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Old 11-14-2007, 10:57 AM   #1
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Join Date: Nov 2007
Location: Manchester, England
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David79 HB User
Question Stomach cramps = Frozen Bowel?

Hi all.

I am new to this site and came across it whilst searching for information on Frozen Bowel. My story cut as short as possible is as follows - 5 years ago at the age of 23 I went into hospital for an exploratory examination of my Bowels. The reason for this was months of falling ill and experiencing lots of pain in the lower abdomen. I had all different kinds of scans and tests however they could only tell me that the few times something showed up on scans was during my bad episodes (which were now happening every two weeks). They had found an area on my right side which they were going to look at by opening me up. Unfortunately their were many complications during the operation as my surgeon found a carcinoid tumor which had to be removed along with 9/10 inches of bowel and my appendicitis. Once I had recovered from this (5 weeks in Hospital) I had to live with having an ileostomy for almost two years before having it reversed along with regular checks at Christies hospital in Manchester to make sure the cancer hadn't come back etc. After this I thought everything was final over however after around a year I started to feel small amounts of pain which I put down to stomach upsets at first. This pain however started to increase and over the past 12 months or so I have been to Christies hospital to make sure the Carcinoid tumor hadn't reappeared, which luckily it hadn't. I have also been to see two different specialists who have struggled to find anything to explain my symptoms. This all changed 2 weeks ago when my Specialist sent me for a barium meal (x-ray test) where they discovered a part of my bowel to be frozen bowel. I was delighted at this find as I was becoming increasingly frustrated at the tests coming back with nothing. He has now explained that this will need operating on and removing although with my specialist not being happy with my current weight the operation will not be straight away as he wants me to put weight on before the operation. I have been to see a dietician who has help advise me on ways to do this however I am finding it very hard due to the amount of pain I get on a daily basis along with me feeling unwell and having a poor appetite. I take strong painkillers on a daily basis and can no longer work (work have been great throughout all of this) due to the bouts of pain I suffer from.
Does anyone know anything about frozen bowel/have frozen bowel? Does anyone have/know anyone that has the same problem? Has anyone got any advice which could help me?
I have just turned 28 and can not wait for all this to be dealt with and fingers crossed that will be sooner rather than later as I so want my life to be back to where it was once which was great fun and most of all pain free!

I would really appreciate any advice, help or information.

Many Thanks
David

 
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Old 11-21-2007, 09:12 AM   #2
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Join Date: Jul 2003
Location: WI
Posts: 225
Poo2 HB User
Re: Stomach cramps = Frozen Bowel?

Hi,

I have never heard of frozen bowel. Is there by chance another name for it? It almost sounds like a stricture. This is when the walls of the large or small intestine thicken and get really narrow and then food can't pass through like it should. The reason I'm asking is b/c I have been dealing w/ Crohn's disease for almost 20 years. My story almost fits your to a T. When I was first diagnosed I too had the severe pain on my right side. They took test after test in the ER that day and found nothing. They decided to do emergency surgery and found out that my bowel had perforated. I have just had my 3rd surgery this last May.

I hope this helps you. Please keep me posted and good luck.

Poo

 
Old 11-22-2007, 08:14 AM   #3
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Join Date: Nov 2007
Location: Manchester, England
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David79 HB User
Re: Stomach cramps = Frozen Bowel?

Hi Poo

Firstly I'd like to thank you for posting on my thread.

I have just been for my weekly Consultation and I asked my Consultant whether there is another name for this (frozen bowel). He explained it to me in more detail and that frozen bowel was just a phrase he used to explain the problem to me. Basically the part of bowel they have found not working is acting like it is frozen as it is no longer moving/working. I know adhesions are a problem after bowel surgery but this can also happen according to my Consultant. He believes that food can not get through this part of the bowel easily and the only way food is getting through is because food is backing up until the pressure pushes it through the bad part of bowel. As a result this causes the huge amounts of pain I am experiencing.

I have just received an appointment date to see my surgeon which is the 17th of December which gives me time to try and put on weight in order for me to be healthy enough to undergo surgery. I am just hoping that when I do have the surgery that all goes well and I dont need to have an ileostomy again. Although I have had an ileostomy before and know I can deal with it.

David

Last edited by David79; 11-22-2007 at 08:16 AM.

 
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