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Old 02-12-2009, 02:45 PM   #1
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Gloria1253 HB User
Surgery for Severe Chronic Constipation

Help please- I'm new to this and any advise is welcome. My colon just does not work. Like "the Hotel California" things can enter anytime they like but will never leave. A few years ago laxatives were no longer effective so the doctor told me to use enemas. I'm always uncomfortable and have to spend too many hours trying to poop. I really feel such shame around this issue but I need to talk to anyone who can give me some advice. I've been to 6 different colorectal specialists, surgeons and/ or gastroenterologists. After all the talk and tests, the recommend removing the colon and reattaching the ends with an anastomosis. Has anyone had this type surgery and how are you doing. It's very radical and scary but getting too hard to live like this.
Any comments appreciated. Thanks

 
Old 02-12-2009, 03:22 PM   #2
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kennyboy HB Userkennyboy HB User
Re: Surgery for Severe Chronic Constipation

Blimey, a bowel re-section for constipation? They usually resort to that sort of surgery for more urgent and dramatic complaints, cancer being the main one. But as you have seen so many specialists they can't all be wrong can they? From what I understand you will have to have an external bag attached for a short period so that your tubes can heal in good time and then another operation is performed later on to get you back to how you were but this time with a joined-up working colon, if slightly shorter.

I know a few people who have had a similar operation and they lead normal lives again. You will have to watch what you eat and outlaw all processed foods and a few other things as well but you will be given expert advise on diet by your medical team.

Medical science can work wonders these days so don't worry too much although I understand fully your anxiety and would be just as concerned myself even though I know the chances of success for this operation are really good. Good luck and let us know how you get on. It's always good to read about success stories with these sorts of things because we never know when it might be our turn to have this operation....there but for the grace of god.....

All the best, kennyboy.

 
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Old 02-15-2009, 03:21 PM   #3
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NoRelief HB User
Re: Surgery for Severe Chronic Constipation

I am going through a similar thing. I do have BM's but they are rarely what I would call "successful" and I am still uncomfortable all day and night. I cannot work because of it. I cannot go out to functions/meetings/dinners etc. A bag is looking good!!! I am seeing my third gastroenterologist now. I can see I will be getting a referral to another one soon. This one doesn't seem to believe anybody suffers like this. He thinks I am making it all up. The colonoscopy did not find any problems. But the physio found I had a non-relaxing pelvic floor. I have worked on this, and it helped a lot but it is not the total answer.

 
Old 02-18-2009, 01:46 AM   #4
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sookie1108 HB User
Re: Surgery for Severe Chronic Constipation

Quote:
Originally Posted by NoRelief View Post
I am going through a similar thing. I do have BM's but they are rarely what I would call "successful" and I am still uncomfortable all day and night. I cannot work because of it. I cannot go out to functions/meetings/dinners etc. A bag is looking good!!! I am seeing my third gastroenterologist now. I can see I will be getting a referral to another one soon. This one doesn't seem to believe anybody suffers like this. He thinks I am making it all up. The colonoscopy did not find any problems. But the physio found I had a non-relaxing pelvic floor. I have worked on this, and it helped a lot but it is not the total answer.
Hi, I also have bad constipation ie a week up to 10 days without visiting the toilet but i do not have symptons as bad as yours. I have been living with it for years but thankfully i have no break-outs, etc. However, it affects my weight management! Thankfully my friend intro me some patches to patch for detox and it has regulated my BM. I am visiting every day if not every other day. I am off the patches for 1 mth now but the routine remains.

 
Old 02-18-2009, 02:09 AM   #5
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deb54 HB User
Re: Surgery for Severe Chronic Constipation

Gloria1253,

I'm new @ posting. I'm currently 1 week post-op from a small bowel obstruction surgery. Lot of pain going on over here. About 7 yrs ago things stopped wanting to come out,[what goes in must come out] so I started dropping foods: no pasta, rice, bread, pastries, and increased fiber. I still eat 60 to 75grams of fiber a day. My bms were slow and hard to come out but eventually it happened. My first emergrncy surgery was 5 yrs ago, small intestines tied in a knot, necrotic, infection, almost died. For a couple years thing were a bit better then the slow down started again. Never saw it coming. Last week, more surgery. And for me this will continue to happen due to scar tissue that forms so aggressively in me.

I assume you have a "do not eat "food list. I assume you know that you are not celiac.Even testing negative for celiac does not guarantee you are not. Tried a gluten free diet? I suppose all of this has been ruled out. Have they given a name to your type of bowel disorder? When is this surgery scheduled?

Know your pain and concerns.Perhaps a surgery to repair before long term damage occurs [like mine] is best. Keep us up to date.

deb54

 
Old 08-17-2009, 05:19 PM   #6
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catastik HB User
Re: Surgery for Severe Chronic Constipation

Hello Gloria1253. My mom has the same issue - she says that all the time "my colon just doesn't work!" I just posted a message out here for the 1st time today....you can read all the details! The dr said she has a non relaxing pelvic floor and she needs an "end sigmoid colostomy". It's a major surgery and I want to get a 2nd opinion before she goes thru with it.... I know your post is a little older now....have there been any updates in your treatment?

 
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