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Old 08-15-2008, 07:31 AM   #16
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Re: Post Sigmoid Resection Diverticulitis

Quote:
Originally Posted by DEEJARIES View Post
Just A Couple Questions That I Wanted To Ask. For Starters Does The Surgery Really Get Rid Of The Problem? How Long Did It Take You To Recover From Surgery? Can You Eat What You Want Now? Ya Know, Nuts, Popcorn, Things Like That? I Miss My Pumpkin Seeds!!
One More Week Before Surgery. Now Of Course I'm Getting Paranoid That Something Is Going To Go Wrong . Just Nerves, My Doctor Has A Really Good Reputation So I Guess I'll Keep Reminding Myself That.
I Just Wanted To Thank Everyone Who Has Talked To Me On Here. It Is Nice To Hear Your Stories And Out Comes. Your Stories Have Answered Alot Of Questions For Me. Thank You "everyone"
DeeJaries,

The surgery definitely gets rid of the immediate problem. The complications you can have without the surgery totally outweighs not having it.

You will be fine and two weeks from now your surgery will all be over and you will be on your way to recovery. Please do not let my post give you too much angst. I do believe we need to keep a vigilant watch things and 99.9% of the time it is nothing but since all of here have had or still have digestive issues we need to pay attention to what our bodies are saying. That was the reason for my post. I would not change the fact that I had the surgery. When they took out my 18 inches they told me it was a total mess and were surprised it had not completely ruptured along time ago. So I was a ticking time bomb.

I had laparoscopic surgery and my healing was rather quick. I was back to work within 6 weeks and it only took that long because my surgeon was on vacation and was not around to sign my work release. I felt quite well within 4 weeks.

Everyone is different as to what they can eat after surgery and have been given the all clear by your surgeon. You will know what you can and can not eat.


When is your surgery? I will keep you in my thoughts and know that we are all here for you.

Vikki

 
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Old 08-15-2008, 08:34 AM   #17
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Re: Post Sigmoid Resection Diverticulitis

"So I was a ticking time bomb"

Exactly how I felt. Like a ticking time bomb.

Dee.....having surgery will not eliminate diverticular disease. As mentioned, a lot of us had a very diseased portion of colon that had to come out. I saw mine after having a barium enema prior to my surgery.. The surgeon had the results on the computer and we viewed it together. Looked like a worn tire ready to blow! Diverticular disease is common. However, it's a small percentage of people whose diverticulosis develops into diverticulitis requiring surgery.

I, too, had the lap procedure and was driving and back to work part-time in about 3 weeks. Your bowel movements will be funky for a while..especially after you start introducing various foods. Best to check with your surgeon re: the nuts, seeds, etc. Mine told me I could eat anything I wanted, but I still avoid certain things. We all heal/recover diffferently....and as Redneon and Ezmeralda said....I, too, wouldn't hesitate to have surgery again if necessary.
Best to do it electively rather than in an emergency situation.

Good luck to you and do keep us posted,
Linda

 
Old 08-15-2008, 05:44 PM   #18
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Re: Post Sigmoid Resection Diverticulitis

Quote:
Originally Posted by Redneon82 View Post
Linda, good to hear from you!* Wow, it's been a year already??!!* I'm glad you are doing well.Yes, I was warned that the surgery would remove the worst part, but that I had pockets "all throughout" my colon, and that they could flare up too.* And also that the surgery would aggravete my IBS.* But the pain is in the exact same place as before, sooo...I usually have pain after I have a BM, anyone else?* It's not usually steady, so who knows what's normal and what's not.* I do believe that another surgery is in my future, but I can handle it, it just wasn't that bad! The worst was dealing with the healing of the incision since I had open surgery, the incision oozed like you wouldn't believe, but it's all good now, just not pretty.I still would advise anyone to go ahead with the surgery, because the alternative is to try to live with this disease and the fear that any minute you could rupture, abscess, etc.* No way is that a good way to live.* And seriously, the surgery is just not that bad!
well my colon rupurted and i was very lucky because if i didnt go to the hospital the day that i went than i would of died from my ruppurted colon i lost about 18 centermeters of my colon also* i was in icu for 11 days after the surgery, i was one lucky person, i would of died from this* and i was in kidney failure also, so i thank god for saving my life and all *it took me about 10 weeks before i stopped hurting from the surgry but i get pain in my stonach also also i had this fear about this happening agan i got more pouchs in my colon so i will end up* having more surgery* later on again because of this* so i hope i dont have to have this surgery agan but i still have problems on and off with my pain in ny stomach, so all i can do is pray they i dont* have to have more surgery* becasuse i was cut wide open and* it was very painfull if u know what i mean* well good luck on youre surgery* and all

Last edited by jeanette66; 08-15-2008 at 06:00 PM. Reason: misspellin of some of my words

 
Old 08-16-2008, 01:12 AM   #19
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Re: Post Sigmoid Resection Diverticulitis

My Surgery Is August 22. Next Friday. I'll Let Ya Know How Things Go.
Thank You For All You Talking To Me. I Dont Know Anyone Around Here That Has This Problem. Except My Mother Was Diognosed With It A Long Time Ago. Fortunately She Has Never Had A Problem With Her's.
DEE

Last edited by DEEJARIES; 08-16-2008 at 01:30 AM.

 
Old 08-16-2008, 01:26 AM   #20
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Re: Post Sigmoid Resection Diverticulitis

Hi There Thanks For Taking The Time To Talk To Me. I'm Just Getting Nervous. My Surgery Is In One Week. Actually To Be Honest, I Think I Developed A Fear Of Nuts And Seeds, So I Probably Wont Touch Them, Anyhow. My Visit To The Emergency Room 2 Yrs. Ago With A 105 Temp Was Scary And Painful! I Was In Pain For 2 Weeks. Thought I Had A Intestinal Virus That Everyone Was Passing Around At Work. But Their's Was Going Away . As Mine Was Getting Worse. God Willing, I'll Never Go Through That Again!!!! I Seriously Thought That I Was Dieing!. Spent 5 Days In The Hospital. And Havent Been Right Since. It Seems Like Every Time I Turn Around, I Have A Flare-up. This Stuff Definitely Has It's Own Mind!!!!!!
Anyhow Thanks For Your Imput. Believe It Or Not , I Am Actually Looking Forward To My Surgery After Talking To Everyone!FOR THE MOST PART!
Thank You Everyone!!!!!!!!!!
Dee

Last edited by DEEJARIES; 08-16-2008 at 01:32 AM.

 
Old 08-16-2008, 08:31 AM   #21
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Re: Post Sigmoid Resection Diverticulitis

I have been reading this board for months. Decided today that I needed to register so I could post. I was diagnosed with diverticulitis two years ago. I was determined to avoid surgery so I ate a high fiber diet and avoided all nuts and seeds for two years. During that time, I had 3 add'l attacks. I finally realized I must have the surgery after I developed an abcess--didn't feel any worse than the other attacks so I was surprised that I had the abcess that time. My doctor described me as having a "ticking time bomb" also. I was always nervous going out of town for fear of an attack. I had bowel resection April 14 of this year and everything went better than I ever expected! I had a young surgeon who did the lap procedure, so I avoided the huge incision. To be honest, the hospital stay for the surgery was easier than the hospital stay with the abcess (pain, Flagyl, etc). I get nauseated very easily and being on the Flagyl, Cipro, Levaquin, etc. is just so difficult for me. 6 weeks later, my surgeon said I could eat anything--nuts, seeds, etc. After having avoided them for two years, I just couldn't eat them! I went to my gastro specialist a couple weeks ago to ask many questions. He said I do have more pockets in my colon and it's hard to predict if I'll ever have another attack. But, having the resection was a medical necessity and I don't regret it one bit. Specialist suggested I "liberate" my diet. He said to eat nuts and seeds. Worse case, I could have an attack, but odds are I will not--but there's no guarantee. So, i had a strawberry for first time in two years this week and it tasted wonderful.

Yes, I continue to have a few twinges and it's always in the back of my mind "What if" this is diverticulitis. It's a ruthless disease and truly makes you feel out of control sometimes.

My advise to anyone is that you must get the diseased section of your colon removed and God willing, you will not have another attack. That's my prayer!

 
Old 08-17-2008, 09:43 PM   #22
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Re: Post Sigmoid Resection Diverticulitis

Hi, Ya'll. Having been an active participant in a Diabetes on-line support group for a while, I have learned that one of the best resources for understanding and living with a chronic disease is the other people who are fighting the same battle. This board and this thread in particular seem to be a good place to start.

I have had IBS for about 35 years. The past several years I have had episodes of pain low on my left side and I thought it was an ovary. Well, it wasn't! I had a bad bacterial intestinal infection about a year ago. The Dr didn't tell me at the time that it was diverticulitis, so when I would have that same pain in my left side sporadiclly I didn't make the connection. Had another bad infection the beginning of June, which is when the Dr told me just what this was and told me to eat lots of fiber and avoid nuts, seeds, and kernals. It had come back twice since then (three times in a little over two months). I am seeing my PC tomorrow to discuss a referral to a gastroenterologist.

These are my questions: Is it typical to have so many episodes in such a short time? I took a full course of antibiotics each time. I discovered that Cipro wreaks havoc with my blood sugar, which is a concern as an insulin dependant diabetic. I am afraid that so many infections so close together might mean that I have something serious going on in there and may lead to surgery.

Does it always take ya'll a loooong time to recover from a bout of diverticulitis? It seems it takes a week to ten days to clear up the infection, but I am very weak and very easily fatigued for another couple weeks after that. I don't bounce back like I do from other ailments.

People seem to take delight in sharing horror stories about their friends and family who have dealt with this. I've heard stories about colostomies and about gangrene. Just what I want to hear! LOL How common is it to need a colostomy, even temporary after a resection? And how would you KNOW if you had gangrene? These 'friends' have scared the spit out of me!!

I don't want to get too long winded on my first post but I would appreciate any input I can get. Thanks in advance.

 
Old 08-18-2008, 08:00 AM   #23
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libloom HB User
Re: Post Sigmoid Resection Diverticulitis

Hi Kinselmom.....

Rule of thumb is that surgery is recommended after 2 or more diverticular abcesses. Better to have it done electively...rather than on an emergency basis. If an abcess perforates and spills into the abdominal cavity, a temporary colostomy is done. Then, when all is healed and "clean," the procedure is reversed.

You definately need to see a gastro doc, who should order up a CT scan.
I'm surprised that you've been diagnosed with Diverticulitis without having had proper diagnostic testing. You don't mention whether or not you're on Flagyl...along with the Cipro? The Flagyl is specific to intestinal bacteria. Awful stuff, but necessary.

Yes, it is common to have "flare-ups" regularly but, as mentioned, it is wise to have the diseased portion of the colon removed. Your body is fighting the infection which makes one weak and fatigued. I was hospitalized and put on IV antibiotics for 5 days....and then on oral Cipro/Flagyl for another 2 weeks. My surgeon wanted to wait for the inflammation to subside before he "fixed" me. I felt better than I had in months heading into surgery...

I hope you get an appt. with the specialist soon. This condition is nothing to fool with, but can be managed. The surgery is no big deal....honestly. As you may have read in previous posts, a lot of us felt like ticking time bombs. A lot of folks have to have the surgery done as an emergency but a lot don't.
I, like so many others, opted (no choice really) to have the surgery knowing that the time bomb could be eliminated.

Good luck and keep us posted,
Linda
P. S. Don't listen to the horror stories! Focus on the positive and feel better!

 
Old 08-18-2008, 08:47 AM   #24
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Re: Post Sigmoid Resection Diverticulitis

I haven't heard the gangrene one but I have heard a lot about colostomies. I had a ruptured abscess last year after about 6 infections in a 2-year period. I did not have to have a colostomy or emergency surgery, I was in the hospital for 11 days and then they sent me home with antibiotics to "clean" me out. I had the surgery about 3 months afterward.

I still do have pain flare-ups and I've wanted to have diagnostic testing done, but was told by both my surgeon and my PCP that I had to go to the ER with pain before I could have a CT scan done. It seems ridiculous to be trotting to the ER every time I have pain. I'd be spending half my life there...but I have NEVER regretted having the surgery. I firmly believe it saved my life.

And truly, the surgery was much easier to recover from than the infections. The reason? You don't feel sick anymore! Yes, there's post-surgery pain and a recovery time, but no more sick feeling, no more nausea, no more twinges and stabbing pain in your lower left abdomen. It was a Godsend.

And this board was a Godsend as well. I don't think I would have made it through as well as I did without it. These people are wonderful.

 
Old 08-18-2008, 12:36 PM   #25
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Re: Post Sigmoid Resection Diverticulitis

Thanks for the responses. I think I found the right place for answers and support. I have not had any diagnostic tests, other than a colonoscopy three years ago (before the first big flare-up) which showed diverticula. I guess my PC has based his diagnosis on me having the classic symptoms. He's been my Dr for many years, knows me and my medical history. I am NOT the type who goes to the ER unless I think I may be actually dying. I just deal with the pain til I can see my Dr the next day. For the previous infections he has prescribed Flagyl and Cipro. The Cipro does terrible things to my blood sugar, which in turn makes it harder for my body to heal. This time around I am on Flagyl and Levaquin. I am seeing him this afternoon specificlly to discuss a referral to a specialist. I want to get this taken care of. It is consuming too much of my life!!

 
Old 08-18-2008, 02:30 PM   #26
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Re: Post Sigmoid Resection Diverticulitis

Kinselmom-you will find alot of support here. I found this site invaluable when I was at the stage where you are now. I found answers, validation of my decision to have the bowel resection, and alot of times it just felt good to know others understood what I was going through! good luck today and keep us posted.

 
Old 08-18-2008, 05:27 PM   #27
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Re: Post Sigmoid Resection Diverticulitis

Saw the Dr. I am scheduled for an abdominal/pelvic CT scan with contrast on Wednesday to be followed up with an appt with a gastroenterologist asap. I'll keep ya'll posted. Thanks for the support!

 
Old 08-18-2008, 06:06 PM   #28
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Re: Post Sigmoid Resection Diverticulitis

Good news! Good luck to you......

Linda

 
Old 08-19-2008, 07:13 AM   #29
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Re: Post Sigmoid Resection Diverticulitis

I had 2 back to back bouts of diverticulitis in September and November of 2006. The 1st time I thought for sure I had an ovarian cyst and didn't go to the hospital for several days. By that time, my colon was perforated. Luckily they caught it just in time and I didn't have to have a colostomy. My 2nd bout came on quick, and as soon as I was registering a fever I headed to the ER, but I was already perforated again. I had my surgery done lap as well. I guess I'm the odd one here, but I didn't think that the diverticulitis pain was all that bad, but the surgery was awful. I remember being in the hospital for rounds 1 and 2 thinking "God I'm bored. Why am I here? I don't feel sick." True, there was pain, but maybe I have a high pain threshold because I've had dozens of surgeries and live in daily chronic pain. Just a month ago, I started having that same old nagging pain and developed a low grade fever 2 days before vacation. I freaked out, but decided to just take it easy and go on vacation. I guess everything cleared up on its own because I've been fine since. I hate the thought that this can come back. My surgeon told me only 3% ever have it return. Gee, guess I won't be going back to him if I need him huh?

Tina

 
Old 08-19-2008, 10:34 AM   #30
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Re: Post Sigmoid Resection Diverticulitis

Quote:
Originally Posted by emsmomtina View Post
I had 2 back to back bouts of diverticulitis in September and November of 2006. The 1st time I thought for sure I had an ovarian cyst and didn't go to the hospital for several days. By that time, my colon was perforated. Luckily they caught it just in time and I didn't have to have a colostomy. My 2nd bout came on quick, and as soon as I was registering a fever I headed to the ER, but I was already perforated again. I had my surgery done lap as well. I guess I'm the odd one here, but I didn't think that the diverticulitis pain was all that bad, but the surgery was awful. I remember being in the hospital for rounds 1 and 2 thinking "God I'm bored. Why am I here? I don't feel sick." True, there was pain, but maybe I have a high pain threshold because I've had dozens of surgeries and live in daily chronic pain. Just a month ago, I started having that same old nagging pain and developed a low grade fever 2 days before vacation. I freaked out, but decided to just take it easy and go on vacation. I guess everything cleared up on its own because I've been fine since. I hate the thought that this can come back. My surgeon told me only 3% ever have it return. Gee, guess I won't be going back to him if I need him huh?

Tina

Tina,

My hot shot surgeon (all the doctors go to this guy, has won all kinds of awards etc) told me the same thing except he quoted only 10% of his patients have reoccurances. Yeah well if figures I am a 10 percenter .

All and all I did feel really good before this last bout. I am disappointed it did not last very long which is very upsetting. I see my specialist again this Thursday (8/21) and the surgeon that did the resection on 9/4. Needless to say I have a whole book of questions for Dr.Wonderful. I do understand that this can reoccur but I am totally confused on why within 4 months of surgery. I was doing everything right. Must be me being a 10 percenter.

If they say more surgery I would do it again. It makes sense to have some peace of mind knowing you are no longer waiting for the a bomb to go off.

As horrible as this may sound. It is very comforting to know I am not the only one that has had issues after surgery. What would I do with out all of you??

 
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