My story is: In my early teens I was having really bad stomach aches and explosive BMs. My mom finally took me to a Dr that told my mom to take me to a psychiatrist. Lovely Huh??!!??
When I was 18 in 1988,I had so much pain in my stomach I thought I was dying. I called my mom (was living with a couple friends at the time) she told me to wait until the morning to see if it was any better. It wasn't, the pain had moved to the right side by my appendix. At the ER they took umpteen tests, didn't find anything wrong and took me in for emergency explorartory surgery. This is when they found it. I had abot 1 foot of small intestine taken out. After surgery I tried the sulfa drugs but they didn't work. Basically I was not on anything from after the surgery until 2002. Sure I would have very minor flares but nothing I could'nt handle. I had a baby via
c-section. Everything went bonkers after that.
I had three different Dr.s We tried EVERYTHING for meds. Nothing worked. I even had Remicade infusions. This only made things worse. I was living on pain pills (still am). I had another surgery 11/02. They took out another 1 1/2 taken out. Since then things have been bearable, I can work and enjoy most of my life. Right now I have abdomen pains. On and off with constipation, time is the only thing that helps with this. I'm nauseated alot. I also have the hot and cold flashes. I did not know thay Crohn's sufferers had these!!!! I thought I was in early menopause or something. I have hot/cold flashes all the time.
The only meds I'm on now are Prevacid, I have ulcers and a hiatel hernia in my duendum (sp). I also take 40mg of Oxycodone for the pain. My Dr. doesn't really like me on these b/c of the onstipation but too bad for him b/c he doesn't have to live with the day to day pain. I get constipated even when I'm not on them.
It would really be great to keep in touch and have someone who knows what I'm going through to talk to. My hubby has no idea.
One more question, are there days when you are sooooo tired you can barely keep your eyes open? This is really a problem with me some days.
Keep in touch okay Twisten.
Take care. Paula