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Old 10-08-2006, 01:43 AM   #1
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Frankielebunj HB User
Effects of Brain Injury? I need help!!!

I don't know where else to turn. Got raped about a year ago. Head smashed into tiles. Since then, I have developed persistant headaches, constant nausea and vomiting, loss of memory, extreme mood swings and violent outbursts that I can't control, 'blanking out' spells, crying spells, irritability and apathy. Most of the time I don't know what day it is. Sometimes I have to think for a moment about the year. I can barely get through school-can't even remember what sentence I just read half the time. I've had some depression since my teens but NOTHING like this. My physician thinks there's nothing wrong with me. My psychiatrist just gives me more antidepressants which don't do anything. I want to get a CT scan or an MRI but I have no insurance.
For those who have sustained head injury-have you experienced similiar symptoms? If you did not seek treatment right away, then how did you go about it?
I can't talk to my family or friends about this. Am I just crazy...?

 
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Old 10-11-2006, 08:00 AM   #2
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Angel77 HB User
Re: Effects of Brain Injury? I need help!!!

Hi sweetie, been wanting to post to you for a couple of days, but everything was taking too long to pop...and with my tbi, it's more time than I will allow...a little impatient these days.

Anyway, what you are going through is normal for someone with a tbi...but even an MRI or CT won't show a lot of damage that is done. You want to look up something called post concussive syndrome. It will explain a lot. You may also want to research sensory integration dysfunction...I'm guessing that is also a problem for you. Where if too much is going on you just start into meltdown and it's about all you can do to keep from screaming.

Some of these issues may last for months, some years, some permanent. But the sooner you learn what you are up against, the better off you'll be. You'll be able to see a melt down before it happens and do things to correct it.

I realize that the docs think you're nuts, but what you are going through is very real and very hard. You need to find someone who specializes in brain injuries. I see that you are in school, sometimes you can get them involved to help with testing. I can't remember who is it that you will see....are you in high school or college? I will post who you talk to as soon as I remember. But I would talk to the school counselor and ask for suggestions.

What state are you in? I believe every state has a local chapter of the brain injury association. You can also look them up on line or in the phone book. If you don't have a local chapter, call the national chapter and ask for some direction in where to go and who to contact.

Don't give up because if you do, no one is going to help you. You are all you have and you are the only one who knows what's going on in your head right now...and that's frustrating....but unless you've sustained an injury, you can't really understand how stressful it is.

I am wearing down a bit, but I'll check back with you in a bit...hope this finds you well and at least a little bit relieved to know that you are not alone.

Angel
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Old 10-11-2006, 09:14 AM   #3
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Frankielebunj HB User
Re: Effects of Brain Injury? I need help!!!

Thank you so so much for your help, Angel. It seems I can't talk to anybody about this. I went to my counselor last night and they want to check my thyroid first, then check for epilepsy before the brain scans. Ah, it's going to be a long hassle. Like you said, at least I will then know what exactly is going on and how to live with it.
I'm definately going to check out those that you suggested.
What kind of damage have you sustained in your TBI?
I am in Michigan. I am in an assistance program for mental health (counseling and 'medication therapy'), though I'm not sure what kind of assistance there is for medical tests like the MRIs and CT scans; I just know that they are EXPENSIVE.
Do you take any kind of medicine? Do you experience psychiatric problems that you didn't before?
I look forward to hearing from you again.

 
Old 10-11-2006, 11:03 AM   #4
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wmjsease HB User
Re: Effects of Brain Injury? I need help!!!

Not sure what you are going through. Can't help you out on the physical part or emotional part. But maybe the financial part. Most hospitals have an indigent care program or assistance program based on your income. If you qualify, your tests may be free. Most of them don't like to tell you about them though. Call your local hospital and ask them about it. I am currently on one and my blood tests, scans(mris, xrays, etc) are covered for a few months. I don't have any insurance, so this helps a lot. It will not however cover doctor bills and meds. Hope this helps you out some. Keep insisting. I'm having a problem right now that my MD is just giving up on. But I'm not. I'm going to doctor after doctor until I get a diagnosis. Be proactive. You have to. God Bless

 
Old 10-11-2006, 02:24 PM   #5
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Angel77 HB User
Re: Effects of Brain Injury? I need help!!!

I have heard tbi explained in this way....it's an exaggeration of existing problems. While it can trigger something not experienced before, like depression, etc. it can also make it more pronounced if it was already present in a more minor form.

Yes, I have and do experience problems still, but I have learned so much over the last few years that I can often head them off because I'm super aware of what triggers things and try to do things to control my environment to keep from a total melt down. I still have my days though where it's not in anyone's best interest to talk to me.

I have been in 'hibernation' (sp?) the last few months...my son started day care and since I don't have to be a normal, functioning adult during the day, I'm not! But, I'm working on it. I was just recently published in a book about people with head injuries...I guess my interview was the entire forward of the book. I was excited, but to be honest, I had no idea how far this thing was going to go.

I have gone as far as to speak on a national conference call for professionals trying to understand individuals with a brain injury.

You will come into contact with a lot of ***** in your journey...they don't know how or care to listen. I just saw a voc rehab specialist a couple of weeks ago who said she found it hard to believe I have a brain injury because I appear to be smart and I'm not drooling on myself!!!! DUH!!!!! Some people just don't get it.

The smarter you are, the more likely you are to struggle with your injury because you know how much differently your brain responds to things. I have times when I can't even figure out how my stupid shower works. I know I know the information, but it's impossible for me to access it...so I just get out of the shower, get redressed and as soon as the knowledge is available, I jump back in the shower. I just take mental note that I need to remember to rinse out the shampoo!!!! Or it gets sticky!!!

Now, what type of school are you in? Are you in high school, college, what? Have you approached someone at the school about getting help with what you're going through? Sometimes that is the best route to start with.

I will check back with you. I can't remember if you posted how you got injured, but would you mind sharing the entire story?

I got injured at 16 when I fell head first from a horse and damaged the right frontal lobe and had a contra coupe (sp?) injury...basically, bounce back. My injury was undiagnosed for 10 years because no one bothered to listen and I wasn't old enough to really understand what was going on. I just assumed that I was getting dumber by the minute. I also suffered horrid migraines for years. Some of them lasting upto 2 weeks.

Hope this finds you well. Good luck and I'll check back in a bit.
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Old 10-12-2006, 06:53 AM   #6
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Re: Effects of Brain Injury? I need help!!!

i am so sorry for what you have had to go thru,with everything.i am wondering if part of your problems may be stemming from post tramatic stress.this is a very very real condition that can occur at any time post trauma.a rape is a very major trauma.this manifests itself in many many different ways.i just thought you should be made aware if no one has mentioned this to you.i worked for our countys sexual assault services for a few yaers and have dealt with many women who were suffering from the effects of the actual traumatic injuries and the actual trauma of the rape itself.you DO sound like you are suffering from also a brain related injury too.getting that MRI really really is rather important just to see what may have occured during the assault.

i just have to ask this just for a specific reason,but did you report the rape?if so,there are certain victims assistance programs availiable thru most police depts.they also pay for the initial rape kit/exam to be done as well,but only if you are willing to prosecute if or when they find the ******* who did this to you.that is also another option,a civil suit against the offender to pay for all medical costs incured from his criminal act against you.the judge can also have that included in his sentence.some victim assistance groups/programs will also help to pay your medical costs incurred during a crime aginst you as well.

if you call your local sherriffs dept or police dept they should be able to provide you with a victim/sexual assault advocate to help you thru all of what you are having to deal with.there ARE some options out there that are availiable to you,you just may not have been made aware of them,they are worth at least looking into.

i hope this helps you in some way.you really DO need that MRI tho,really.this would be the best way of actually seeing any damage inside the brain.this can show old and new bleeds as well.from what you explained as the mechinism of injury,there could also be some fractures that you are not aware of.this just needs to be done somehow.depression will generally follow this type of crime/injury too,i am glad you are seeing a mental health professional right now.this will take some time to get it all "right' inside your head(the emotional aspect of it all) but one day,this will be something that you can deal with,you are much much stronger than you thought you ever could be,believe me.the biggest thing tho,is you ARE a survivor.i wish you lots of luck with all of what you are having to deal with.please keep us all posted on just how you are doing,K? hang in there.Marcia
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Old 10-16-2006, 05:30 PM   #7
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charity7 HB User
Smile Re: Effects of Brain Injury? I need help!!!

My husband and son bothe have TBI from a car accident---it is never easy!! Our life changed 100% when the accident happened--We do have a support group for them and we go to a TBI convention every year to learn about it all--

 
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