It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Bowel Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-10-2009, 02:38 AM   #1
Member
(female)
 
Join Date: Sep 2008
Location: bath
Posts: 53
joesgirlmillie HB User
Has anyone else had left colon removed or illestomy bag?

if so please give me any advise as Im facing having that op done now after 10 unsucessfulm ops

 
Old 03-14-2009, 01:33 PM   #2
Junior Member
(female)
 
Join Date: Mar 2009
Location: Florida
Posts: 14
badexampleJen2 HB User
Re: Has anyone else had left colon removed or illestomy bag?

i have a permently ileostomy, entire colon, rectum and part of small bowel removed. 1st off, the pouch you wake up from surgery with and the one you wear until you heal up is scary looking. Once you heal, you can choose a smaller, opaque pouch that isn't see through and can be folded in half and tucket into your underwear. When I was measured for the stoma, it looked pretty low below my waist. But the wafer is another couple inches higher so it was above my waist and showed above my jeans. I had it done again and had them put it as low and close to the center of abdomen as possible. I am not going to lie, or blow smoke; it sucks and I was really upset at first. Little by little it got easier and easier to the point where I hardly ever think about it anymore. One thing that's going to help A LOT is this: Get the LARGE bottle of M9 ostomy deodorizer drops, and also ask the med supply store for either a sample bottle that is small enough to fit into a pocket or purse, or the small 1-2 oz bottle. It's cheaper that way and you can refill from the big bottle. The big bottle costs about $27, but my insurance covers it and it lasts for a month or more. Totally worth every penny. Emptying an ielostomy pouch is very smelly, and it's hard to go out and be social when worrying about the smell. The M9 is a miracle, it kills probably 99% of the odor. PM me with more questions as I am sure you have a million more and good luck to you.

 
Sponsors Lightbulb
   
Old 09-17-2010, 02:21 PM   #3
Newbie
(female)
 
Join Date: Sep 2010
Location: united kingdom
Posts: 2
mum oftwo HB User
Re: Has anyone else had left colon removed or illestomy bag?

hi for starters why are you going to have an ileostomy for i had a total colectomy 6 years ago for ulcerative colitis and have never looked back im so well now before i had no life that didnt revolve around a toilet ive a stoma and a bag it has its ups and downs more ups than downs i wholly reccomend any one to go ahead have it done if you want your life back

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Has anyone ever had colon surgery? or colostomy bag? Please Help!! adventurer Bowel Disorders 32 12-29-2010 05:11 PM
Has anyone else had left colon removed or illestomy bag? joesgirlmillie Bowel Disorders 5 03-31-2009 08:29 AM
Was anyone misdiagnosed with colon cancer (actually did NOT have cancer)? LAWGRL Cancer: Colon 6 08-15-2007 03:42 AM
Can anyone help with this??? AngelBoBaby Cancer: Colon 2 07-17-2007 08:03 AM
has anyone experienced these symptoms? justlilme Bowel Disorders 0 05-01-2007 08:18 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



flipfleury (33), solofelix (26), rufous57 (19), Babygirl43 (19), ladybud (16), sonray (15), quincy (15), TacomaGuy (14), sjb (13), nomorefissure (10)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (905), Titchou (848), janewhite1 (823), Gabriel (759), ladybud (754), midwest1 (669), sammy64 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 08:20 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!