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Old 02-05-2010, 03:44 PM   #1
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New to Board**Sphincterplasty scheduled March 1st 2010

Hello All:

I have been searching for a board or blog for the past 6 months like this and until yesterday havenít found anything out there (I AM SO THANKFUL TO FIND YOU ALL)!

I gave birth to my daughter 6 months ago and ended up with a level 4 Episiotomy. The stitches came out 4 days later, I was then referred to 2 rectal specialists and each said this is the worst they have ever seen and we canít help you. I was then referred to UCSF and have been working with them for the past 6 months with very little information. I was told my external/ internal anal muscles have been severed. I was on disability for the first 4 months, but now I am working part-time from home, which I'm sure most of you know having our issues, a new born and working has me going a lot in different directions.

The only thing I have been doing is taking 1 tsp of Konsyl each night before I go to bed, using Calmoseptine cream for my bottom area, found on the internet low fiber food list and have been trying to stay away from gassy foods.

I have a second opinion scheduled for Feb 17th, my husband and I are traveling to the Cleveland OH Clinic.
I really need info about the surgery and recovery. I have been reading some posts; any info and support would be greatly appreciated!

Aly

 
Old 08-26-2010, 01:31 PM   #2
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

Hi! Just wondering if you had the surgery done and how you are doing. Mine is scheduled in a few months and I am scared!

 
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Old 08-26-2010, 10:43 PM   #3
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

Yes, I had my surgery in early May at UCSF! It was the best choice I have ever made in my life. I have returned back to work and my incontinence is 90% better then what is was before the surgery. I still have hickups here in there and have to use a cotton ball on the outside rectal area for leakage. But if that's the worse thing I have to deal with the rest of my life, I'll take it :-). It is a slow healing process and it does take time for the wound to heal. I'm here for you if you have any questions or need support! I know this is a scary time for you, but you need to trust in your high power and have faith your doctor has your best interest at heart.

All my best,
Aly0Aly0

Last edited by Aly0Aly0; 08-26-2010 at 10:46 PM.

 
Old 08-27-2010, 02:25 AM   #4
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

Aly, I'm so happy that you don't regret doing the surgery and that you're doing so much better! I'm sorry that you still have leakage, I hope this will go away with time too.

My surgery is due in October some time (don't have a date yet), and I really hope I won't get additional issues or get worse, I am very scared...But I am determined to do this so I have a chance of getting 100% better.

 
Old 08-28-2010, 10:54 AM   #5
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

You need to be realistic with yourself, you will never be 100% like you were before the injury, but your quality of life will be 80% better than what it is now.

If all I ended up with is leakage, I'll take it, putting cotton balls over my rectum area really is no biggy!

What the surgery did for me is give me back control of my bowel movements, means instead of having 5 seconds to reach a toilet, I now have a few minutes. I still have to take konsyl every night before I go to bed, so I can have solid stool.

My quality of life has changed for the better after my surgery. BUT please keep in mind that what was before the injury will never be the same again. You really need to come to terms with that before you have the surgery. There will be a huge improvement, but not a 100% (like before Injury).

Where are you having your surgery at? Have they given you the details for the type of surgery you will have and the home care after the surgery.

I am here for you through this transition, just keep reaching out!

Aly

 
Old 08-29-2010, 12:55 AM   #6
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

Hi Aly,
Thank you for your reply. I realize that I am not willing to accept that I will never be like I was before....Even though I agree with you, I just wish for an improvement.

My physiotherapist (specialized in kegels/pelvic floor excercises) says that if everything is repaired properly and you do your kegels for the rest of your life, you will become normal again. But on the other hand, what does she know really, she doesn't have this problem.

Do you have nerve damage? The doctor couldn't find nerve damage with me, which gives me hope for a good outcome. Have you seen a doctor about the leakage?

I will be having my surgery abroad (where I live). Thank you for your support. I will definitely be updating after my s.plasty. I hope I will get a date for my surgery soon.

Oh, and may I ask (I've read about this several places) how the opening is now, is it very tight? One woman here was describing the stool being ribbon-like and it taking ages to all come out. I am dreading having this problem and hope it isn't the case with everyone. How was this with you?

 
Old 11-01-2010, 05:07 AM   #7
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Re: New to Board**Sphincterplasty scheduled March 1st 2010

Hi Everyone, I'm back! And am now too a survivor of the s-plasty

All-in-all, so far, things have gone very well. I am now 3 days post-op and came home yesterday. The surgery went well, the pain was worst the day of surgery, so I took morphine. It just made me sleep all the time. The next day I only took regular strong pain killers (tablets). They took out the catheter so I could get up and walk, it wasn't too bad being on pain killers. Now 3 days later I'm hardly in any pain and am at home, DH is taking care of the kids. There is a drainage hole in the wound to keep things from swelling under the tissue. But the whole area feels like it was ground up by a meat grinder, so I can't feel where the hole is and don't really want to touch it anyway. I'm still taking pain killers, but would survive without.

The bowel prep was really annoying, having to be 3 ft. from a bathroom for 12 hours. Luckily I made the bathroom each time, so I didn't need depends. But I would have needed them if I was further from the bathroom, it just came out! The day after surgery I still had some D from the bowel prep, as it apparently didn't empty my bowels completely. I felt slightly better muscle control post-op, but it might only be because of the swelling in the area. The D still just came out though, like a tap I have had no normal BM since the D the day after surgery, so I don't know how things are working down there yet. I'm on lactulose to keep things soft. I wonder when my first BM will come and am quite nervous for its arrival. I'm scared to find out my control is worse....

I'm surprised as to how well this has gone so far pain and healing wise, although I'm still very worried about infection of the wound or stitches coming undone. I'm by no means out of the woods, only 3 days post-op. It will take 2 weeks before the hole in the wound is closed and another 5-6 weeks for everything to be healed properly. So far, this has gone better and easier than giving birth with a 4th degree tear, I have less pain and swelling, and way better than my c-section, which was waay more painful than this.

 
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