I have just joined this forum, but been reading it for a while. I have had no surgery yet, don't even know if it will be offered, but am already suffering from many of the problems mentioned in this thread. I have a large rectocele and a large rectum. Consultant not sure what to do- proctogram inconclusive. Since I saw the consultant a couple of weeks ago, things seem to have got dramatically worse- needing more Movicol. Also tried a suppository today.Rectal pain and numbness. The consultant may examine me under anaesthetic. I also have another problem which is complicating everything- venous insufficiency- like varicose veins- have to wear compression stockings all the time and elevate my feet as much as possible. I am convinced it was caused by straining on the loo, so from what you are all saying, there is no guarantee that surgery would prevent straining.I just don't know what to do. Surgery sounds so risky, but I can't live like this. I could try Peristeen I suppose, if they thought it suitable for me. Might also try the Milk of magnesia if I can get my hands on it.
The following user gives a hug of support to 21Anne: Petite50 (06-13-2013)
Anne21...I understand totally how you are feeling.I would get the Peristeen Anal Irrigation system and give it a try and see if it gives you any relief.I have been given this though not started it yet as i have saw a specialist physiotherapist to talk through pelvic floor problems and biofeedback again!!but i shall be starting to try it soon.Take care.
Thank you to all of you who gave me messages of support. I have now been offered an examination under anaesthetic, but cannot decide if I want to even undergo this as I feel so ill already. I wanted to ask some more questions about the Peristeen. Firstly, to those who tried it before surgery did it stop any of the pain you were getting? I have bad pain most of the time now, but yesterday, after taking more Movicol than usual didn't have any pain for a few hours. Did all of you have bad pain before your first surgery? I wondered if having water sloshing about inside you might cause the same pain as having poo stuck in there. Also, I was offered a pudendal nerve block. Does anyone know anything about that?
Somebody further up the page( sorry, I find it uncomfortable to sit at the moment, so am trying to be quick) said it didn't matter what you ate, you still get problems- my experience completely- I have tried everything possible, but of course, no matter what you eat- stuff is still going to get trapped in there.
Lots of you sound much younger than me- I had to retire just before 60th birthday, because of this, but I guess I am lucky to have had 60 healthy years.
The following user gives a hug of support to 21Anne: Tanya007 (06-20-2013)
Hi Anne, diet is important with bowel problems. I feel we don't get enough dietary advice with these problems, the consultants tend to look at one aspect the problem and we don't get referrals to nutrionalists. For a bowel to keep moving it needs fibre, I find I need to have a carefully balanced diet, too much fibre not too much or it makes the problems worse. Lack of fibre can cause constipation which is a disaster. Too many harsh laxatives (e.g. Senokot)can have a bad effect on the bowel as well, but with certain opiate painkillers you need laxatives, movicol is good because it's gentle but then everyone is different and you have to find the right balance. I was advised by Dr Eugenicos (motility doctor) that Psyllium husks are good as they keep your motions balanced. Constipation is the worst problem for incomplete evac you have to have a basically healthy diet with plenty of fruit and veg, water/juice and exercise as well, the bowel needs healthy diet and exercise to keep it moving. Whole grain carbohydrates rather than white when it comes to bread, pasta, etc. walking is good, or swimming as its less pressure on the pelvic floor. I find I've got to get just enough fibre but not too much, good sources of fibre are foods made from oats (porridge, oatcakes) great if you're on a diet and balance your cholesterol too. I find a portion of garden peas with dinner keeps me regular! I suffered from constipation as a child, my gran used to give me milk of magnesia, which I hated but it did work! As I grew older I realised fruit and veg kept me regular. Dr Eugenicos gave me another good tip, to put my feet up on a little stool (like a little JML handy stool) when I go to the loo as it gets you in a better position, I find this helpful, most people on the forum will probably know this anyway, but whether surgery will help depends on your individual situation, some people never look back after rectopexy, others have a terrible time after it, it seems to depend on what the original problem was. It's only been 2 months since I had my op., I still have incomplete evacuation, but the consultant said after the op the bowel swells and it takes 6 months for the swelling to go down and so one cannot expect the bowel function to be "normal" until at least 6 months. She said to take movicol for 6 weeks after the op., which I did, gradually weaning off of it. I decided to take the risk and have rectopexy as I was stressed out with the incomplete evacuation, the surgeon did warn me it might not work and now I'm on the kist for biofeedback. Stool gets caught in a rectocele, so now that's gone I hope the biofeedback will sort to the evacuation. Hope you can make the right choice for your health problem.
Tanya, thanks for taking the time to give me so much advice. It is dreadful to be in the situations we find ourselves in and it is great to be able to share your problems with others who understand. Unfortunately the very worst has happened to me. I have become completely incontinent, as of earlier this week. I can't feel any urge to go to the loo, have lost the ability to push at all on the loo, so can only go when I have had enough Movicol, which has led to me spending the last 3 days in the bathroom. I have seen the consultant today, and I am to try Peristeen soon- my last hope.Your advice was very good- the sort of thing I was already doing, but as the consultant said today, my problem seems to have deteriorated very rapidly. Will let you know how the Peristeen goes. I'm deading the next couple of weeks until I get it.
Hi Anne I know most of us on this forum would probably be aware of the importance of diet and exercise, but there might be someone out there surfing the net looking for anwers like i was who might have gleaned some useful info. I am so sorry to hear of this happening to you. It has put my own problem into perspective. Take care of yourself and good luck with the peristeen irrigation, there's good feedback on the net about it, I hope it works well for you, from what I've read on other sites it works really well and relieves people's problems and anxieties.
The Following User Says Thank You to Tanya007 For This Useful Post: 21Anne (06-22-2013)