To Joanne, you responded to my reply back to you and I accidentally did something in cyberspace and lost your reply and now can't find you. Please resend, I want to hear back. Thank you
Last edited by Administrator; 01-06-2013 at 11:05 PM.
Hello PoppiePalace
Have you had the Ventral Mesh Rectopexy surgery?I had this in December last year but it has not been successful and i am suffering so much more now.Hope you do not mind me posting and asking?
Because I had 3 different repairs at once they used the mesh for the entrocele which was done vaginally but attached my rectum back in place to the sacrum with suctures. And that was done through and incision in my abdomen. I also had a rectocele repair done vaginally at the same time. But I do feel I am worse off now then before the surgery. I thought I had difficulty before the surgery with bowel movements, now it is unbelieveable. I have since tried all different kinds of meds, etc. What problems are you having?
I am horrendously straining on the toilet to try and pass soft poo and a bit might come out but then the rest wont and i have to strain and strain to get it out and doing this i am hurting my bottom/rectum and pelvic pain and i'm also scared i damage my insides and the mesh.I feel really unwell and so uncomfortable in the rectum.I would give anything to have a proper bowel movement.I am waiting to see a specialist nurse to discuss enemas and peristeen irrigation,but i really dont want to go that way.The surgery has left me so much worse off!!
You are living my life. I read an article since the surgery that found that 1/3 of the people they studied who had this surgery were worse off with constipation after the surgery. Wish I had known this prior to having it done. I use Miralax every day or I don't have a BM. Enemas don't work, suppositories don't work. I have had to resort to removing the stool myself when I got too backed up and this puts in complete despair. I am tired of my life being ruled by my bowels. Actually I have no life, no vacations, no career just a small part-time job in the afternoons because takes too long in the morning with all the bowel issues. How are things on your end, no pun intended?
I'm much the same as you.No social life,have not worked for nearly fifteen years!!!My health problems like yourself taken over my life!!One thing i am very thankful for is my very supportive husband but life is very difficult.Do you have support?
Thank you for asking about me. Probably my biggest support comes from my GI doctor. He is working with me on solving the problem as to why am I still dealing with constipation if all "plumbing" is fixed. In other words my constipation was twofold, physiological or functional, had to fix my insides and biological the true underlying cause. He believes I am a case of IBS with constipation and had it been dealt with correctly long time ago my insides wouldn't have gotten messed up to the point of needing surgery. He is at a well know hospital in Los Angeles and is a big researcher in this field. In fact he is working with a drug company now and believes he will have a cure for IBS within 2 years. I saw him yesterday and he won't give up on me. I see him about every 3 weeks. I have tried different antibotics to rid me of small bacterial overgrowth which is a big cause of IBS both with constipation and diarrhea and it actually did make a differnce. The problem is I still have to strain and go multiple times to empty out. I want to just get the urge to go and be done and emptied out. According to his research it all has to do with something about the proteins in our body not the kind we eat and different nerve endings that send signals for things to work properly. People with IBS have a flaw with all the this and the drug being developed will make it all work. In the meantime, he next wants me to try resolor which is from Canada, not FDA approved here. But I have read other people's reviews and it can have some not so pleasant side effects. Any ways the short of this long winded post, is do you have a good GI doctor? As for my husband he unfortunately is not so supportive. He has a great digestive and bowel system. Can eat whatever and whenever he wants and poops like a champ, so he has no concept or empathy. There are days it is pretty lonely.
The following user gives a hug of support to PoppiePalace: Petite50 (03-25-2013)
Poopiepalace, so sorry you are still doing worse after surgery, cos I thought once you found those antibiotics you actually got a lot better - did they effects on your post surgery problems wear off? The doctor you are seeing now certainly sounds really good though.
PoppiePalace
The surgeon who done my rectopexy was supportive enough though surgery has made me worse..He has referred me to a specialist nurse to talk over enemas and rectal irrigation,but oh how i wish my bowels would just work properly or at least let me have a bit of relief.Its awful living like this.As far as i'm aware the nurse is supposed to be very good so at least that will be something.You so need someone who is understanding.The surgeon is keeping me on his clinic list in case i need to consult him again if i dont get any relief or help after seeing nurse,though i dont know what he would do but at least he would see me again.I'm so sorry your husband is not supportive.I am very lucky that way.
Petite50, could you describe in what way the surgery made you worse? How are you symptoms worse after, which one has worsened?
Poopiepalace, I've been on resolor and while it did not help me I heard it helps lots of people. It gives you a headache and extra bloating for the 1st 3 days but this dies off. I remember you saying you had a good improvement with the rifaximin etc, has that declined at all or been maintained - and do you need to stay on it? - or just go on one course?
What kind of proteins do you think the doc is talking about? - did he give you the name of the drug which was being developed?
rm212-My symptoms are worse now as i need to chronically strain even more now since rectopexy and i have more pelvic,backpassage/rectum pain.I always feel as though there is something permanently in my rectum,ieoo!!When i strained before i did get pelvic pain but since the surgery it is much worse,i am not sure if maybe i am still healing in that area though was told back in february everything would be healed.I am in discomfort 24/7 in the rectum,pelvic and stomach areas.
So your problems is increased pain after the op, not increased amounts of stool in the length of the bowel itslef? I was told lately than pain after this mesh op could be due to spasm in the pelvic floor...botox had been used specifically for this i heard. You could raise this with the nurse? If you accept personal messages i will pm you.
More pain yes.I can have loads in the rectum but i strain and strain and it wont pass out.I may be able to get some out but then the rest just wont move or sometimes its just outside back passage and i need to just wipe it away.So uncomfortable all the time.
To Petite50: Have you consulted a doctor to look into the underlying cause of the constipation. I found that the surgeons were great the functionality of the problem but did not get at the underlying cause. I too find that the stool moves through all the proper places now just fine but has difficulty passing out of the rectum without extreme straining. Like you I never feel emptied out and often have to self eliminate, which is gross. But sometimes it is the only way I feel better. According to my GI doctor who is working with me on the constipation or IBS-C through his research he found that the nerve endings are not getting the message to push the stool out and it has to do with some protein in our body that is not working properly (not like a protein we eat, but more chemical based). Of course this is my lay-person's explanation. Maybe you can find a good GI doctor who is willing to work with you to find the underlying cause if all functionality is working. I truly emphathize with your daily misery.
The Following User Says Thank You to PoppiePalace For This Useful Post: Petite50 (03-26-2013)
Been on 3 regiments of antibiotics to date. And yes, they work for awhile but then wear off. I have to say that functionally all seems well. It is the underlying cause of the constipation or IBS-C that I am now attacking with my GI doctor. This is a daily struggle. But he is confident he will have a cure in 2 years and is currently working with a drug company to perfect a drug to take care of us all. In the meantime it is about managing the symptoms. Next and last step is Resolor but read about so many rough side effects, so a little afraid to try it. He says they will wear off and it should help to empty me out. But more importantly, how are you doing?
To rm212: I was on 3 bouts of rifaximin along with twice neomyicin and once with flagyl. The results were the combination of rifaximin and flagyl. The results are good initially but do wear off somewhat, however, not completely. Still better then before the antibotics. I don't remember the name of the protein, it is not something we eat, but more neural/chemical based. Because our gut neural in nature. In fact it is called the "big brain". It is something about a protein on a nerve ending that isn't working as a result what needs to get the message to get the stool out isn't. That is my very crude explanation. And I am sorry but he never mentioned the name of the drug. His biggest frustation of course is lack of funding. I guess there is all kinds of funding for grants for inflammatory bowel disease, but very little for IBS, yet 1 in 10 people suffer from IBS. But he is not going to give up until he has a cure for all of us. In the meantime I just try to manage my symptoms. He does want me to try Resolor. Why do you think it did not work for you?
PoppiePalace:I have consulted a number of GI's over the years and i find that they put everything down to Severe IBS.I cannot believe its just that making me so ill.Its difficult trying to find a good,understanding GI who will listen!!Please keep me posted as to how you get on and whether you get any answers/help.
PoppiePalace:I have consulted a number of GI's over the years and i find that they put everything down to Severe IBS.I cannot believe its just that making me so ill.Its difficult trying to find a good,understanding GI who will listen!!Please keep me posted as to how you get on and whether you get any answers/help.
I had a hernia surgery in 2011 then had problems defacating like you had a manometry test and results were uncoordinated sphincters do you have severe abdominal pain hurts to sit? Do you get relief when you do eliminate? I feel like I don't get complete . Now I strain and don't feel it coming out it just falls out but don't feel any relief. Please let me know. Terlin 55yr male
Terlin:I do not get any relief on the toilet and suffer a lot of pain.It does not get any easier even if i manage to move my bowels through straining which i do all the time!!I also have the feeling of incomplete all the time.Do you use or tried any medicines to see if it helps bowels?Have you saw a health professional about it?
.Hope you do not mind me posting and asking?
oo!!When i strained before i did get pelvic pain but since the surgery it is much worse,i am not sure if maybe i am still healing in that area though was told back in february everything would be healed.I am in discomfort 24/7 in the rectum,pelvic and stomach areas.
Re: Ventral Mesh rectopexy post op pain 
