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Old 04-02-2009, 12:16 PM   #1
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C. Diff

First of all, I'm new here, so "Hello" to everyone. I found this site through a Google search while researching my medical problem.

On Sunday March 1st, I started having severe stomach cramps and uncontrollable diahera that lasted all day and night. I went to local ER after midnight because it had gotten worse as the day progressed. I was admitted and placed on Flagyl and Potassium IV's. They would not give me anything for pain because they did not want to mask the symptoms. After 3 days in small local hospitol, I was transferred by ambulance to a larger better equipped one. By then my stomach was so distended that I thought I was going to rupture. I was diagnosed with C. Diff which they said was a result of taking a ten day treatment of Levaquin that was prescribed Febuary 18th-27th for a sinus infection. I'm still off work and slowly recovering, still lots of stomache pain and bowels not working normal yet.

A colonoscopy revealed the C. Diff was throughout my entire colon, and the doc said it was the worse case of infection he has ever seen. I was on intervenous Flagyl for those two weeks and took oral doses untill the 26th of March. I have also been eating yogurt daily since I stopped taking Flagyl and was considering taking Saccharomyces Boulardi after reading about it's success rate in helping stop the recurrence of the C. Diff.

I had never heard of this illness pryor to being diagnosed with it, but have read up on it recently. I definately don't want to go through it again, so any advice or info would be greatly appreciated. And also, has anyone else had problems due to taking Levaquin? Usually they prescribed a ZPak for my sinus probs which my insurance paid for, but Levaquin was $160 for 10 pills at Walgreens and my end was $45, the most I ever paid for a scipt with my insurance.

 
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Old 04-03-2009, 02:41 PM   #2
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Re: C. Diff

I had C. diff in 2005 and so far, it has not reoccurred. I also got mine from long term use of antibiotics. The first line against Clostridium difficile is Flagyl. If this doesn't clear it up, the second medication they use is Vancomycin. I took four courses of this without being able to clear it up. Vancomycin is very expensive, with a course running $1,200-$1,400 retail. What finally got rid of this horrible disease was a Fecal Transfer, with my wife being the donor. They transfer the donor's good flora into your bowels during a colonoscopy. A few days after this was done, I was returned to normal.

So far it has still been holding me, but I haven't taken any antibiotics and won't unless I absolutely have to. I do take a daily dose of Probiotics to increase the good flora in my bowels. Yogurt with live cultures is also a very good way to maintain your good flora.

Anyone with questions, please write or PM me and I would be happy to answer any questions I can.
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Old 04-05-2009, 05:03 PM   #3
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Re: C. Diff

Thanks for your info. I'm gradually healing, but very slowly. I did a course of Vancomycin while hospitalized. I received it orally while the flagyl was going in IV form. I've been eating yogurt daily, and am starting a probiotic called Florastor tomorrow. I read some good things about it helping to prevent the recurrence of C.Diff. I agree with you also about not taking any more antibiotics! I would by far rather be sick a week than go through what I've been through in the last 5 weeks.

 
Old 04-05-2009, 06:37 PM   #4
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Re: C. Diff

I also take the Probiotic, Florastor and have since my C. diff was cleared up in 2005. I take 500 mg a day. My doctor told me to start taking it and also to eat yogurt each day.
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Old 04-06-2009, 02:28 PM   #5
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Re: C. Diff

Where have you found the Florastor? I've been looking for it, but haven't been able to track it down in any stores near me. Is it only available online?

 
Old 04-06-2009, 04:47 PM   #6
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Re: C. Diff

I live in the state of Washington and my Pharmacist orders it for me through McKesson Distributors, I think. It's an OTC, so they just keep it for me behind the counter until I need it. Ask you Pharmacy about it and if they don't know what it is, make sure you tell them it's a Probiotic.
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Old 04-07-2009, 08:26 AM   #7
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Re: C. Diff

I got a bottle from my local pharmacy. But it's a small town, so it was $43 for 50 tablets. I tried Walgreens in the nearest town, but they don't carry it. I guess I got lucky by being able to get it locally. You could probably beat that price online though, I guess that's what I'll do before these run out.

Sorry I couldn't be of help, maybe the other poster that's been giving me info here can help you. Good Luck.

 
Old 04-08-2009, 07:29 PM   #8
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Re: C. Diff

My Pharmacy does not stock Florastor on the shelves with the other OTC medicines. Like I said before, they keep it behind the counter and when I need it, I just go in and ask for it. As far as price, I think the last bottle of 50 caps I got was about $40, so the price you paid was not out of line. I haven't checked the price on-line.
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Old 04-09-2009, 06:11 AM   #9
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Re: C. Diff

Thanks again for the info. I figured I was paying twice what I should be paying. That's one of the setbacks of life in a small town. But actually it looks like that's about the going rate.

I'm still improving daily, and scheduled to start physical thereapy on the 14th. I work for the DOT so they want to make sure I can physically get around OK. Going to try and get back to work after that hopefully. My doc says that if the pain and discomfort continue after 2 weeks we are going to do another colonoscopy to make sure all is going OK in my colon. Otherwise I will have one in 8 weeks.

Thanks again for all the advice, it's nice to hear other peoples view on things like this.

 
Old 04-14-2009, 06:37 AM   #10
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Re: C. Diff

Be aware of the C.diff spores lasting for a very long time-make sure you clean the bathroom down regularly until you get the all clear. I have seen it spread in a family with serious consequences.

 
Old 04-16-2009, 06:28 AM   #11
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Re: C. Diff

We have kept things cleaned regularly, especially during the diahhrea phase. I also made sure that we washed our hands vigorously every time one of us had to use the bathroom. On two occasions while in the hospitol, doctors entered my room while I was on the toilet with the IV stand in the doorway, and they literally grabbed the curtain by the front door and pulled it around their mouth and nose so they were just peeking out at me. Sure makes ya realize that they fear it could spread airborne even.....or maybe it was just the smell! LOL That was the foulist smell I've yet to run across, and working with the DOT I've removed a few deer carcusses from the highway that I thought was the worse thing I'd ever smelled!

I also read up on the spores.....and that is a concern. I stopped the flagyl on 3/26/09. And from what I understand, the C.Diff can "rehatch" or whatever up to 2 months. So I'm at the halfway point.

I also have another question......anyone familiar with a class action lawsuit over the use of Levaquin? I've talked to a couple of attorneys, and they both weren't interested in making a case because I survived!! Yep.....that's what they said. One had represented a family that had a death as a result, and the other recommended looking for or trying to start a class action against the manufacturer. Anybody have any experience in this? The way I see it, by purchasing Levaquin, I basically paid to put myself in the hospitol. And now, 7weeks later, I'm in physical thereapy and still slowly recovering, with another colonoscopy coming in the near future to make sure infection is all out. And although I have BCBS, I've accumulated over $35,000 in medical bills already, with over $1,000 out of pocket to date.

Well, thanks to everyone for their advice, and let me know if you have any legal advice also.

 
Old 06-30-2009, 07:24 PM   #12
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Re: C. Diff

I'm well aware of ciff and how its contracted etc....

My questions are:

1. Would gurling gut noises, slightly loose stools and Mild cramping from antibiotics be "normal" side effects or C Diff?

2. I have been taking Florastor as well, and am wondering - could that cause gurgling gut noises meaning that the gut is replenishing good bacteria?
neat factoid: gut noises are called borbyrigmy (sp?)

I am pretty anxious about the chance of c diff......I really dont want to do a stool specimen b/c to be honest I cant handle another health diagnosis on my plate of many right now. I'm starting a new job and trying to cope with other stuff....

If you could give me some feedback that would be so great. I mean mild depletion of good bacteria wouldnt necessarily mean c diff right?

thanks

 
Old 09-25-2009, 10:04 AM   #13
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Re: C. Diff

My son is in the hospital right now with c-diff. The cleaning of his room is almost non-existant. We walked in to visit this morning and there was body fluids on the floor from a drainline placed into an abcess in his intestine (he has Crohn's Dx.) 2 days ago, plus dirty bedpans-2- in the bathroom that had been emptied but not cleaned well at all. That's now been taken care of after us complaining, but if this is so contagious to cause him to be in an isolation room, DUH!!! What are they thinking!! Anyway, I'm new here and trying to find out info on this and Crohn's. He had a small bowel resection and a colon resection on July 19th in a large hospital back home. He was discharged for me to bring him home on August 29th after many setbacks and with a vacuum pump to aid healing. He was home 2 wks and we had to take him back to the ER where he was sent by ambulance to a large hospital supposedly better equipped to care for him with the C-diff. that had developed after his first hosp. release. What can we do to get him on the right healing path when we get him back again? I just learned about the probiotics, but have been encouraging yogurt daily anyway. He's lost 60 lbs. since initial hospitalization due to pain, diarrhea, lack of interest in any foods because of meds and their leaving a "metallic" taste in his mouth. Any help would be appreciated!!

 
Old 09-25-2009, 10:15 AM   #14
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Re: C. Diff

My son is in the hospital right now with c-diff. The cleaning of his room is almost non-existant. We walked in to visit this morning and there was body fluids on the floor from a drainline placed into an abcess in his intestine (he has Crohn's Dx.) 2 days ago, plus dirty bedpans-2- in the bathroom that had been emptied but not cleaned well at all. That's now been taken care of after us complaining, but if this is so contagious to cause him to be in an isolation room, DUH!!! What are they thinking!! Anyway, I'm new here and trying to find out info on this and Crohn's. He had a small bowel resection and a colon resection on July 19th in a large hospital back home. He was discharged for me to bring him home on August 29th after many setbacks and with a vacuum pump to aid healing. He was home 2 wks and we had to take him back to the ER where he was sent by ambulance to a large hospital supposedly better equipped to care for him with the C-diff. that had developed after his first hosp. release. What can we do to get him on the right healing path when we get him back again? I just learned about the probiotics, but have been encouraging yogurt daily anyway. He's lost 60 lbs. since initial hospitalization due to pain, diarrhea, lack of interest in any foods because of meds and their leaving a "metallic" taste in his mouth. Any help would be appreciated!!

 
Old 09-28-2009, 08:58 AM   #15
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Re: C. Diff

Sorry I missed answering some of the previous posts, but I've been hospitalized again. In july a mass was discovered, and after months of pain from that, I had it removed and sent to the Mayo clinic for testing. Still waiting on results. This time the prob was in my small intestine, and they had to remove about 6 inches due to the mass growing into it. That was 09/16/09, so I am still recovering from that surgury. The doc says it was related to the original C.Diff, but due to distension of the intestines, it was probably missed while he was in there to do the colon resection. I just hope we got it this time, I don't think I'll ever be the same again.

And this is to WVHillbilly......small world......I grew up in WV, but am currently living in Kansas. I usually go back "home" for Bridge Day, but doubt I could manage the walk this year, so not sure yet. I wish your son the best recovery possible. Mine has been a nightmare due to the severity of it, and the fact that it was throughout my entire colon, and now it seems my small intestines as well.

And to nrcitygal, those symptoms could be from a mild case of C.Diff from what I've read about it, so the florastor sounds like a good precaution to me, but I would definately see a doc......they can run tests to see for sure, and yes, sadly, one is a stool sample. They actually lost mine at two different hospitals, but a Gastro specialist out of Salina, KS confirmed it was a severe case of C.Diff by looking at the original colonoscopy photos.

Good luck to all, have to go now.

Thanks for the post everyone.

Last edited by moderator2; 09-28-2009 at 02:47 PM. Reason: posted contact info - please read the posting rules

 
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