I may be able to help
Hi to everyone
I myself do not have a shunt but my father does. I will share his strory but do not let this frighten you. Each person/case are very different. My dad was diagnosed with hydrcephalus last dec (they think he has had it all his life) Since then he has had 8 surgeries, all of which were to replace the shunt or its tubing. (due to malfunction and blockage) The doc put in a programable shunt where they can adjust the pressure from the outside. He has suffered from several complications, some very strange things, that the doc had never seen. FINALLY after almost a year the shunt is doing its job (so far) He goes back on the 20th for another ct scan to check on the progress. His headaches are still severe and they told him that it will take another year for his brain to adjust to losing the extra pressure. Now please do not get me wrong, it was an absolute must that he have this done, and although it has been emotionally draining and frustrating for him and for us, in the long run when the headaches are gone, it will be all worth it. I do not think he has ever went a day without a headache.
My advice for anyone that maybe having this done, educate yourselves and your families, and be prepared for anything. Stay strong and stay positive. I am not saying this will happen to anyone else, but we were under the impression from the doc that my dad would be back to work in 2mnths, and its now been a year. Please feel free to ask me any questions, I will answer the best I can.
Good luck to you both
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