMEDIATELY. A torn hollow organ is life-threatening!!!