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Old 05-27-2010, 06:05 AM   #1
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Loulou3 HB User
Mesh Rectopexy for Obstructed Defication Syndrome HELP

Hi

I have recently been informed that I have Obstructed defication Syndrome and I am due to have the mesh procedure done in Aug. I am 26 years old and have no children so not due to child birth. I have always suffered with my bowel and was told 5 years ago that I have IBS.

After having emergency surgery to remove my appendix last year, it was realised that I have obstructed defication syndrome, cystocele and polocystic ovary syndrome.

I feel alone and really need to speak to people that have had this surgery. I would like to know what to roughly expected after the operation and what the recovery process has been like for others that have had this operation.

I was meant to have had the STARR procedure done in March of this year. However, my GP wanted me to get further opinions from other consultants and I have decided that the best outcome for me at the moment seems to be the mesh procedure.

Many Thanks

Loulou

 
Old 05-27-2010, 06:35 AM   #2
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luckycharms HB User
Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

LouLou, I have colonic inertia, which means I have a slow colon. This issue is easily manageable through the use of miralax....I have obstructive defecation syndrome too and this is my biggest issue. Over the past 5 years I have had numerous tests including, ct scans, colonoscopy, anal manometry test, emg, pudendal nerve studies, defograms, etc.

What are your symptoms?

Finally, last month, I was diagnosed with rectal intussusuception, anismus, and a moderate rectecele...My doctor has recommended a surgery to hopefully help with the ODS.

He is going to remove the intussusecepted part of my rectum, remove the sigmoid colon, and do a rectopexy. I assume the rectopexy is performed with mesh???? I didn't ask though. He will then make me a stoma, a temporary loop ilesotomy, which is a bag....I will have the bag for 6 mos to a year. What this means is that all my poop and gas won't come out of my rectum, but will go through the stoma on my side into a bag.

 
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Old 06-23-2010, 12:06 PM   #3
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rm212 HB User
Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

This message is to Lou. I saw on another thread that you said you were only 26. I am 29 and like you considering both STARR and ventral mesh rectopexy. I am very keen to get in touch with other young people who have prolapse and obstructed defecation sydrome. The reason for this is that the average age of those undergoing all types of rectopexy (e.g. starr and the mesh op) is high - late fifties if not higher - and thus I think there is a distinct possibility that younger people who have not given birth form a distinct demographic with this condition. One gynocologist I saw strongly agreed with this and told me not to go for one of these ops until I'd spoken to other younger women who'd had one of them.

I am not sure if it is possible to get in touch with people individually on this board so I'm posting this. Hope to hear from you.

And luckycharms - That's you Tracy, isn't it?! It's Ruth from the anismus group. When's your op scheduled for?

 
Old 11-12-2010, 04:53 PM   #4
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

Hey guys,

I had a full rectal prolapse last year, after about a year and a half of the MOST traumatizing symptoms: bloody diarrhea, fecal/mucous/intestinal gas incontinence, worsening constipation to the point of what I am SURE was fecal impaction (as I was forced to use digital evacuation methods on a daily basis) and more. All of this began after I fell down the stairs and landed smack on my coccyx.

I am a young woman (27 when I fell downstairs) and have never given birth. The doctors did a full workup and were convinced that because of my anismus, I must be one of two things:

1. anorexic
2. sexually abused.

The funny part is that I am neither of these. But they wouldnt even consider the logic behind my idea that falling down the stairs did SOMETHING to cause all these problems.

They had never evaluated a patient as young as myself with these symptoms. You both note in your posts that young women who havent given birth and have had a rectal prolapse are a distinct and rare finding.

I have a curious question for you: are you guys by chance athletes?

I have a background in physiology, and was on the Canadian National Triathlon Team...and after much research, have found that female athletes are under an increasing and little-known risk for premature pelvic floor dysfunction (hence my anismus) and all of the associated complications. Problem is, docs dont realize this and the truth behind these problems tends to get twisted out of proportion and psychoanalyzed into something that it is not.

Interested to hear your thoughts on the matter.

Any more info on what to do wrt surgery?

Cheers,

-Orco

 
Old 11-13-2010, 03:26 AM   #5
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

That is amazing Orco, I have read of that link too. I read that young women having prolapse was linked to a weak pelvic floor. I discussed this with my father, a fitness enthusiast. He opined that young women were having these problems these days cos of lack of exercise - he's obsessed with lack of exercise being a source of all health problems. I got rather indignant at this cos when I developed my health problems, at 20, I was pretty physically fit, cycling every day, and I've always been weirdly physically strong - it was a running joke with both my friends and family, how I would pick up heavy objects, arm wrestle etc! However I was by no means an elite athlete, definitely not! Anyway I decided to research the link myself to shut my beloved father up, and you are right, there are quite a few papers linking pelvic floor problems with elite female athletes/heavy exercise. But like I said I was never an elite athlete, so did not make the link in my case. THEN I found a few articles (though none in the academic literature) linking abdominal exercises i.e. sit-ups with pelvic floor problems! From the age of 13 to 20, I did about 30 sit-ups a day, on and off. There might just be something in that link. I've quoted from one of the articles below.

"The pelvic floor muscles attach to the pubic bone in front and run underneath the body like a muscular trampoline, inserting into the tailbone and stretching from the sit bones on either side of the body. Heavy lifting, excessive abdominal training and classes such as combat, balance and spinning, can cause serious damage to this structure.

O'Dwyer explains lifting a heavy weight increases pressure inside the abdomen, which in turn pushes down on to the pelvic floor. Sit-ups, curl-ups and double leg lifts, traditionally recommended as abdominal strengthening exercises, also raise internal abdominal pressure.

If the pelvic floor isn't strong and co-ordinated enough to quickly lift and hold to counter this internal pressure during exercise, then pelvic organ prolapse, or misalignment, is promoted"

Were you ever a sit-up enthusiast?

 
Old 01-30-2011, 04:54 AM   #6
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

To those who've had/are considering the laparoscopic ventral mesh rectopexy operation, this might be of interest:

Another lady considering this op told me it was featured on channel 4 on Friday night, the 28th Jan, in "Embarrassing bodies" featuring a woman with external prolapse -see the actual operation itself on the 4OD website at 22 mins 38 seconds in. I won't post a link as I believe it is against the rules of this board. Though if you are very squeamish it's probably not advisible to watch it as it might make you more nervous about the surgery.




I have always wondered about the thinkness of the mesh, cos of what they are stitching it to! - I found pictures of it but there was no scale context in the pictures. Here you see the surgeon holding the mesh - it is quite thick. Interesting.

The lady on the programe seems to have had incontinence but no obstrcuted defecation. The surgeon who you see performing the op on this programme recently did the op on a member of another forum who had this to say when I mailed him about his symptoms pre and post op. He gives a link to the page of the surgeon in question.


"Hi,

I'm actually male which makes it even more rare, Iím 25 years old.

Symptoms before the operation were, excessive flatulence, incomplete evacuation and constipation although stools were soft. It would take ridiculous amount of time to be able to have bowel movement. The doctor got me to try all sorts of stool softeners and laxatives at first. But nothing made any difference. They referred me to the gastroenterologist expecting them to find nothing wrong but for my piece of mind.

On my discharge summary it says:

Presenting Complaint/Reason for Admission:
6 year history of obstructive defecations and pelvic floor prolapse.
Proctogram showed deep recto-anal intussusception.
Enteroecle.

Principal diagnosis
Recto-anal intussuception (almost grade 5) and pelvic floor collapse

Interventions/Procedures and other treatment:
Laproscopic ventral mesh rectoplexy.

I had this operation in Poole near where I live on the NHS with,

Link removed -surgeon was a Mr Andrew Clarke

I'm really grateful for the operation, it has cured most of my problems except the excessive flatulence although it is better. Sometimes I still get the feeling I need to go to the toilet but canít, this seems to be getting better though. I'm unable to go into much detail about the operation as Iím not the most intelligent person and I don't really fully understand it."

Hope this is useful for some of you.

 
Old 03-02-2011, 05:44 PM   #7
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Unhappy Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

Hey

YES: I was (until January 2011) a sit-up/core strength enthusiast (meaning that I did these exercises on a daily basis).

I'm sorry about taking so long to respond to your most welcomed post: I guess u could say that I've been just so fed up by all of this, that I kinda fell off the edge for awhile. But...I deserve to live and be happy as much as anyone: even if I can't eat/go to the bathroom. So, I've been busting my butt (no pun intended!) to FIND a reputable specialist who can inject BOTOX into the puborectalis muscle. I live in Montreal, Quebec. Ideally, I'd love to see someone here: I even settle for anywhere in CANADA. But I cant seem to FIND anyone!!!! Why is it so hard? I feel like I've fallen through the cracks: I'm not Urology, Colorectal, Gynecology, Ob-Gyn, or Gatro. No one wants to treat or deal with me. I hate this! People like us who GET Botox experience NORMAL LIVES. I cant even remember what that feels like! Can ANYONE please suggest such a doctor? So that I can get back to the land of the living?

Sigh

-Orco

 
Old 03-03-2011, 12:40 AM   #8
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

What are your symptoms, currently, orco?

Re the sit-ups...you could certainly believe they might be linked to PF problems...I was big into doing sit-ups....hmm, however, it's pretty common for young women to do sit-ups, isn't it? - quite a few of my friends do them on and off. Maybe not most days for years like I did. However I did them from age 13 to age 20 and had zero bowel problems then (I was 20 when I got the bowel probs, overnight).

Ok, as far as I understand it: botox in the puborectalis might help if you have anismus. Anismus is thought to cause obstructed defecation type symptoms in some.

Rectal intussuception (internal prolapse) is different, and is also thought to cause obstructed defecation in some.

One guy I saw in Oxford thought of all those with Ob def, maybe 10% had anismus and 90% had intussusception. Other docs would most definitely disagree with that.

I've had three tests for anismus. Two were positive and one (in Oxford) was negative, they do the test differently as they think it throws up too many false positives (and indeed I have reaad that elsewhere too). Regardless, I have tried the main treatment for anismus, biofeedback with a probe (neurotrax simplex machine - and it did not help me.

Botox for anismus is not something I've come accross in the UK yet except in trial papers.

< edited >


I hope some of that is helpful.

Who is treating you for prolapse, if you are in the US?

Last edited by hb-mod; 03-03-2011 at 02:27 AM. Reason: Please don't post unapproved website links, per Posting Policy. Thanks.

 
Old 03-03-2011, 12:44 AM   #9
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

Sorry, I meant who is treating you for prolapse in Canada!

Also, you said "people like us who GET Botox experience NORMAL LIVES" - where did you hear this, was in on another forum?

 
Old 03-03-2011, 05:39 AM   #10
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

I should clarify that I have tried the main treatment for anismus, biofeedback with a probe (neurotrax simplex machine) - and it did not help me. These kind of machines can be provided by a nurse or physio usually but can also be purchased online

Botox for anismus is not something I've come accross in the UK yet except in trial papers. I have come across one American lady who tried it but it did not help her I believe. I do not know the name of her doctor unfortunately. I do hope you manage to find someone who does it.

 
Old 06-06-2011, 02:29 PM   #11
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toddsqui HB User
Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

Hi, my name is Todd and I too have been diagnosed with Obstructed Defecation Syndrome. I'm just replying to your post (from June of 2010) where you inquired about people who have had similar difficulties. In August, I had a rectopexy and felt fine for about four months until my symptoms gradually returned. I called my surgeon and he said that he would be willing to do a second surgery, but could not guarantee any marked improvements. I have also spoken to a urologist from NYU medical center who said he would be willing to go through the perineum to perform something similar to a rectopexy (although he admitted that it would be highly experimental given my rare condition). I am only 25 years old and a male (which makes my condition doubly rare). I'm desperate to get this condition repaired because it's ruining my life.

Were you able to get your problems resolved? If so, what procedure/treatment did you select and how has that been working for you?

Any information you'd like to share with me regarding your experiences would be very much appreciated.

Thanks!

 
Old 06-06-2011, 03:15 PM   #12
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

What kind of rectopexy did you have, do you know, Todd? It is crazy but there are over 100 types i was told! Did you have one where they went through the abdomen..and if so was it anterior/ventral only? Or did you have the Starr op, or a resection?

You might want to check ou the thread "i am back to where i was 6 months ago"

Also if you want to talk about anything else eg younger folk getting this please pm me

 
Old 06-06-2011, 11:03 PM   #13
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Re: Mesh Rectopexy for Obstructed Defication Syndrome HELP

Hi Rmac! Thanks for the reply.

I had what is called a "low anterior resection with rectopexy and a bladder sling." I was "officially" diagnosed with an internal rectal prolapse and pelvic floor prolapse. I have heard that they don't even operate with bladder slings anymore. Any truth to this?

Anyway, I hope this clarifies.

Thanks again for the reply!

 
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