still dont know what is wrong - Bowel Disorders Message Board

cazajacks · 01-01-2006, 03:08 PM

It is a year tomorrow i took myself off to hospital with such a bad pain in my bum/rectum area and felt faint with the pain but am still no wiser to what is wrong.i have read a few other peoples post who have had anal skin tags etc. My whole life revolves around my butt and it is really really getting me down. I have had a camera up and down, they found nothing but an abnormally thickended perineum?? I go to my docs often because of the pain and she says all she can see is a very swollen inflamed perinuem with a spot on it??? and gives me antibiotics each time.
I take anti inflammortories everyday of my life, and live on an anestetic cream whcih totally numbs me down below. sometimes i have to just go to bed and lay totally still as i cant even walk where i am so swollen down there, i have to stay near a loo as if i dont go when i need to i will pooh myself, (bowel urgency) and can go many times a day or be constipated, ( this is down to my irritable bowel) but now i cannot have my regular smear test as i cannot be touched down there, i cannot even wipe myself after going to the loo, i scream when i pass water as it touches my bum?? and all because of this lump/spot thingy on my bum/perineum. could this be a simple wart/skin tag. do skin tags cause this terrbile pain where you cannot lead a normal life and swell up. I feel such an idiot as it is only a lump but it rules my whole life, it often bleeds but the surgeon said they could see no reason why i would bleed??? does anyone know if this could be ulcerative colitis or would they definitley have seen this on the colonoscopy?? I cannot beleive one year on and i am still in so much pain. I often feel very unwell and get hot, have joint pains and many other things but have beentold this if fibromyalgia. sorry to go on but i dont want to live like this, if is go see a surgeon they just touch you down there and dont listen when you say dont touch as it really really hurts, and if he decides to have a feel i then pooh myself and i cannot take the embarressment. please help

threethings · 01-01-2006, 05:19 PM

hello...excuse my ignorance...but are you male of female (when you said "smear" wasn't sure if you were talking about pap smear)? also, have you tried regular OTC items like prep h? also...have you had a second and maybe even a third opinion?

Brocallie · 01-02-2006, 06:08 AM

Vulvodynia? Levator syndrome?

cazajacks · 01-04-2006, 12:25 PM

Hello threethings, i am female. broccallie i looked up the 2 things you suggested ( thank you so much) and am not sure i can closely relate to either of them but i have not looked into them deeply enough yet, i will research them a bit more. The thing that hurts so much is the small lump on the perenium, dr says it is a spot???? but it swells so large the perenium starts to split open. then it will go down again, and so on. it also aches/hurts right over the cheek of my butt when it flares up. it hurts everysingle day of my life but i have learnt to adapt my life aroung it, i know if i do too much work/lifting walking shopping etc it will really badly flare up, so i have to dose up on anti inflamatries,pain killers and numbing cream. same with my monthly it flares up. i have never ever heard of anyone with similar to this. do skin tags and warts hurt like this.

Sunlover · 01-04-2006, 02:55 PM

Could it be a hemmorhoid?? I had one 3 years ago that I couldn't sit, I had to lean to the side because it would hurt SO bad. That IS a lump in the butt, it may have a blood clot in it, that's what would cause the pain. That can be easily taken care of by a proctologist in his office. Lifting, exercising, etc definitely will make it flare up. Is it bleeding at ALL? Mine bleed usually, and that is why I normally don't have the pain, because it releases the clot. But 3 years ago it wouldn't bleed and just got bigger and more painful. It would even hurt to turn over in bed!