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Old 03-05-2013, 10:17 AM   #1
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Unhappy Peristeen Rectal Irrigation

I have been referred to a specialist nurse to go through what irrigation is and if i can use it to help me,though i must say i am not keen on it.I had a ventral mesh rectopexy in December 2012 and unfortunately not been successful to the point that i cannot use my bowel/rectum muscles to pass out stools.Its a nightmare and i feel awful.I am straining all the time wish causes me so much pain and discomfort and that is trying to pass soft stools.Does anyone have to do this and have they found anything at all that has helped them ie:irrigation or something else?

 
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Old 03-18-2013, 12:29 PM   #2
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Re: Peristeen Rectal Irrigation

Hi Petite50-I am in a similar situation to you. I am 2 months post-op for my second (unwanted-long story!) rectopexy for obstructed defecation, with no difference to my symptoms-lack of sensation or urge and inability to pass anything without suppositries and movicol. I had tried Peristeen briefly a couple of years ago, but found it a faff and couldn't get the hang of it. My consultant recommended I give it another try, as suppositries are having less effect, and I have sort of got the hang of it. It's time consuming, and uncomfortable, but I am getting some ok results with it. If you decide to try it, would be happy to let you know what works for me. Only problem I have found is sometimes not being able to pass all the water, which makes me uncomfortable and leaves me with a bit of a "sloshy" tummy! If your symptoms are awful it may give you some relief.It really isn't as bad as you think it's going to be, I promise. I'm sure you'll find the specialist nurse a big help. Mine was brilliant at St.Marks hospital, really positive and up-front.
Have you tried Glycerin suppositries? I have used these as the only way of passing any stool for the past eleven years, but they are not as effective since my last surgery. It might be worth giving these a go as they are gentle and easier to use. Good luck - I know how you feel. Wouldn't it be great to just be able to go to the loo normally. Think I'd rather that than win the lottery!

 
Old 03-24-2013, 07:48 AM   #3
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Re: Peristeen Rectal Irrigation

Grambar:Thank you for your post back.Sorry i have not got back sooner.I am going to see specialist nurse about peristeen/enemas in May.I have tried using suppositries but they do not give me any relief,but i try them now and again just to get some evacuation from my rectum though even using them i am straining.I cannot stop that!!Can i ask how often do you use the irrigation system?I agree with you,winning the lottery pales into comparison.I would rather be health!!!

 
Old 03-25-2013, 08:26 AM   #4
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Re: Peristeen Rectal Irrigation

I've never heard of the orr loyge procedure. All my discharge summary says is revision rectopexy - I'm hoping to get more information in a couple of weeks as I have a meeting scheduled. It was not Mr.Lindsay who performed my rectopexy this time round - he did the original, but it was one of his team.

It's so difficult trying to make decisions about these problems, as often the outcome is unknown, and can be so different for everybody. Also very hard for you when you have such different opinions from different surgeons. This is something I have found over the years - which one is right! There's not an awful lot of information out there, and these kinds of problems can be so varied. What a nigthtmare for you. I hope you can come to a decision you fell confident about. Best of luck and I do hope funding is forthcoming for SNS

Last edited by Administrator; 04-19-2015 at 10:18 PM.

 
Old 03-25-2013, 08:34 AM   #5
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Re: Peristeen Rectal Irrigation

Hi petite50-not too long to wait to see your specialist nurse. Which hospital are you under? The nurses I have seen at St.Marks have been brilliant and very sympathetic and understanding. Do you mind me asking if you've had a diagnosis of anything?

I have been using Peristeen most days since I last saw my consultant about 5 weeks ago. I have had some pretty good results, and also times when it hasn't really worked. I have tried to persevere as my nurse had told me previously it may take a few weeks to see some improvement, and it's good to get into a routine with it. I hope you find something that helps. Do let us know what the outcome is. Glad you've replied, felt like we'd taken over your thread a bit - thought we might have put you off! Best of luck and keep us posted.

 
Old 03-25-2013, 08:44 AM   #6
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Re: Peristeen Rectal Irrigation

Gramber
I have for many many years had a diagnosis of severe irritable bowel syndrome,which my doctor said is the cause of all my awful digestive symptoms.Though i do wonder!!I was diagnosed with rectal prolapse last year then had it operated on December 2012 which as you know left me so much worse off.I have wondered for years whether it has just been severe ibs as i have felt so unwell for so long and keep on consulting doctor after doctor in the hope they find exactly what is causing everything.I dont think ibs should make me feel like this day in day out for so many years.Anyway,i am hoping to get some sort of help through specialist nurse in May,fingers crossed!!but staying open minded,i think you need to.I am also going to try hypnotherapy again and maybe biofeedback.

 
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Old 03-25-2013, 09:08 AM   #7
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Re: Peristeen Rectal Irrigation

I had the ventral mesh surgery at Oxford Grambar and I have since learned a number of important things about this surgery. †It would seem that they are very keen on these operations at Oxford but other surgeons are seeing problems caused by these operations and are thinking about how to fix them. †

These surgeries are so difficult.

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Old 03-26-2013, 08:12 AM   #8
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Re: Peristeen Rectal Irrigation

This forum is so useful for looking at other peoples experience, don't know what I would have done had I not found this a couple of years ago.

Petite50, I was fobbed off with IBS for a long time, as GPs actually know very little about these conditions. With my symptoms and history I should have been referred long before I was. I would go and see my GP and know that what they were saying didn't apply to me, and I wish I had demanded a referral sooner. These problems seem to be so complex and there isn't a one-size fits all solution. I hope your specialist nurse can be of help.

r
agrajag I would be very interested to hear more about your experience. I agree these surgeries are very difficult and complex - I haven't read many positive accounts which is worrying. If you feel you can give us more information that would be really helpful. Thanks

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Old 05-12-2013, 11:27 AM   #9
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Re: Peristeen Rectal Irrigation

Hi Petite50 - just wondered if you had seen the nurse specialist yet, with regards to biofeedback? Hope you're doing okay.

 
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Old 05-12-2013, 01:17 PM   #10
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Angry Re: Peristeen Rectal Irrigation

Quote:
Originally Posted by Petite50 View Post
I have been referred to a specialist nurse to go through what irrigation is and if i can use it to help me,though i must say i am not keen on it.I had a ventral mesh rectopexy in December 2012 and unfortunately not been successful to the point that i cannot use my bowel/rectum muscles to pass out stools.Its a nightmare and i feel awful.I am straining all the time wish causes me so much pain and discomfort and that is trying to pass soft stools.Does anyone have to do this and have they found anything at all that has helped them ie:irrigation or something else?
I have no urge to defacate and urinate I'm on miralax and I can feel it starting to fall out but soon is sit down my rectum tightens up and I'm severly backed up causing me extream pain. Can you even sit? My pain is so bad i can't my whole pelvis is on fire. Been through biofeed back things got worse what other options do I have my docs say nothing can be done. My gut is so swollen it's making it hard to breath and my hips now burnining,any suggestions?

 
Old 05-13-2013, 08:08 AM   #11
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Re: Peristeen Rectal Irrigation

I have saw specialist nurse and was given a rectal wash out to try.It is like an enema except you fill the bottle with lke warm water.I must say it empties my bowel a bit but i do not feel comfortable in anyway and it leaves me feeling drained and washed out and my bottom is sore and stomach pains.I have to see the specialist nurse again in June so shall just have to see what she says then.I have a feeling i shall be given the peristeen irrigation system to try,but we'll see.I have not had an appointment for the pelvic floor and biofeedback yet as waiting list so long.At least 5months!!but i spoke to my GP and she has done another letter to say how much i am suffering and can i get an appointment sooner,fingers crossed.
Terlin:You should really see your GP/Doctor as you are in so much discomfort.They may prescribe laxatives or maybe a wash out like i have.Are you going to hospital at all to see health professional about your symptoms/health problems?

 
Old 05-13-2013, 08:47 AM   #12
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Re: Peristeen Rectal Irrigation

Quote:
Originally Posted by Petite50 View Post
I have saw specialist nurse and was given a rectal wash out to try.It is like an enema except you fill the bottle with lke warm water.I must say it empties my bowel a bit but i do not feel comfortable in anyway and it leaves me feeling drained and washed out and my bottom is sore and stomach pains.I have to see the specialist nurse again in June so shall just have to see what she says then.I have a feeling i shall be given the peristeen irrigation system to try,but we'll see.I have not had an appointment for the pelvic floor and biofeedback yet as waiting list so long.At least 5months!!but i spoke to my GP and she has done another letter to say how much i am suffering and can i get an appointment sooner,fingers crossed.
Terlin:You should really see your GP/Doctor as you are in so much discomfort.They may prescribe laxatives or maybe a wash out like i have.Are you going to hospital at all to see health professional about your symptoms/health problems?
Yes I have been through biofeed back and I am on laxitives my rectum is numb and I go every morning but I'm backed up with old fecal mater I can feel my colon spasming all day long it's so bad I can't sit docs now passed me
On to urologist . I also. Have
Neuropathy and very difficult to walk and it even hurts worse to sit. I also feels like is pushing in my diaphram making it hard to breath how about you?
U

 
Old 05-13-2013, 10:52 AM   #13
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Re: Peristeen Rectal Irrigation

I suffer so much pain and discomfort.Never feel comfortable or empty at all.Its very depressing and draining but you really have to keep on trying and keep as positive as you can.I know this can be difficult,but please try.Are you or do you have any hospital appointments to see a health professional about your bowel as you are suffering so much.Do you have someone you can talk to and have for support.What about a support group?

 
Old 05-13-2013, 12:22 PM   #14
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Re: Peristeen Rectal Irrigation

Quote:
Originally Posted by Petite50 View Post
I suffer so much pain and discomfort.Never feel comfortable or empty at all.Its very depressing and draining but you really have to keep on trying and keep as positive as you can.I know this can be difficult,but please try.Are you or do you have any hospital appointments to see a health professional about your bowel as you are suffering so much.Do you have someone you can talk to and have for support.What about a support group?
Please one more thing , can you sit in a chair and does it make breathing difficult, and do you have a problem coughing it feels like its pushing up to my diaphram or my abdominal muscles are so far gone my upper gut sucks in. Please answer me thank you terlin

 
Old 05-13-2013, 02:52 PM   #15
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Re: Peristeen Rectal Irrigation

I can feel uncomfortable sitting when i am in a lot of pain and my rectum is sore.The pain can feel like it takes my breath away at times and i have to try and breath deeply and very slowly until the pain passes.I do not have a problem when i am coughing.You really should try and see a doctor/consultant and let them know how you are feeling.Take care.

 
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