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Old 12-18-2008, 12:59 PM   #1
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elley HB User
Smile I Survived Sphincteroplasty Part 11

Hi Everyone,
Hope you all find this new thread.

Elley

 
Old 12-18-2008, 01:10 PM   #2
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Re: I Survived Sphincteroplasty Part 11

Spring I'm doing better, but this surgery is most definatly the longest and most time consuming surgery I have ever had. I really have to be careful of what I eat or don't eat cause if I get careless, then I pay for it. Somettimes it takes a while to get back on track. I'm glad you are doing better.
Elizabeth I'm glad your doctor visit went good and he put your mind at ease. But don't forget to take it easy.
Kim, it sounds like you are really doing good and back to all your activities. Thats very encouraging.
Hope you all have a great Christmas

Elley

 
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Old 12-21-2008, 01:20 PM   #3
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Re: I Survived Sphincteroplasty Part 11

Thanks Elley,
I wasn't sure how to start a new thread and took a bit to find this one. I just wanted to wish everyone a MERRY CHRISTMAS and a blessed and a much healthier year to come. Everyone take care and enjoy every minute of your holiday with family and friends.

Tbear

 
Old 12-21-2008, 06:00 PM   #4
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Smile Re: I Survived Sphincteroplasty Part 11

Tbear how are you doing?
elley

Last edited by elley; 12-21-2008 at 06:00 PM.

 
Old 12-22-2008, 04:54 AM   #5
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Re: I Survived Sphincteroplasty Part 11

Elley,
I'm doing good except for the regulating dept. that has been tough, can't seem to keep a good balance. Seems like my body is trying to go every other day now. It makes me nerves if I haven't pooped all day. Had some bad days right after I got out of the hospital, ended up at the Dr. office had x rays, I hadn't gone for almost a week, pure misery. I was hurting so bad I couldn't walk. Solution was 2 enemas. I read everything I can on food and fiber now.
Doing Kegels all the time and getting a lttle better muscle control but still have a ways to go there. Gas control, well what can you say about that one, I was sooo hoping the S-plasty would take care of that but no, too much to hope for, just keep your sense of humor and keep on excercising. The breathing trick Spring talked about earlier, I have done in pure desparation, I didn't know it was an excercise you could learn.
I would try everything I could to avoid an embarassing slip. Have you ever, (before getting up from a couch), planted your open cheeks into the cushion, and let it rip, because you know that getting up from a sitting positon is one of your sure times to loose it. And it's never when your alone (oh no..) always when you are in a group. Life is fun, isn't it? God gave us a sense of humor and laughter for a reason, good idea to excercise those muscles too...
Keep working at it and take care,

Tbear

 
Old 12-22-2008, 10:38 AM   #6
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kim71 HB User
Re: I Survived Sphincteroplasty Part 11

We should write a book! I love Tbear's comment about exercising our pooper muscles and our humor muscles. BUT it's so hard. Sometimes, I sleep on the couch if my gas is especially bad (so my hubby doesn't suffer as much). I totally know that formula of standing up from sitting position for a sure-fire motorboat toot.

Besides the breathing technique Spring mentioned and Kegals, anybody have any other suggestions for dealing with gas. What do you say to folks in earshot? I've been trying to go to the bathroom more often (just to pee) b/c I think it helps release more gas. Any other ideas or tricks?

How's everyone doing? Keep us posted on wound healing, leakage, doctor visits, toot stories, etc. You know all the green-light topics on this board.

Stay strong!
Kim

 
Old 12-30-2008, 09:10 PM   #7
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Re: I Survived Sphincteroplasty Part 11

Hello- I hope everyone is having a great holiday season! I wanted to stop by and post my update. I haven't posted a lot on here but since i seem to be a success story I thought I should share. I had my overlapping sphincteroplasty on 11/4/08. When I had my son in July of 2007 I received a very bad 3rd degree tear and suffered loss of control as a result. I waited a year of agony before finally going to see a dr and am so glad I did. I stayed in the hospital for 2 nights for pain control. The first night was bad, morphine practically every hour. The second night I was on oral percocet with some morphine supplements. I went home Thursday and admit I did not follow rules very well, the percocet made me so antsy I was actually cleaning the house until my mother forced me into my room to take a nap. The pain was very controllable as long as I took my 2 percocets every 4 hours. I admit there were some painful times but I really forced myself to do nothing but lay on the couch. Within 4 days all my external stitches were torn and when I made myself look in a mirror I was revolted to see that i was completely torn down there and could actually see the muscle. Fortunately my dr. assured me that it was ok and since i was so young (32) I would heal quickly. After 5 days my 3 year old daughter came home from her grandparents and again I admit i was picking her up and doing more than I should although I was not driving because of the percocet. 4 days later my 17 month old, who was not walkign, also came home for good so of course I spent a lot of time lifting and chasing him. Again I was still on percocet and taking lots of baths but doing ok. At 2 weeks I stopped the percocet cold-turkey so I could start driving again but was forced to take 1 at the end of each day because I was in pretty bad pain. I asked the dr for a non-narcotic and all she could offer me was Celebrex which made my stomach hurt incredibly bad so I didn't take that and stuck with motrin and 1 percocet at night. I continued with that for about 1 more week and by the beginning of December (less then 4 weeks post-op) I had NO pain, going to the bathroom was a breeze and I was actually able to have sex with my husband and it did not hurt at all. I saw the dr. last week and she told me I still have a lot of healing to do and she can still see a gap in the muscle but time and Kegels should cure that . But honestly I have not felt so much as a twinge of pain in about a month. And the best part- I am now 99% continet! Its true and even the dr. was shocked. She told me that in addition to the tear I had in the muscle, my tone was so low that she was able to put her whole fist through the muscle during the surgery and she "tightened" me up to about one finger. She was not optimistic that I would have full control but thankfully she was wrong!
As far as BMs go, my first one was hell. For the first week or so I was going about 5 times a day and it was painful but i worked through that by reading while I went so I wasn't focused on what I was doing and the pain. A few weeks later I was only going 2-3 times a day and it wasn't painful. After 6 weeks I was back to my normal once a day and no pain at all. I can go to the mall or whereever and if I feel that I am going to have to go- I can just wait and go at home!!!!!!! It is truly a miracle.
I know I am in the minority on here and I am so sorry so many of you have been having such a hard time with recovery but for those of you contemplating the surgery there are stories like mine too. Sorry for the novel here, I just wanted to share my great news.
Happy New Year to everyone!
P.S. My dr. told me I can go ahead and get pregnant in a few months and as long as I have c-section my risks of damaging the sphincter muscle are no greater than any other woman without these problems. However she did say a vaginal birth could be devastating to the area.

 
Old 12-31-2008, 07:47 AM   #8
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Re: I Survived Sphincteroplasty Part 11

Heather
Congrats on the success. I had my surgery in August and am experiencing the same success as you, except for some pain during intercourse yet, but from what I hear that is to be expected. Great news also about getting pregnant......I am going to start trying this summer. So your doctor said as long as its a c-section there are no risks of doing anything to that area? My doctor actually told me that some women choose to have another vaginal birth after going through this surgery...there is no way I would risk that. I am glad to hear though that there are no risks with getting pregnant as long as it is a c-section. Keep us posted.

Hope everyone else has a blessed healthy new year!

 
Old 01-05-2009, 04:35 AM   #9
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Re: I Survived Sphincteroplasty Part 11

Hello everyone,
I was wondering if anyone had had a sphincteroplasty in conjunction with a fistula repair. I had a sphincteroplasty the summer of 07, had a subsequent fistula and now am being told I'll possibly need another sphincteroplasty. I swore I'd never have one again. My MD was terrible and have reported him to the licensure bureau so I"m hoping this MD will at least be more aware of my recovery needs, etc. I guess I'm just hoping my next surgery won't be as involved or painful. I have an ostomy, temporary, as a result of the fistula, so I'm thinking that would make healing easier. Anyone have any thoughts? Thanks for any added info you might have.
Penny

 
Old 01-05-2009, 07:38 PM   #10
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surferdude26 HB User
Exclamation Re: I Survived Sphincteroplasty Part 11

What is sphincteroplasty? What's it needed for? Can it be used in surgery, if a person has an opened line, where there rectum area is? Do you know if, there is a surgery that can be performed, where it tightens the sphincter area at all, from the inside of your sphincter area? Or where the doctors, can stitch up the dilated sphincter, even if it has healed all the way, but still leaves it looking like there is a little of an opening? Please get back to me on this and let me know, if you know of anything on this. Thanks. Take care.

 
Old 01-08-2009, 12:36 PM   #11
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Re: I Survived Sphincteroplasty Part 11

Hi everyone,
Heather: that is wonderful news that you are doing so well! Congrats and all the best to you!! 2009 is looking like it will be a great year for you.
Sbremom: Sounds like you are doing wonderfully, too. Everything healing up ok? Great news that you'll start trying this summer! Yay! I have a lot of anxiety of becoming pregnant again, too; I don't want to "hurt" the repair. So far, most docs have told me it's fine as long as you have a c-section, but I still worry about all the pressure that you get when you're pregnant.
Kim: Hope you are doing well. Sorry to hear about your gas. Have you tried cutting out a little bit of the fiber and seeing if that helps? One thing I find helpful in holding it in is moving my whole pelvis forward when I'm squeezing my butt cheeks. It sounds weird, but it helps keep the area closed, if you will. Other than that, the gas thing is a hard one. I have issues with it too, but I can usually hold the bulk of the gas bubble and just a little slips out. Bleh.
Penny: I think I mentioned in one of my posts to you that I had a sphincteroplasty to correct the muscle as well as a fistula. For the most part, I had the same issues as all of the other girls after the surgery (i.e. wound, stool leakage, pain with intercourse, etc). Good luck to you. Let us know how you are doing.
Surferdude: I am not sure what you mean by "opened line" in your post. During the procedure, the dr. basically cuts the sphincter muscle and then overlaps the ends together so that it is a circle again.
Well, as for me I'm still plugging along, dealing with the leakage and going to PT. I went to see a specialist about the leakage who did some tests and found that the muscle looks fine. She concluded that I most likely have a small amount of nerve damage (even though my larger nerves looked find) which is causing the area to not fuction correctly. Unfortunately, there is nothing they can do at this point, however she did mention the sacral nerve stimulator that I believe Clancey has. She said it is mainly used for urinary incontinence but it being approved for fecal, so she left that out there as an option for me in the future. It basically stimulates the nerves in the pelvic area so that it sort-of "wakes up". I have to think about it because she said the battery is external, so I'm a little wary. Also, it's a permanent implant, so once it's done, it's done. If anyone has any further information on the nerve stimulator, I'd LOVE some insight.
Thanks girls (and guys!) and everyone take good care!

 
Old 01-09-2009, 07:08 AM   #12
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Re: I Survived Sphincteroplasty Part 11

Quote:
Originally Posted by spring08 View Post
Hi everyone,
Heather: that is wonderful news that you are doing so well! Congrats and all the best to you!! 2009 is looking like it will be a great year for you.
Sbremom: Sounds like you are doing wonderfully, too. Everything healing up ok? Great news that you'll start trying this summer! Yay! I have a lot of anxiety of becoming pregnant again, too; I don't want to "hurt" the repair. So far, most docs have told me it's fine as long as you have a c-section, but I still worry about all the pressure that you get when you're pregnant.
Kim: Hope you are doing well. Sorry to hear about your gas. Have you tried cutting out a little bit of the fiber and seeing if that helps? One thing I find helpful in holding it in is moving my whole pelvis forward when I'm squeezing my butt cheeks. It sounds weird, but it helps keep the area closed, if you will. Other than that, the gas thing is a hard one. I have issues with it too, but I can usually hold the bulk of the gas bubble and just a little slips out. Bleh.
Penny: I think I mentioned in one of my posts to you that I had a sphincteroplasty to correct the muscle as well as a fistula. For the most part, I had the same issues as all of the other girls after the surgery (i.e. wound, stool leakage, pain with intercourse, etc). Good luck to you. Let us know how you are doing.
Surferdude: I am not sure what you mean by "opened line" in your post. During the procedure, the dr. basically cuts the sphincter muscle and then overlaps the ends together so that it is a circle again.
Well, as for me I'm still plugging along, dealing with the leakage and going to PT. I went to see a specialist about the leakage who did some tests and found that the muscle looks fine. She concluded that I most likely have a small amount of nerve damage (even though my larger nerves looked find) which is causing the area to not fuction correctly. Unfortunately, there is nothing they can do at this point, however she did mention the sacral nerve stimulator that I believe Clancey has. She said it is mainly used for urinary incontinence but it being approved for fecal, so she left that out there as an option for me in the future. It basically stimulates the nerves in the pelvic area so that it sort-of "wakes up". I have to think about it because she said the battery is external, so I'm a little wary. Also, it's a permanent implant, so once it's done, it's done. If anyone has any further information on the nerve stimulator, I'd LOVE some insight.
Thanks girls (and guys!) and everyone take good care!

 
Old 01-09-2009, 08:06 AM   #13
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Re: I Survived Sphincteroplasty Part 11

Hi spring o8!!! I submitted my first post yesterday under "rebuilding anal sphincter muscle from leg muscle" but was laying awake last night thinking that i should share my experience of having an overlapping sphincteroplasty a week ago. Even though i went though all the special testing prior to the surgery(failed all including nerve test) the dr. Did not expect to find that my sphincter muscle was 90% damaged. He said it is like a rubberband that has been stretched out so he closed me up and now i await the next operation. As you all know what kind of life we have aside of our bathroom and our so called diaperbag for when we have to stray away from the house, it is no life at all. My family did not want to tell me, even though they knew right after surgery. I am trying to find some answers( dr. Had said something about a nerve stimulator when i was in the hospital) and saw it mentioned in springs post). For the sphincteroplasy i was in the hospital for four days. That was so they can pump you full of iv antibiotics to ward off infection and then when you can tolerate the pills switch you over. That includes the pain pills also. I did not feel there was as much pain as i thought there would be but then again there was no muscle left to pull tight. I have read other posts and everyone seems to wear guaze over the drain. I was told to shower with the showerhead after every bm or leakage and when i was taking an actual shower just to let the soap run down to the drainage area to clean. He did not recommend the sitz baths because you have stitches that dissolve on there own and sitting in the water will dissolve them faster. When you come out of shower to pat area dry and to wear a maxi pad. I found out that the cotton top one is the best as opposed to the plastic covering, as it dosen't accept the leakage as well and makes it very itchy. I have always had the exact opposite of others as to what my bm's are like. I have no warning now since the muscle is so damaged as to when i need to go, so diapers were the only option when i went out. From constantly cleaning myself up after accidents and in between the leakage i was always so raw and swollen from the wiping from baby wipes. Toilet paper does not cut it anymore if you know what i mean!!!! I have read other posts of other women who have been post op for 4 months or so and have returned to work. Holding it makes matters worse. I belive that wiping does also since i find that wiping and wiping just stimulates the muscle so that it keeps on leaking . I feel i did more damage to the muscle by wiping. When my dr. Had told me before my surgery that this procedure would only last five years i had vowed to baby it as long as i could. That is when i swore off baby wipes forever. I had planned to take a hair dye bottle with a slanted tip to work with me along with soft white washclothes and balenol hygienic cleansing lotion. The bottle i would fill with warm water and keep repeating until i felt clean enough. Then pat dry and use the lotion and pat again and use maxi pad to catch any drainage or leakage. As far as a fiber supplement he said to use it even though i don't need a laxative it will bulk me up so i drink it with 1 tablespoon per 8 oz of liquid and it seems to be helping. No sitting on a donut, it pulls at your stitches as opposed to a cushion. I sleep in a fetal position at night and i sleep until i need to get up and change my pad and underwear from leakage. The whole thing in a nut shell is to keep area as dry as possible which will help ward off infection and promote faster healing. I hope i helped someone with my experience. I was thankful to find this website before i went into surgery since it relived my stress level by just being educated from others past experiences. I am hoping i can find someone who is or did face my next surgery. Thanks everyone!!! Katliz

 
Old 01-09-2009, 05:11 PM   #14
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Re: I Survived Sphincteroplasty Part 11

Hi everyone,

My name is Kelley, if you read all the way back to the initial thread from 2 1/2 years ago--it's me who started it! I had lateral sphincteroplasty, perinealplasty, and levatorplasty 2 years ago! I was suprised to still see the thread going, but I am so glad that starting to talk about this issue almost 3 years ago has helped so many people! I just wanted to give a ray of hope to everyone facing this. I of all people, read all the statistics and wasn't very comforted by the long term outcomes of what I found. For this reason, I will continue to update on myself.
I am doing GREAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I have absolutely no problems with leaking since my surgery. 2 Years post op and I completely have my life back. It was a very long road to get where I am now, but please don't lose hope, I am a complete success story. The only thing I can say is that I do still watch my diet carefully, balancing fruit, fiber, and veggies, and I do still have to do some toilet gymnastics while having a bm do to nerve damage and poor pushing power. Other than that, my bottom is far from my mind most days! My colorectal surgeon was wonderful, and I have no regrets in doing the surgery. I have not kept up with the thread very well, so I don't know your individual stories, but I wanted to give you all some insight from a happy patient 2 years post op. Best of luck to you all.

Kelley

 
Old 01-09-2009, 07:36 PM   #15
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Re: I Survived Sphincteroplasty Part 11

Hi Kelley,

Your input was so encouraging, thanks. How is your gas control and what helped you the most with attaining it.
Spring, I'm glad you are doing better and I hope you get the info you need for the implant.

Happy New Year everyone,
Elley

Last edited by elley; 01-09-2009 at 07:37 PM.

 
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