Originally Posted by joesgirlmillie
I am facing my 11th operation now, where my colon is being removed or il end up with a stoma. I was fed up with my surgeons i actually did reserach myself on the internet and am now under a fantastic surgeon who has given me faith back. PM me if you wish to read my website
Wow 11 surgeries that is alot ...I wish you all the best. I myself have gone through only 1 colon surgery were they completley removed my large intestine( to much polyps) . I was suppose to come out with an ilieostomy but at the age of 22 I would have rather died then have the pouch so my doctor made a deal with me that if I went through surgery they would reconnect me, as the next step was colon cancer. So The deal was struck and 18 yrs later with the help of the wonder drug REMICADE I have been feeling amazing no pain..Remicade if you have not tried it I would advise you do.....it maybe expensive but you would not likely have to go under the knife again.
I did end up getting a fissure and abcess after the fact but the come and go within a few day. Cause now that my body has built up a immune to the REMICADE they have started me on HUMIRA...same medicine differance is humira is made from human protien while remicade is made from mouse protien but works better on Crohnes patients.
The reason I'm telling you about these drugs is I'm an extremely stubborn person...I refused to listen to the doctors when they told me I had to go through surgery....I fought with them for 2 yrs in that time I was so sick I was literally on my death bed (reason why the deal was struck) I knew they were going tocome up with something that will eventually help without havinhg to go through surgery...and trust me if you have not been on Remicade get your doctor to get you on it and see how fast you feel better and all the energy you get...not to mention no more surgeries. Here (Calagary, Canada) once someone is diagnosed with Crohnes they are immediatley put on remicade. To avoid future surgeries.
My specialist is involved and was involved in the research or Remicade so he is highly recognized.