It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Bowel Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-31-2007, 06:10 PM   #1
Newbie
(female)
 
Join Date: Jan 2007
Location: USA
Posts: 3
joyous19 HB User
Question FAP patient, IBS, desmoids ???

I was diagnosed with FAP when I was 3 years old and had a full colectomy with a J-pouch at that time. I went for a long time without any severe problems. But about a year and a half ago I began having constant abdominal pain and nausea, as well as a change in "bowel movements" (technically that's not right, since I don't have a bowel!). I immediately went to my GI surgeon who will see me for check-ups. He sent me for a CT scan but found no obstruction, although there was a "mass" near my right ovary. So, I was told to see a GYN. I had laproscopic surgery to remove the "mass" - we had been told it was probably a cyst, but in the end my GYN said he never even saw my ovary because I had so much scar tissue in my abdomen. After the surgery, I still had the same problems, so I went back to my GI who suggested it was adhesions and I could have surgery to remove them, even though they always grow back and surgery is the culprit. I had the surgery and was much better afterwards.

Now, a year and a half later, I am experiencing problems again. I had some last semester, but none that persisted over a period of time. Since the beginning of this month, I have been experiencing some pain, but mostly pressure, bloating, change in bowel movements (even more than usual), sometimes it feels like I need to go but I can't or I can only go a little bit, some nausea, loss of appetite, etc. My GI surgeon says it is IBS, even though he knows my history and has done nothing to rule anything else out. Is this possible even though I don't have a colon? My doctor says that because my small intestine has taken on the responsibilities of the large, such a syndrome can manifest in my small intestine. Has anyone heard of anyone else with IBS in their small intestine?

I've noticed a persistent pressure (sometimes pain) in a specific spot of my abdomen (I can also feel it in my back). It seems to be worse the longer I sit or bend over, etc. I have noticed that if I push down on this area, it hurts. I have a feeling that something is there, perhaps adhesions pulling on my intestine or even...a desmoid tumor? I am also feeling a pain/pressure on my left leg (the side of the spot) where it joins with my hip and under my ribs above the spot. Could this be caused by a desmoid tumor? Anyone have experience with those? I've been reading about them and it seems possible. I have been told that I have many ovarian cysts, like the last one, but even my GYN says he doesn't even know that these masses are actually cysts. Could I have multiple desmoids?

I am going to see another GI this week, hopefully he will have some more answers. I just wanted to know if anyone had personal experience or knows anymore about this stuff. One of the most frustrating things is not ever being able to really KNOW...which seems to be the way intestinal stuff works.

Last edited by joyous19; 01-31-2007 at 06:12 PM.

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Active Surveillance for Prostate Cancer: Age of the Patient IADT3since2000 Cancer: Prostate 22 09-23-2010 07:01 PM
Going into rehab so how do I become a model patient vernson Addiction & Recovery 15 06-30-2008 07:01 PM
FAP patient...could it be desmoids? joyous19 Cancer: Colon 2 10-21-2007 03:19 PM
In patient vrs. out patient maggietuder Eating Disorder Recovery 12 06-23-2005 09:28 PM
i need help as fast as u can plz! always smile Alzheimer's Disease & Dementia 16 03-29-2005 07:22 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:13 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!