Hello everyone, it's been months since I have posted and I am back. My surgery was almost 2 years ago now; summer of 2004. For the history read my previous posts. Like s76 I had the what looked like hems after the surgery, took almost 2 months before I could return to work (2 weeks my bum!) and have struggled with finding the medicine balance. It seems that everything that helps also hurts, such as pain meds that relieve the pain but cause constipation, and the RX creams which also cause constipation.
For months I felt better and dare I use the word "normal" and then it happened. I started bleeding again, painful bms, unable to sit, afraid to use the toliet and afraid not to. Last time I went to the Dr he said my condition is chronic. It will come and go for the rest of my life and will be completely dependent on my body.
Chronic is an interesting term that I am really just beginning to understand. I drink loads of water, in fact, I rarely drink anything else. I take benfiber everyday and some with meals, depending on the type. I have found benefiber to be the absolute best. I take a stool softener every morning. I take a sip of Milk of Magnesia MO (means with Mineral Oil) every night. Yes, I drink it right out of the bottle.
When I staffed with my DR what I was doing and if the amounts were enough or too much he said, you take what you need as you need it. Uh huh. How long? I asked. Chronic, he said, basically forever or until you don't need it anymore. On the bright side, non of the meds are contra indicated.
The worst part of all of this is answering the question, "What is it that you have/suffer from?" Constipation/hemm/fissures/FEAR and it's all chronic. Fortunately, the FMLA (family medical leave act) enabled me to document this with my employer and when I do have tearing/bleeding/intolerable pain, I can take time from work without fear of losing my job.
What's the point of my rambling. Partly y'all are the only people who understand. Partly, to share some meds tips with others, partly to share my experience of the healing process and partly to ask for some help with diet.
Has anyone found any links/books/recipies/diets for foods that are easy to digest, don't cause constipation? I found a bit of help on the Lupus site, but I'm not having much luck with diet. I feel have tried it all. Perhaps I just haven't tried it in the right combination?
Thanks, Punkie Pixie