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Dizziness insomnia and constant brain fog


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Old 08-10-2017, 08:08 AM   #1
KeithY
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Dizziness insomnia and constant brain fog

Hi everyone,

After a trip to India and Geneva in early June, I started to have this unusual dizziness that has lasted up till now. It is not vertigo which I know is room spinning. Instead, it started out as a rocking/swaying sensation which I felt in my body. It was constant from the time I woke up to the time I went to bed.

Around the 3rd week, the rocking/swaying body sensation stopped and was replaced with a constant sensation that my surroundings is tilted. Up till now, I am still having this sensation. It is difficult for me to explain, but it is like I am seeing that the room is always tilted to one side (sometimes left or right, but mostly forward). It does not matter which direction I look at. When I turn my head, my vision and brain automatically adjusts and feels that the room is tilted forward in the direction I am looking at.

Yet this has neither affected my walking nor caused me to fall. It is not worse when I walk or run or move my head, but it is constantly there, even when I sit down or lie down.

I have seen an ENT doctor who diagnosed me with vestibular neuritis and gave me a course of steroids, betaserc and flunarizine to take for the dizziness. However, the dizziness has not improved. Ever since I started the steroids and betaserc in week 5 (which I have now stopped), I have also started experiencing this constant 24/7 brain fog. I have been having constant problems concentrating, thinking, doing cognitive tasks, remembering things, so much so that it has affected my ability to converse with people, or listen to my lecturer or tutor talk (I am a student). I have never had any problems with this before. This brain fog has been with me ever since it started and has not let up for even 1 moment. It is getting harder and harder for me to cope with my studying and even my normal life because of this..

Since week 5, I have also been having insomnia. My sleep is terrible now and is unrefreshing. I will wake up 2 hours before I need to every day, leaving me extremely tired. Yet, I do not feel sleepy in the day.

I have seen multiple doctors for this, including another ENT doctor, a neurologist, and an opthalmologist. I have also done 2 MRIs, a VNG, ENG, VEMP, eye checks, lumbar puncture (the neurologist suspected encephalitis), EEG, nerve conduction studies, blood tests and Lyme test which have all come back normal. The VNG was surprisingly normal which showed that I definitely did not have vestibular neuritis. I also did a posturography test which did show that I have problems balancing (I fell backwards while doing the test, which is consistent with my constant visual sensation that my surroundings are tilted forward.

Please let me know if you have experienced this before, or if you have any idea what it is. I am currently inclined to think that it is not a vestibular problem, but a deficiency of some sort that is causing these unusual symptoms. Please also let me know if there any medications you have tried that have relieved your brain fog, as this is affecting me greatly right now.

Thanks..

 
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Old 08-10-2017, 12:46 PM   #2
Shari R
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Re: Dizziness insomnia and constant brain fog

Have you had this test? : Computerized Dynamic Posturography (CDP)

 
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Old 08-10-2017, 01:54 PM   #3
KeithY
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Re: Dizziness insomnia and constant brain fog

Quote:
Originally Posted by Shari R View Post
Have you had this test? : Computerized Dynamic Posturography (CDP)
Yes, I think I have. It was all normal except when the machine tilted me backwards, which caused me to fall each time.

 
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Old 08-10-2017, 02:02 PM   #4
Shari R
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Re: Dizziness insomnia and constant brain fog

It was that test which made the specialist realise that my brain was not using my vestibular... I am not sure when I fell, but it was each time my brain didn't use my vestibular (inner ear).
I had the test more than 2 years ago, so cannot remember the test very well.

That is when the specialist gave me my final VRT which made the brain fog disappear.

 
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Old 08-10-2017, 06:34 PM   #5
KeithY
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Re: Dizziness insomnia and constant brain fog

Quote:
Originally Posted by Shari R View Post
It was that test which made the specialist realise that my brain was not using my vestibular... I am not sure when I fell, but it was each time my brain didn't use my vestibular (inner ear).
I had the test more than 2 years ago, so cannot remember the test very well.

That is when the specialist gave me my final VRT which made the brain fog disappear.
I see..

Did you ever do a VNG or ENG to confirm that you had vestibular neuritis?

The reasons why I suspect that I do not have vestibular neuritis is that I never had the acute episode of vertigo at the start, and my VNG results came back normal..

 
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Old 08-10-2017, 07:00 PM   #6
Shari R
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Re: Dizziness insomnia and constant brain fog

I didn't do many tests, my understanding was a lot of tests don't really show if you have VN or not, so I didn't want to spend extra money for nothing...

Like you, an ENT specialist said that I had VN early on, from listening to my story, and doing a few things, he made me march on the spot with my eyes closed, I could not believe where I ended up...

I would be interested if the specialist can pick up anything from your CDP when you had your eyes closed...Did your vestibular work?

No vertigo at the start...I am not sure how often that happens.

 
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Old 08-10-2017, 08:26 PM   #7
KeithY
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Re: Dizziness insomnia and constant brain fog

Quote:
Originally Posted by Shari R View Post
I didn't do many tests, my understanding was a lot of tests don't really show if you have VN or not, so I didn't want to spend extra money for nothing...

Like you, an ENT specialist said that I had VN early on, from listening to my story, and doing a few things, he made me march on the spot with my eyes closed, I could not believe where I ended up...

I would be interested if the specialist can pick up anything from your CDP when you had your eyes closed...Did your vestibular work?

No vertigo at the start...I am not sure how often that happens.
Both when my eyes were closed and open, when the ground was tilted backwards, I could not balance and fell. Does this suggest a vestibular problem? I am not sure..

 
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Old 08-10-2017, 08:32 PM   #8
Shari R
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Re: Dizziness insomnia and constant brain fog

You would need to ask the specialist that did the test...

When I saw the ENT specialist, I could not even stand on one leg without falling over, with my eyes open. But by the time I did the test, my balance was very good with my eyes open... So it clearly showed that the vestibular was the issue.

 
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Old 08-13-2017, 02:24 AM   #9
KeithY
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Re: Dizziness insomnia and constant brain fog

If anyone has any idea, please help... I do not know if it is a vestibular problem anymore as all the vestibular tests came back normal.. These symptoms are ruining my life..

 
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Old 08-16-2017, 09:10 PM   #10
Coyotesdawn
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Re: Dizziness insomnia and constant brain fog

There are some kinds of inner ear disorders that can develop after flying. BPPV, more rarely mal-de-debarqement syndrome, and even more rarely and unlikely, a perilymph fistula (doubt that is what is going on with you).

Pressure traumas can do all kinds of things to the inner and middle ear from flying in an airplane, if you are particularly vulnerable. I too have suffered bouts of vertigo and balance issues after flying in the past with earplugs in my ears. It was probably inner ear migraines triggered by the pressure differences (another thing to consider perhaps).

Did these symptoms start exacty after you got off the plane or during the flight?

Last edited by Coyotesdawn; 08-16-2017 at 09:13 PM.

 
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