thank you for the reply. im really not looking for an arm-chair diagnosis. i just hoped that maybe someone else had seen something similar to what my daughters blood vessels/vascular malformations looked like.
i have searched and searched and searched and searched for any and all key words i can think of trying to find blood vessels that look like hers. none. zip. zilch.
so i found your board and it had a forum for bowel disorders and i thought certainly
someone else has seen what my daughter has. i just cant believe i really cant find anything that looks like hers and that no one else has either. i guess im just having trouble grasping that.
we are still undergoing on-going testing. this past monday she had a new blood panel series drawn and just today she had an MRI that went horribly wrong trying to give her the contrast. she blew 3 veins and they were only able to get in 1/2 the contrast but, alas, i have strayed...
like i said, i just hoped maybe someone else had seen something similar cuz i cant find anything anywhere remotely resembling what is inside my daughter. but it would be hard to say if anyones seen anything similar since i cant show the pictures.
but thanks for at least responding. i am currently awaiting a referral to johns hopkins, top notch in our area, blowing childrens hospital away. BUT thats just the ones in our area and im much more south than you and your Childrens may be top notch for your area.
thanks again for your response.