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Old 05-01-2013, 09:13 AM   #1
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samhit HB User
pseudoseizures versus epileplic seizures

I have been having seizures that started 6 months after I suffered a serious MRSA infection that went through my entire body. I was hospitalizeed for 6 days with a temperature of 102-105 and had antibiotics (vancomycin) for 3 cycles of 10 days each. It took a long time to get it out of my system. Starting 6 months after the infection I had my first seizure. I was terrified. At this time I had been back to work for about 3 months.I work as a RN at a local hospital. I was again hospitalized for a few days for different scans and outpatient treatment with neurologist. My husband and I kept telling him that I was continuing to have seizures and loss of memory ( he would find me in the floor and I did not know how or when I got there). The Doc kept blowing me off until I had a major seizure that broke my back. That is the most excruitating pain that I have ever had and I have had 2 babies. My husband insisted on a new Dr. and he put me on keppra. they kept coming and eventually I wound up on keppra, lamictal, and vimpat. The seizures have slowed down but I still have them and I continue to have periods of lost time, trouble problem solving, difficulty doing more than one thing at a time,and I still dont drive. This has been going on for 2 1/2 years. When it first started even going to the grocery store was overwhelming. I was first diagnosed with left temporal lobe seizures and now One of the resident doc's from my last stay told me I was having pseudo seizures but I am slowly getting better from seizure meds? Anyone have any advice or comments?

 
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Old 05-02-2013, 06:03 AM   #2
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angela8035 HB User
Re: pseudoseizures versus epileplic seizures

i started having them about 2 yrs ago i am on the same meds u are an have been sez free for 6 months now but docters still dont no what causes it an i feel like they dont care . I fill ur pain an pray we can get the help we need , i had 7 in one night on holloween my kids all seen it an they are scared thay will find me died one day .I am going back to the docter today with hope but idk if he has took the time to even look at my test i had done he really acts like i am lyin about the whole thing .Ill pray for u an hope ur gettin the help u need ....please do the same i really need it

 
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Old 05-05-2013, 11:22 AM   #3
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janna089 HB User
Re: pseudoseizures versus epileplic seizures

I experience these as well although they are a bit different from yours. I don't lose consciousness and am awake and aware of it. It's mainly my upper body and arms flailing. It feels like to me an inner turmoil that needs to come out and it feels like my arms and upper body are shaking it out so to speak. I was diagnosed last year after experiencing a traumatic experience. The seizure specialist said I had a nervous breakdown and the seizures are the result. He said they aren't epileptic but are Psychogenic non-epileptic seizures, or PNES. Also known as pseudoseizures.

Apparently each person with PNES experiences it differently. If you do have it, it's due to stress, usually from some type of trauma. It's psychological, not like epelepsy. I'm guessing your traumatic experience was the MRSA. It's been identified as a form of PTSD.

You need to see a seizure specialist. If you don't live in a big city, go to one. I've found that the doctors in bigger cities seem to have more knowledge. Search online for seizure specialists. They can refer you from there if need be.

Good luck!

 
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