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Old 10-22-2002, 05:30 PM   #1
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Question Vanishing White Matter of the Brain...
Please, if anyone knows about this. I would love to chat with you about it. Found out my neice has this and there is no cure from what I have heard. Please anyone help me understand this rare disease. Thanks

 
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Old 09-30-2003, 12:53 PM   #2
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To Whom It May Concern:

My son was diagnosis with CACH 3 months ago when he was 10.5 months old. We just found out the news yesterday that he is experiencing CACH which before all the neurologist thought that he was going though ADEM. It is a devastating news for our family. I was wondering if you have any updated information on your niece case regarding CACH. Any update would be appreciated. Thanks.

 
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