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Old 04-30-2009, 06:22 AM   #1
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emily42 HB User
How does a person work when they have incomplete evacuations?

Hello~

Can anybody that has this condition tell me how they manage it to be able to work? I have to spend half my day in and out of the bathroom and have smelly gas all day. Even with going to the bathroom all day long (just getting out little pieces each time I go), I still have to do between 1 and 2 warm water enemas a day.

Since I had a sphincter repair over 10 years ago and was told at that time that the sphincter muscle had been thinned out so much by the delivering of my 9 lb 11 ounce girl, now it seems as there is nothing that the doctors can do or are scared to do thinking that they will make me worse. How worse can I be when I don't think that there is anyway to manage this in order to work and I no longer want to be intimate with my husband, because I fear that if we have sex with the pressure that that puts on your bottom that it will squeeze out stool that is ALWAYS in my rectum.

If you have this condition, I would appreciate any input on how you manage these things. By the way, Miralax makes the stool pasty and is virtually impossible to get out and fiber pills/powder cork you up so much that you start reeking of stool.

Thanks,
Emily42

Last edited by emily42; 04-30-2009 at 06:24 AM.

 
Old 05-01-2009, 09:58 AM   #2
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JewelryJulie HB User
Re: How does a person work when they have incomplete evacuations?

I don't have this, but I do have problems going and work. I have IBS with constipation. It is so bad that I get completely backed up and look pregnant as I don't go for weeks. I don't advise adding fiber in your situation. I have started to add probiotics and am doing pretty well. I am actually taking HEAVY duty ones called VSL3. It is available online and in your pharmacy. My insurance didn't pay. I think you NEED to explain how life altering this is and DEMAND that you either have treatment or see a new dr.
I don't know if any of the above is even relevant, but I wanted to add some food for thought.
I wish you healing and health,
Julie

 
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Old 05-01-2009, 03:26 PM   #3
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emily42 HB User
Re: How does a person work when they have incomplete evacuations?

Thank you and I will ask my gastro doc about the probiotic that you referenced here. I am desperate and will try anything. I don't think there is anything that they can do for me except give me a bag. I am still seeking out though, have some upcoming tests and will go from there. I hate to hear that you are suffering. I am so thankful for this website and the support that it provides (although it is addicting though). Thank you again for taking the time to post.

Emily42

 
Old 05-02-2009, 10:14 PM   #4
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Precious55 HB UserPrecious55 HB UserPrecious55 HB UserPrecious55 HB UserPrecious55 HB User
Re: How does a person work when they have incomplete evacuations?

Emily,
I too have problems with working, and my bowels. Before I go to work in the morning I go constantly and have constipation. I'm probably doing all the wrong things, because I have to take an Imodium, simply because I work in a position where I can't run to the bathroom whenever I want. Then, the night before I have my 2 days off I take a laxative (a womans laxative), and lately I have bad cramps when I do. I hate all this as I have never in my 55 years had trouble with constipation. It's always been diahrrea. I would appreciate any suggestions. I recently had an ERMC for blocked Bile duct and was told I had Diverticulosis and Sphincter Of Odi. I dread going to work some days as I never know how my body is going to act.

 
Old 08-25-2009, 07:41 PM   #5
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willfindaway HB User
Re: How does a person work when they have incomplete evacuations?

Quote:
Originally Posted by Precious55 View Post
Emily,
I too have problems with working, and my bowels. Before I go to work in the morning I go constantly and have constipation. I'm probably doing all the wrong things, because I have to take an Imodium, simply because I work in a position where I can't run to the bathroom whenever I want. Then, the night before I have my 2 days off I take a laxative (a womans laxative), and lately I have bad cramps when I do. I hate all this as I have never in my 55 years had trouble with constipation. It's always been diahrrea. I would appreciate any suggestions. I recently had an ERMC for blocked Bile duct and was told I had Diverticulosis and Sphincter Of Odi. I dread going to work some days as I never know how my body is going to act.
I have lived with the diarrhea you describe for more than 30 years, but constipation has never been an issue for me. Imodium was my best friend. I started out with Lomotil, then when Imodium was available OTC, I used that, would gag me so bad! I ask my doctor to give me a RX for the capsules, because the OTC ones did not help me. The RX ones have helped for years. But, I still had accidents on occasions where I had to take a shower to clean up.

When this happens, it is almost always acidic, like I had eaten an orange. Well, I tried eliminating all kinds of foods to see if that was what was triggering it. It did not seem to matter though. The good, bad, and ugly foods did not seem to foretell if I would have an accident. So, I just lived with it, taking my imodium as a precaution when I knew a bathroom would not be available.

About 4 years ago, I began to gall bladder attacks. Man, those hurt! And I have had 3 children. Anyhoo, I thought, great! that was part of the problem and having the GB removed will take care of it. But, back in my mind, I thought of the many years that I have had this problem with diarrhea w/o the GB attacks. Well, about 6 months after the surgery, here comes the attacks again! I thought, well, what is this? My GB is gone, so why would I still be having attacks. I began my research and would take all kinds of suggestions to my doctor.

Where I lived there was not gastro specialist. So, at that time, the doctor did not connect the diarrhea to the attacks of pain in my RUQ radiating to my back. I would go to the ER and it was if they thought I was just making it up to get pain meds because they could find nothing wrong.

There is NO diarrhea with these attacks. And I have tried to pinpoint what brings them on, to no avail. I can be having a beautiful day, eating very healthy and whala, here is an attack!

Well, to make a long story short, they were considering taking my appendix out, not inflamed, but thought that could be causing my pain. THe surgeon said no need to......and.......he could stop my diarrhea, but could not stop the RUQ pain because I had SOD and that required an ERCP, which they did not do where I lived at the time.(was in the process of relocating to another state). I can't tell you how relieved I was to finally know that what I had actually had a name!

So, he prescribed Cholesytramine. It is a powder form that I drink 2 times a day......and it does take care of the diarrhea. My diarrhea was acidic because it contained bile acid and the drug I take is a bile acid sequestrant. Much like metamucil, except that binds with water, so can not be used for SOD. But it does not stop the attacks or the pain.

I was finally off the imodium. The problem with this med is it interferes with the absorption of the fat soluable vitamins such as Vit A and D. I suffer from osteoarthritis and I take a vit D3 supplement, so I have to time when I take that and hope enough of it gets absorbed to help my body's need for this. And it is very expensive, over 100.00 per month.

I am not having an ERCP done because of the low success rate, would rather suffer the attacks, which I never know when they will happen and take 25 mg demerol tablet if they get past my level of pain tolerance. I hate taking pills!!!!!!!, especially narcotics. But, nothing else less helps with the pain.

I was a breast fed baby and my mother tells me that I had colic very bad. I am now convinced that I have had the disorder for a very long time, which is why I had the diarrhea episodes for so many years and continued after having the GB removed.

After I had my first child, I lost one of my episiotomy sutures too soon and developed a rectocele. Well, after having another child, I had problems controlling my bowels. I went to a doctor about that and they wanted to to plastic surgery with a temp colostomy for it to heal properly. I said no, I would just live with it. I had another child and the doctor tried to repair it as much as he could.

It is odd, most times I can control it, but it seems when there is bile acid involved, that is when I can not control it.

I research natural alternatives to help with the spasms. But it seems there is so little known in the modern medical world of how to stop these spasms, there is very little about it in the alternative world also. I have tried taking enzymes, but that did not seem to matter.

But, my search for a solution is endless and I will not let up until I find one or modern medical technology advances to the point of having a safer and higher success rate to cure this ailment.

 
Old 08-28-2009, 05:19 AM   #6
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Nancy07 HB User
Re: How does a person work when they have incomplete evacuations?

I too would like to know how I can work with my condition - I need a bathroom within 15 seconds of having the urge for a bowel movement (I am incontinent, I guess). I'm hoping I improve in this area after I am fully healed from my sphincteroplasty surgery, however the prognosis is never 100% with this problem.

I used to be a teacher. Are there any teachers out there who have gone back to work with any incontinence problems? I don't think I could be a regular classroom teacher, with no bathroom available. Any success stories?

 
Old 08-29-2009, 08:20 PM   #7
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bessielee HB User
Re: How does a person work when they have incomplete evacuations?

Hello i have much the same problem.I have 2 large hemorrhoids which protrudes with a bowel motion and a slight prolapse.
The way i handle it is, i take 2 durolax bowel pills every night,which cleans me out well.
If i miss the pills, next day i will just have small poos,and seepage.I then get such an itchy rectum if i am not able to wash out my anus.
I am fortunate to have a bidet,which i use a LOT.
I feel sympathy for any one who works with this disability.
I thankfully am retired so its easier to put up with it now.
But i can not travel on buses,and have to avoid going too far from a toilet.
Also i have to always ask for a disabled room at a motel which has a hand held shower,if i go away (which is not much).
I dont know why all motels cant install hand held showers any way.
I know i will have to get fixed up from my complaint,but i am 62 lost my hubby last year after 43 yrs of marriage,and feel vunerable.Kindest regards bessielee.

 
Old 09-21-2009, 08:12 PM   #8
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gardeninggirl HB User
Re: How does a person work when they have incomplete evacuations?

Perhaps you have a rectocele? I have had similar symptoms as you describe and I found, after seeking help for four years, that I have a small rectocele and cystocele. I am having surgery for this Fri., 9/25 and hopefully released Sat. I am told this will help. God, I hope so.

 
Old 10-31-2009, 04:56 PM   #9
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ckedd HB User
Re: How does a person work when they have incomplete evacuations?

I have the same cramps and can never figure out why. I use 15-20 mg of Demerol. I have taken Quinine for leg cramps for year (only when needed twice a month or so.), so I decided to try that with the stomach / intestine cramp. If I can anticipate it right it works. It is hard to get Quinine now, so I order it from Canada.

Corey

 
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