It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Bowel Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 11-11-2009, 04:36 PM   #1
Newbie
(female)
 
Join Date: Nov 2009
Posts: 2
et124 HB User
Tortuous Colon

I'm 17 years old and was diagnosed two months ago with a tortuous colon. I have searched all through out this website for anyone who has the same problem as me and that may have some solutions. I have come up empty handed. Anyone else suffering from this? Any solutions? Anyone else also suffering with anxiety because of having a tortuous colon?

 
Old 06-30-2010, 05:34 AM   #2
Newbie
(female)
 
Join Date: Jun 2010
Posts: 5
leesjoy HB User
Re: Tortuous Colon

Quote:
Originally Posted by et124 View Post
I'm 17 years old and was diagnosed two months ago with a tortuous colon. I have searched all through out this website for anyone who has the same problem as me and that may have some solutions. I have come up empty handed. Anyone else suffering from this? Any solutions? Anyone else also suffering with anxiety because of having a tortuous colon?
I am 59 years old and like you started with bowel problems at a young age.
Due to my age and advances in medicine I was not diagnosed until my early 40's during a colonoscopy which also revealed polyps which were removed at that time and were benign (not cancerous). Yes anxiety develops due to concerns when flare ups will occur, foul gas, bad breath, pain. At your age I know it is a huge concern not to embarrass yourself, the anxiety only increases.
I sympathize completely with you, as an older person and even with a better understanding of whats happening it doesn't stop my concerns over my health and especially worry when around people about gas, running to the bathroom and foul smelling bowel movements when not at home.
Its all to easy to start a pattern of avoidance of people, worry ongoing if your severely ill.
I'm seeing a specialist today so don't know what he will do the help me but would like to communicate further what help is available for our problem.
Hopefully medical advances can now help us.

 
Sponsors Lightbulb
   
Old 07-01-2010, 05:26 AM   #3
Newbie
(female)
 
Join Date: Jun 2010
Posts: 5
leesjoy HB User
Re: Tortuous Colon

I should address your concerns more directly. It is very helpful to become as informed as possible about your digestive system and how it functions. Understanding what is occurring is very helpful. The first specialist I saw many years ago advised me not to chew gum. He stated doing so creates two problems; the first you tend to swallow a lot of air which adds to gas pains, second he said artificial sweeteners literally cannot be digested properly and add to an already stressed colon. Were you given any advise by the doctor what to avoid in food, what is good to eat? Were you diagnosed with tortuous bowel by colonoscopy or barium x-ray?

 
Old 07-01-2010, 03:25 PM   #4
Member
(male)
 
Join Date: Aug 2005
Posts: 75
my2cents2 HB User
Re: Tortuous Colon

How were you diagnosed? I recently had a colonoscopy and the doc said I had a tortuous colon. This after 3 previous colonoscopies that showed nothing of the kind. By the way I have no symptoms - this was a screening colonoscopy. Frankly I think the doc used this as an excuse to load me up on more sedation (I had requested light sedation). Sometimes it's just that the doc is in a hurry and doesn't mean a thing.

 
Old 05-20-2011, 10:40 AM   #5
Junior Member
(female)
 
Join Date: May 2011
Location: United States
Posts: 13
ng1031 HB User
Re: Tortuous Colon

I am 30 years old and have been suffering with GI problems for the last 5 years. They consist of gas, TERRIBLE gas pains, bloating (to the point I dont fit in my clothes and look pregnant), stomach aches, unable to eat dairy or meat (cause it adds to the gas and digestive issues), girggling/trapped air in my chest, chest pains and the worst of them all.. constipation!!

I have had many tests done on me.. to find out the following so far..

1.) Sigmoidoscopy = hemmrhoids internal due to straining, some irritation and redness but biopsies say no cancer
2.) Upper scope = some irritation and redness but biopsies say no cancer
3.) Mannometry = lower esophagus is weak causing the trapped air and pains (taking Aciphex and Gas X for this, avoiding gas causing/acid causing foods)
4.) Empty Stomach Study = stomach is emptying into my bowl a little slower then avergage but still in the normal range
5.) Physical Therapy for pelvic floor dysfunction = possible issue with relaxing my muscles in order to go to the bathroom but therapy did not help my issues go away. Still not the cause of constipation but could be caused by it.
5.) Colonoscopy = torturous colon.. my GI dr was not able to complete the whole thing.. she got to my ascending colon and had to stop. She says surgery is not needed unless there was a knot or blockage but this definitely is why I am experiencing gas, upset stomach and bloating. It can also contribute to my constipation but she believes that my constipation for 5 years is what caused the torturous colon because I did not start experiencing these issues until 5 years ago. She is putting my on high dose of Amitiza (as the Fiber and Miralax seem to make my condition worse and are hard to manage with this issue)...

Now my thing is ok we know what the constipation is causing and doing to my body.. which now this torturous colon is a whole new thing to add to the list.. but......... why is the constipation happening to begin with???

She said she wants me to have a barium test xray to double check the parts of the colon she was not able to see in the colonoscopy to make sure there are no blockages etc. And then if that does not work and the amitiza does not help she wants me to have a bacteria test of some sorts.. where you breath in this bag thing and they can see if they should put you on antibiotics for gut bacteria to regulate you.

5 years of my stomach running my life and I feel every road is a dead end.

Does anyone know the real reasons as to why surgery is not an option for a torturous colon?? It seems its only an option if you have a emergency knot or blockage that forms?? Why not have a surgery that provents that from happening al together?

 
Old 06-07-2011, 09:47 AM   #6
Junior Member
(female)
 
Join Date: May 2011
Location: United States
Posts: 13
ng1031 HB User
Re: Tortuous Colon

Quote:
Originally Posted by ng1031 View Post
I am 30 years old and have been suffering with GI problems for the last 5 years. They consist of gas, TERRIBLE gas pains, bloating (to the point I dont fit in my clothes and look pregnant), stomach aches, unable to eat dairy or meat (cause it adds to the gas and digestive issues), girggling/trapped air in my chest, chest pains and the worst of them all.. constipation!!

I have had many tests done on me.. to find out the following so far..

1.) Sigmoidoscopy = hemmrhoids internal due to straining, some irritation and redness but biopsies say no cancer
2.) Upper scope = some irritation and redness but biopsies say no cancer
3.) Mannometry = lower esophagus is weak causing the trapped air and pains (taking Aciphex and Gas X for this, avoiding gas causing/acid causing foods)
4.) Empty Stomach Study = stomach is emptying into my bowl a little slower then avergage but still in the normal range
5.) Physical Therapy for pelvic floor dysfunction = possible issue with relaxing my muscles in order to go to the bathroom but therapy did not help my issues go away. Still not the cause of constipation but could be caused by it.
5.) Colonoscopy = torturous colon.. my GI dr was not able to complete the whole thing.. she got to my ascending colon and had to stop. She says surgery is not needed unless there was a knot or blockage but this definitely is why I am experiencing gas, upset stomach and bloating. It can also contribute to my constipation but she believes that my constipation for 5 years is what caused the torturous colon because I did not start experiencing these issues until 5 years ago. She is putting my on high dose of Amitiza (as the Fiber and Miralax seem to make my condition worse and are hard to manage with this issue)...

Now my thing is ok we know what the constipation is causing and doing to my body.. which now this torturous colon is a whole new thing to add to the list.. but......... why is the constipation happening to begin with???

She said she wants me to have a barium test xray to double check the parts of the colon she was not able to see in the colonoscopy to make sure there are no blockages etc. And then if that does not work and the amitiza does not help she wants me to have a bacteria test of some sorts.. where you breath in this bag thing and they can see if they should put you on antibiotics for gut bacteria to regulate you.

5 years of my stomach running my life and I feel every road is a dead end.

Does anyone know the real reasons as to why surgery is not an option for a torturous colon?? It seems its only an option if you have a emergency knot or blockage that forms?? Why not have a surgery that provents that from happening al together?
So on week 3 of taking Amitiza.. I don't know if this is worth taking anymore.

Some days I am fine and other days I feel like I have the full blown flu (aches, pains, hot flashes, chills, nausea, etc).

The first week I was on it.. I barely went to the bathroom and it took all week before I went.. I noticed you have to eat a full meal in order to not get nauseated after you take it.. no small meals like toast, crackers etc.

The 2nd - 3rd week on it.. still took a week before I went to the bathroom but when I went it was a ALOT and on and off for 3 days.. the last day though it was diarrhea. And every time I do go I get sick to my stomach/nauseated. I did notice I dont get as bloated and I do have more gas but that is good because I am releasing it (as normally it gets trapped in my stomach and I have horrible pains)

I have a call in to my dr to see if this should be lowered to a lower dose or if I should just attempt Miralax again.. ugh.. this is seriously a nightmare.

 
Old 09-17-2011, 12:54 AM   #7
Newbie
(female)
 
Join Date: Jul 2011
Location: Anaheim
Posts: 2
Janeyoctopus HB User
Smile Re: Tortuous Colon

I found a doctors blog about a tortuous colon. It has helped me immensely. I feel I have my life back pretty much. He said the problems is the colon has to fill up and this helps push the next bowel movements out. It took me a few days and I stayed away from laxatives. I took the colulace though. And soon I was going every morning as soon as I woke up. Because a tortuous colon is longer its important to take a stool softener while the colon fills up again. I have not had a ducolax in over a month and am having very little problems. I also drink a glass of pear nectar every night. I think with all the loops and angles when the colon is empty, the food has to fight its way through when youve used laxatives. But a full colon is easier for peristalis to take place and everything returns to a somewhat normal state. Good luck to all of you who share this awful problem.

 
The Following User Says Thank You to Janeyoctopus For This Useful Post:
tortbow (10-28-2012)
Old 09-17-2011, 03:06 PM   #8
Junior Member
(female)
 
Join Date: May 2011
Location: United States
Posts: 13
ng1031 HB User
Re: Tortuous Colon

Quote:
Originally Posted by Janeyoctopus View Post
I found a doctors blog about a tortuous colon. It has helped me immensely. I feel I have my life back pretty much. He said the problems is the colon has to fill up and this helps push the next bowel movements out. It took me a few days and I stayed away from laxatives. I took the colulace though. And soon I was going every morning as soon as I woke up. Because a tortuous colon is longer its important to take a stool softener while the colon fills up again. I have not had a ducolax in over a month and am having very little problems. I also drink a glass of pear nectar every night. I think with all the loops and angles when the colon is empty, the food has to fight its way through when youve used laxatives. But a full colon is easier for peristalis to take place and everything returns to a somewhat normal state. Good luck to all of you who share this awful problem.
Can you post the link to the doctors blog?

 
Old 09-17-2011, 03:12 PM   #9
Junior Member
(female)
 
Join Date: May 2011
Location: United States
Posts: 13
ng1031 HB User
Re: Tortuous Colon

Has anyone with this tortuous colon been able to safely diet?

Ever since I have had GI issues I have gained weight. I know the bloating that makes me look pregnant most of the week is from the tortuous colon.. but I have gained weight on top of that. I feel like maybe its because my body isnt digesting food 100% like it should. I am nervous to diet as I know if I dont eat enough it will take me even longer to go to the bathroom. The less you eat the longer it takes the food to works its way through all the length and twists. I dont know what I can do to try to lose the weight?

Any suggestions. I want to start exercising again but every time I get into a routine my stomach starts to ache up and then I cant do it or finish. I feel doomed.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
New diagnosis: Tortuous colon? hopetofeelwell1 Bowel Disorders 10 09-17-2011 03:01 PM
redundant tortuous colon janniepaz Bowel Disorders 2 07-23-2010 01:33 PM
Colon Cancer confirmed - Surgery Questions weezee62 Cancer: Colon 3 04-26-2010 11:40 AM
tortuous colon bobski017 Bowel Disorders 0 11-04-2009 11:54 AM
Symptoms of a Tortuous Aorta teddy botones Heart Disorders 1 01-20-2009 06:34 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



flipfleury (33), solofelix (26), Babygirl43 (19), rufous57 (18), ladybud (16), quincy (15), sonray (15), TacomaGuy (14), sjb (13), nomorefissure (10)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (832), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 12:32 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!